I know some of you have experienced: feeling of vibration, whole-body, after Dx?

[fearless]

I saw a few older posts about this on another website, but no answer to the problem.

I've been on dialysis for a month or so.  Still trying to get the kinks worked out.  But one thing that doesn't seem to change is: I am vibrating all over!  Left dialysis 4 hours ago, and my feet are vibrating, my chest, my whole body.  Also my ears have been ringing non-stop for a month.  The vibrating will be gone by tomorrow, but it is very disturbing and keeps me from "normal".   Such symptoms might be considered a minimal inconvenience in light of the other things going on, but does anyone have an answer for this?  It doesn't seem that the other patients at my clinic are struggling with this.

Thanks!

[Cordelia]

OMG, that sounds horrible, I'm so sorry you and others are going through this ordeal.  I have never heard of that post d. I know people have experienced that post having a plasma exchange, but not after D. I hope you can find out soon!   Have you told your doctor/nurses?

[fearless]

thanks Cordelia,  actually i must confess i haven't voiced this complaint to my doctor (yet).  I feel I need to parcel out my complaints, lest I become a "complainer"!  I don't want any of my problems to be taken less seriously just because i have so many of them!  If I can find out anything from my fellow patients, I feel better about approaching my doc.  But she will be approached one way or the other regardless (lucky doc)

[Cordelia]

I hope you can find out some answers soon.       

For the first number of months I experienced loss of balance and would trip and stumble al ot but never experienced that.

[iketchum]

Hello there. I have felt the vibration thing. I assumed it was the fluid in the body trying to balance out. It is not a pleasent feeling but it does stop eventually.

[Rerun]

I have this feeling but never said anything before.  I call it tingling.  But vibrating is a better description.  I turn on the TV, and it is not so noticeable.  If the TV is on my ears don't ring or it covers up the ring. 

If you have a squeak in your car.... turn up the radio.   Is this called burying your head in the sand?     

[Whamo]

I usually get vibrations like that when I get to my dry weight after four hours on dialysis.  I find a cup of water, four ounces, maybe six, takes the edge off.  Vibrations are annoying, but the cramps and the headaches and the dizziness are a lot worse.

[Traveller1947]

Hi fearless!  Wish I had a remedy for what you've been feeling.  I don't, but can give you some support.  When I first started dialysis, I would come home and have to lie down with a pillow held to my chest to try to stop the (internal) trembling I felt throughout my body.  Always took a day to feel better.  That went on for about two months or so and then that symptom went away and I haven't had it since.  I think, in the beginning especially, dialysis stresses your body to its limits.  Be good to yourself: rest when you get home, keep your fluid removal goals reasonable and give your body time to adjust to what is at best a difficult and stressful treatment.  All the best to you in your journey...

[deanocank]

a couple of times ive felt this viberating feeling come from inside my body n when i feel it n it only happens for abot 15 second i think im gunna die i think this is it i also get realy bad cramps i get them in my legs my chest, hands also in the left side of my face  n i feel like im gunna have a stroke  when on the machine also late at night i get them im taking quineen but it doesnt help n its scarey

[Restorer]

I used to have that full-body. Now it's just my hands and face, mostly. It's not exactly vibrating, it's more like the sensation you have after vibrations stop - like when you've had your head resting on the window of a moving car or bus, and then you sit up, or right after the vibrating massage chair turns off. It's kind of a vibrating-tingling-numb feeling.

Eating candy and sipping water or tea through dialysis helps me. So does eating a small bowl of soup when I get home. If I'm wiped out and I take a nap right after getting home, it seems to get worse.

[fearless]

Thank you one and all.  It seems this is a sensation we just can't get around - and it also seems we all have found ways to cope with it.  Some of the other problems that were so bad at the beginning have lessened, so I'm hoping this will lessen too.  And I will try your suggestions in the meantime.
Thank you so much!

[kellyt]

Could it be a phosphorus thing?  I remember when my phos was high I would get the "restless legs".    I'm totally guessing here, as I've never been on dialysis.  Whatever it may be, I  hope you get it worked out soon.  I get that vibrating feeling when my Prograf level is too high.

[sullidog]

I was told any weird symptems post d treatment was due to fluid shifting.

[Restorer]

The vibrating and mouthfeel and face stiffness and some other things I feel after dialysis don't change much whether I've gained 0.8 kilo or 2.5. It really only started happening a month or two after I started hemo, when they switched me from a 3K bath to a 3K bath, so I suspect it's the shift in electrolytes messing with nerves and muscles and things.

[Gerald Lively]

Well Folks, there are times when I have ball-bearings running through my circulation system.  The first time I felt this, I assumed they were cleaning out my cholesterol.  So, I just let them do their job.
Whatdya mean those weren't ball-bearings . . . . . . . ?
Yours were gravel?
More like grape-nuts?
Whatever! This dialysis business is wierd anyway.

[fearless]

The day we used my fistula for a couple hours (before it blew) in conjunction with the neck catheter, I did not notice the vibrating as much.  I think it may have something to do with my body having to experience that flow into and out of my neck.  It think it's like Resorer said: the sensation is like a memory of the vibration.  I notice it starts about a couple hours into the therapy, and then lasts for many hours afterwards.

I'm planning to try to learn about the rate of flow, and to monitor that, because I'm suspicious that the higher the rate, the stronger the "vibration".  Shouldn't a neck catheter warrant a slower rate?  I have a very good clearance, and I would be willing to sacrifice some of that if it could mean a little less stress on my system.

I'll let you know what i learn.
thanks again one and all