We all know that most Americans eat too much salt, anyway, and for kidney/dialysis patients, salt is the big bugaboo.
Yes, I completely agree with you that openly writing about any issue is brave, at least in my estimation. I don't know enough about the politics of nephrology to say there is anything extraordinarily courageous in advocating for better dialysis - I would have to assume that most nephrologists (especially the ones that do not own dialysis clinics) would agree with him. More of them should add their voices to this push, it sounds well within their job description to register an expert opinion.
However, he is currently advocating for nephrologists to lecture patients on salt intake, with the implication that if they eat out, they must not want to control their salt that much; further implying that we are not smart enough to handle restaurant eating and make our own choices within our own dietary limits. That is the sort of statement that would have seen him sacked as my nephrologist. I don't eat out that often, but this all or nothing approach is detrimental to patients. It does not help that I do not believe there is strong enough science to support salt restriction in my particular case, and I would not appreciate a one-size-fits-all recommendation regarding diet or anything else.
I am all about patient autonomy and empowerment, so if that is his ultimate goal, then I am sure I will eventually come to the same conclusion that you have.
I'm surprised that you are not more aware of the "politics" of nephrology these days. You only have to look at Bill Peckham's and Hemodoc's blogs to see that there is a real battle between providing better dialysis and getting the funding for it. Patient outcomes vs profit. Read Bill's entries about EOD dialysis; this shouldn't even be an issue.
Cariad, it would be very interesting if you were to go to the Kidney Doctor's blog and tell him just what you've posted here, which is what I have done. You'll notice that I opined that this idea of don't eat out, ever, is unhelpful. If you do choose to add your own comment, please don't post as "anonymous".Why not judge? Tell him you think he's full of crap and that his opinion is based on crap science. If that's what you believe, you may well be right. Why not say this to him? If he's brave enough to open himself up to online criticism, then you can comment as you see fit. I'm sure he could learn something from not only you but also from any of us who are actual patients.
I was unaware that the salt issue is so controversial and that salt restriction is so perilous.
I don't know if there is some consequence The Kidney Doctor could face from the renal community as I don't know the extent of his financial involvement with any particular medical institution. But I personally applaud anyone who goes online and advocates for a frail population against big corporate concerns, particularly in this day and age where anyone can pretty much post anything, and oftentimes does with a particularly vicious and snarling tone.
Bill, I don't think there is anything horrible about eating out; I treated myself to lunch out today, and it's a practice I intend to continue. But I think you are reiterating the point, and that is that most of our salt consumption comes from restaurant foods, and if you are looking to radically reduce your intake (which I understand most dialysis patients should do, but maybe cariad is right in that this is just a bunch of hooey), then your neph should be telling you that cutting back on eating out will be helpful. That is all.
BTW Anna is totally on the Salt Institutes list ... if anything ever happens to her that's where I am looking first.[/left]
Are there really people out there who haven't heard the sodium/fat/calories rhetoric to death?
What would be the point of being alive, if you could not do anything you liked on occasion. We dont eat out much, but that is the way I was raised, the woman cooked. Plus, I do enjoy cooking and such. The point of the whole thing is to still enjoy yourself and enjoy your life.