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Author Topic: How bad is it, really?  (Read 1626 times)
Desert Dancer
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« on: October 06, 2011, 04:11:06 PM »
Just came from the pharmacy, where I discovered I've fallen into the 'doughnut hole' for coverage of my Sensipar. I now have to pay $1000 per month until I reach 'catastrophic coverage' levels.

I'm sick to death of playing games with these g&dd%mn insurance companies. Screw them and the horse they rode in on.
I'm seriously considering saying F%ck you to Amgen and just getting the damn things removed. I'm sick of this bullshit EVERY. DAMN. MONTH. Seems to me the surgery would be a one-time thing and no more worries.

How bad is the parathyroid surgery? How risky? How painful? How bad is the scar? How long is the recovery?
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
jbeany
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« Reply #1 on: October 06, 2011, 05:13:15 PM »
Mine was an overnight stay.  I had to go in for a nuclear scan a week or two before, which wasn't bad, just uncomfortable trying to hold still on a metal slab, like all scans.
The surgery itself is minor.  I have a barely visible horizontal scar at the base of my neck, about 3 inches across.  It's faded enough that few people even realize it's not just a natural wrinkle.  I used mederma scar ointment on it to make it even less visible.  I had to stay one night in the hospital.  I had to do D the next morning before they released me.  They did frequent blood tests all night long, checking calcium levels.  I ate a lot of tums for the next two weeks - every time my calcium dropped enough to make my lips numb again.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
brandywine
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« Reply #2 on: October 06, 2011, 05:58:23 PM »
So sorry to hear about your situation. I'm not even sure I know what the drawbacks (in the long run) are for that surgery.
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IgA Nephropathy Diagnosed Feb 2009
Transplant List Nov 2010
Peritoneal Dialysis Dec 2010
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