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Author Topic: My dads fistula  (Read 1995 times)
Dadsdecision
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« on: September 20, 2011, 03:19:47 PM »

Hi everybody-- its been a long time since Ive been on here-- things have been ok with my dad and his dialysis. He had his fistula surgery a little over a month ago and last week he had to get an ultrasound on it because the doctor
could not hear the blood flowing through- so tomorrow we will find out what the deal is and if he needs an angioplasty or something. My dad is 82 and also has liver disease and CHF. He is very weak. He can use a walker to get to the bathroom and back and thats about it- other than that he has to use a wheel chair. He is living at home with me and my family. I guess Im just venting because he is going to be so discouraged if he has to have another procedure or surgery- He keeps saying everyone said this was an easy operation and nothing to it and now there are all sorts of problems. He hates needles too- There is so much to do and so much going on- he needs to go to the podiatrist, eye dr, and now all these bumps are growing on his arms- looks like crystallized salt or something but they are hard and in the skin- very strange. Anyway, Ill let you know tomorrow what his surgeon says... wish him/us luck...  :thx;
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willowtreewren
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« Reply #1 on: September 20, 2011, 03:23:27 PM »

 :cuddle;

I hope it goes well. Set-backs can be so very discouraging!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
sullidog
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« Reply #2 on: September 20, 2011, 05:39:43 PM »

hope all goes well, the only concern is a clotted fistula should be delt with right away instead of a week later cause the longer it is closed the harder it is to break up the clot, did your dad or the doctor feel anything?
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Dadsdecision
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« Reply #3 on: September 29, 2011, 06:38:43 AM »

He has to have another surgery for a fistulagram? or graf? Like an angioplasty I guess.... Always something
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ReneePa
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« Reply #4 on: September 29, 2011, 08:29:30 AM »

Unfortunately, many have to have a fistulagram.   If there's a narrowing in the blood vessel,  it can cause poor flows or even clotting.   Hopefully the clinic where he goes to monitors the access flow.  That's always a good indication if something's going on. 
Teach your father to feel his fistula everyday for the "thrill" or the buzzing feel.  If it's in his lower arm, have him squeeze a spongy ball or a balloon with sand in it.  That will help strengthen the vessels- making it easier to be stuck. 

I hope this helps some.   :)
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Dadsdecision
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« Reply #5 on: January 26, 2012, 12:42:11 PM »

Ive been so busy I forgot to report back here! Im sorry and thank you for the replies... Well my father had the fistulagram... but NOW he has to have another surgery to get one of those vecro grafts? Its never ending.
That means we have to go to the cardiologist to get cleared and then primary dr to get cleared. Im so exhausted. Its very hard doing all this for my dad by myself and trying to take care of husband, kids and myself.
My dad is very weak all the time and he gets so upset when there is a set back. Sometimes I just dont know if all these surgeries are worth it. He is very tired. But I dont think he is ready to go yet. And whenever I see
him weak or take a step backwards I freak out afraid of losing him. This has been going on for about a year now. Oh well... guess just have to take one day at a time- like with everything :)
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boswife
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us and fam easter 2013

« Reply #6 on: January 26, 2012, 01:05:37 PM »

This all just makes me cry..literally  :'(  I feel your pain and exhaustion in it all and your broken heart..  It is so hard to watch someone fail, and to have to keep putting them through more is, well the hardest thing i feel i've had to bare.  Im sorry, and i hope things take an upturn for you,,,, at least for a while and give you all time to gather some strength..Bless you and all your doing..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
willowtreewren
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« Reply #7 on: January 26, 2012, 01:26:00 PM »

 :grouphug;

Yes, one day at a time. My father is slowly failing, but not from dialysis. Old age and self abuse are taking their toll. Still not easy to watch.

 :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"

« Reply #8 on: January 26, 2012, 08:23:29 PM »

 :pray; and  :grouphug;  to you! Just be there for him, Im sure he appreciates your being there!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Dadsdecision
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« Reply #9 on: January 27, 2012, 02:43:23 PM »

Thank you all for your words...

Next month is going to be busy busy busy...... Plus Im supposed to get a mammogram Monday- I hope that will be ok! crazy times....
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