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Author Topic: feeling weird between treatments?  (Read 3065 times)
gkcoley
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« on: September 13, 2011, 03:44:31 PM »

Ive noticed lately i feel weird the night before a treatment.  I dialyze on mon, wed, fri and on tues, thurs and sunday nights i feel weird, tingling feeling, dizzy, trouble breathing, cold sweats and an overall weird feeling.  Any idea what this could be?
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Cordelia
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« Reply #1 on: September 13, 2011, 03:52:28 PM »

Trouble breathing I would imagne would be related to fluid?

Best to ask your unit/your nurses and see what they say. I hope it goes away for you.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
sullidog
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« Reply #2 on: September 13, 2011, 05:34:26 PM »

could be a few things, fluid, needing longer dialysis, not clearing well etc. Are you fallowing you  diet? what is your labs like?
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
gkcoley
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« Reply #3 on: September 13, 2011, 05:39:51 PM »

low fluid gain, getting great dialysis, they like you to get 65% of toxins removed per tretment, im getting 76% removed
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tyefly
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« Reply #4 on: September 13, 2011, 08:48:08 PM »

what is your hemoglobin level.....what is your sat iron level.....look at those too...even if you are getting pretty good dialysis clearances you can still be rather anemic .... low RBC  hemoglobin and sat iron...this can make you feel out of breath and tired..
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

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  Hello from the Oregon Coast.....

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jbeany
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« Reply #5 on: September 13, 2011, 09:09:18 PM »

Any new meds? Any change in dialyzers?  Allergies are always a concern - and side effects from new meds.
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tbarrett2533
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« Reply #6 on: September 14, 2011, 06:15:19 AM »

I am wondering how long have you been on dialysis?
When I first started the first 6 months I felt like crap, shoot I felt like crap right on up until I started PD!
Hemo effects everyone differently, some can tolerate it better than others.... me I was sick more often than not

I say if you can do PD, do it  :2thumbsup;
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
gkcoley
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« Reply #7 on: September 14, 2011, 10:03:11 AM »

I am wondering how long have you been on dialysis?
When I first started the first 6 months I felt like crap, shoot I felt like crap right on up until I started PD!
Hemo effects everyone differently, some can tolerate it better than others.... me I was sick more often than not

I say if you can do PD, do it  :2thumbsup;

i was on PD for 4-5 years but got paretinitis that kept recurring and they made we switch to hemo, that was 12 years ago, been on dialysis a total of around 16 years
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Riki
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« Reply #8 on: September 14, 2011, 06:02:36 PM »

I'd say that if it's new, I'd check the labs, and make sure there's nothing weird going on. When I was on PD as a kid, I had one night off a week, usually Saturday nights.  By Sunday afternoon, I would be in weird moods, I sometimes felt tingly, and I was tired.  I was told that it was the buildup of toxins between treatments.  It doesn't happen to me now, but then, I'm on hemo and it affects you differently than PD
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
texasstyle
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« Reply #9 on: September 14, 2011, 09:09:41 PM »

I too am thinking that maybe you're building up with toxins. Since you've been feeling "better" on dialysis, you are probably more awre of how your body feels now too.
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #10 on: September 22, 2011, 11:02:45 AM »

I am wondering how long have you been on dialysis?
When I first started the first 6 months I felt like crap, shoot I felt like crap right on up until I started PD!
Hemo effects everyone differently, some can tolerate it better than others.... me I was sick more often than not

I say if you can do PD, do it  :2thumbsup;

i was on PD for 4-5 years but got paretinitis that kept recurring and they made we switch to hemo, that was 12 years ago, been on dialysis a total of around 16 years

Geez I am so sorry that you can't do PD anymore  :(
I suggest that you get everything really checked out (labs) get your fluild intake in check (if you don't already), stick to your diet (if you don't already)
then after all is said and done and you are still not feeling very well then you could be one of those lucky people like I was who just plain feel like crap while on hemo..... whatever the case I really hope everything works out in your favor  :grouphug;
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
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