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Author Topic: Today I used ESRD to get out of............  (Read 16938 times)
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« on: August 17, 2011, 02:13:56 PM »
First I would like to say that I have been on dialysis almost a year (9-23-11) and I have NEVER and I mean NEVER used kidney failure to my advantage until today....

My boyfriend's mother had invited us to a free concert a few towns over about 3 weeks ago, and at the time it seemed like it would be fun so we said we would go.... until the day arrived (today) and my boyfriend and I really do not want to go so we sat and thought and thought of a way to get out of it then finally I spoke up and said (which by the way is totally true), "I can't go that far away today I am doing my first 24 hour urine collection and I need to be home." 
my boyfriend exclaimed, "That's It!! we will use that."
He called her and told her and she said, "that's a bummer."
once he got off the phone he looked at me and said, "That's one of the advantages of Kidney failure, you can get out of just about anything." 
so I am wondering has anyone else ever done something like this? If so what was the circumstance?
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
MooseMom
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« Reply #1 on: August 17, 2011, 02:31:49 PM »
I get out of Christmas lunch with my husband's parents every year because I make sure to schedule a blood test on that day.  Haven't seen them in years, and frankly, they don't care and neither do I.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Bill Peckham
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« Reply #2 on: August 17, 2011, 02:40:56 PM »
In the '90s I worked setting up tradeshows at the various venues in the Seattle/Tacoma area (these days I work in the warehouse and don't get out to show sites much). If the job isn't finished, or the work hasn't progressed to the point it need it to be, pretty ccommon occurance, the foremen expect people to "volunteer" for over time. When this happened it also usually meant that the something was going wrong making the work more difficult - short people or changes or just typical BS -  but mostly people did the OT because you wanted to get called back and the foreman has wide discretion about who to call out. You never want to piss off your foreman.


Anyway, on days I was going to D after work I'd say I'd like to stay but I'll die and I could sign out without it being held against me.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
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        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
iketchum
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« Reply #3 on: August 17, 2011, 02:44:55 PM »
I was excused from Jury duty, twice. :thumbup;
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MooseMom
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« Reply #4 on: August 17, 2011, 02:47:05 PM »
Quote from: iketchum on August 17, 2011, 02:44:55 PM
I was excused from Jury duty, twice. :thumbup;

Oh yeah..me, too!  I forgot about that one.  Thing is, though, I would have been happy to serve, but the week they needed me, I was having fistula surgery.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
MooseMom
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« Reply #5 on: August 17, 2011, 02:48:16 PM »
Quote from: Bill Peckham on August 17, 2011, 02:40:56 PM
- short people or changes or just typical BS - 

Yeah, those short people can really screw things up!! :P
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lmunchkin
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« Reply #6 on: August 17, 2011, 04:02:36 PM »
Yes we can!!!!  Lol

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Rerun
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« Reply #7 on: August 17, 2011, 05:54:31 PM »
I think sometimes my family schedules dinners and parties on Sunday evenings so I can't go because they know I have dialysis.

But, it works to my advantage too.   :cheer:

Great topic!
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jbeany
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« Reply #8 on: August 17, 2011, 06:07:42 PM »
I think my number one was when my MIL decided I should be in charge of planning the next family reunion.  What?  I'm lucky if I remembered my hubby's aunts' names, let alone the whole extended family!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
sullidog
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« Reply #9 on: August 17, 2011, 08:02:30 PM »
I never ran into this but I'd say I have dialysis, and I could also use sorry I am not feeling well so I am in the er.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
texasstyle
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« Reply #10 on: August 17, 2011, 08:23:43 PM »
You've kinda got the Golden ticket.....
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caregiver to husband using in-center dialysis 4 years
Annig83
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« Reply #11 on: August 17, 2011, 09:08:37 PM »
 :kiss; LOVE THIS TOPIC!  My ex-mother-in-law used to make duck whenever we would visit.  I can't stand duck, frankly hated seeing them pluck the poor thing before eating it.  I told them that I couldn't eat it because of the kidney disease... grilled cheese for me :)
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
Jean
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« Reply #12 on: August 18, 2011, 12:16:25 AM »
I use the kidney thing whenever I want to get out of something, even tho I am not yet on D. I just tell them, I am not feeling well and they say, oh, I am so sorry to hear that. I love this thread!!!
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One day at a time, thats all I can do.
dawn24
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« Reply #13 on: August 18, 2011, 09:10:47 AM »
with what you all are going through you SHOULD use it to get out of whatever you want, whenever you want, and not feel the least bit guilty about it.   Dialysis is the ONE thing you CAN'T get out of, so work it   ;D
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #14 on: August 18, 2011, 09:59:52 AM »
Quote from: Bill Peckham on August 17, 2011, 02:40:56 PM

Anyway, on days I was going to D after work I'd say I'd like to stay but I'll die and I could sign out without it being held against me.


I am def going to use this one!!! I love it!!
 :2thumbsup;
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #15 on: August 18, 2011, 10:02:32 AM »
Oh yea and I do not even feel bad that I did this either (should I  :waiting;)
Kidney failure has to have some advantages (other than life)  :)
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
mcclane
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« Reply #16 on: August 18, 2011, 10:12:27 AM »
sometimes when we have events that we both don't feel like going, my wife will say "he has to do his dialysis, so unfortunately we are unable to make it".

you're not the only one that does this  :2thumbsup; :2thumbsup;
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Brightsky69
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« Reply #17 on: August 18, 2011, 04:27:32 PM »
When I was on PD I used the kidney card all the time. It's the card I was dealt so what the heck....I am gonna use it.
Now that I have a transplant....I use the transplant card to get out of stuff.  ;D  Most people I know still think I am just as restricted as I was while I was on dialysis. They don't know any different.  ::)  kidney transplant, dialysis it's all the same to them.   ::)
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
cattlekid
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« Reply #18 on: August 18, 2011, 07:26:38 PM »
I use this all the time to get out of crap with my ILs.   I am already planning on using it in October to bow out of my niece's birthday party.  They can't seem to be able to separate family party from friend party and I really just don't want to spend a third year in a row at Jump Zone eating crappy food and not being able to spend any time with my niece. 

I'll use the excuse that small children are germ factories and I can't be around them in large groups. 
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Chuckracer
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« Reply #19 on: August 18, 2011, 10:43:36 PM »
Oh yeah - great thread!

I got out of a speeding ticket once. This was on my motorcycle, too.
Officer (after the license, rego and insurance thing): Where you headed? Me: Home. Officer: Where you coming from? Me: Dialysis...I have kidney failure and have to do dialysis three time a week. I'm just now getting home.
His attitude suddenly dropped and his voice got soft: OK, be careful on the rest of your trip and good luck.

That would have been a 75 in a 55 as I had just passed a car, too!
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bette1
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« Reply #20 on: August 19, 2011, 09:41:26 AM »
I've been using the kidney card for years.  I feel a bit guilty about it, but many times I actually don't feel well enough to do things that I had planned to do. 

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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
Rerun
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Going through life tied to a chair!
« Reply #21 on: August 19, 2011, 10:22:02 AM »
I have a disabled placard.......  I use it too.  I'm just waiting for someone to say something to me so I can pull up my sleeve and say  "LOOK I"m on lifesaving dialysis 3 times a week where all the blood is sucked out of me, cleaned, and shoved back in me"  So, I'll park there if I want to.  It is great during Christmas shopping.

               :waiting;          :flower;
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jbeany
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« Reply #22 on: August 19, 2011, 10:30:58 AM »
Ya know what?  I didn't feel guilty for more than a mili-second when I used the ESRD card when I was still on D.  Hey, I had a limited amount of time and a very limited amount of energy.  Why should I have used either for something I didn't want to do?!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
RightSide
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« Reply #23 on: August 21, 2011, 06:00:48 AM »
I was about to drive to my dialysis center for my treatment, when my car refused to start--dead battery. 

I saw a guy doing maintenance on a building nearby.  I walked over to him and explained that I've got ESRD and I've got to get to dialysis.  He heard that story, he immediately stopped what he was doing, brought his truck right over to my car, and gave me a boost with his own battery cables. 

Evidently ESRD has quite a reputation; I never knew how many people know about that thing.
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jbeany
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« Reply #24 on: August 21, 2011, 04:59:06 PM »
Quote from: RightSide on August 21, 2011, 06:00:48 AM


Evidently ESRD has quite a reputation; I never knew how many people know about that thing.

Given the rapidly expanding numbers of people needing to start, I guess we shouldn't be surprised that more people at least know it means we're sick - even if they haven't got a lot of info about the specifics.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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