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Author Topic: I am Done  (Read 13944 times)
YLGuy
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« Reply #50 on: August 22, 2011, 08:54:09 AM »

I needed some good news and this certainly qualifies.  I am so glad that the cath has been working.  :thumbup;
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needlephobic
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« Reply #51 on: August 22, 2011, 10:45:30 AM »

it is working but not at there speed when they try to go for 400 it bottoms out everytime been running at 200 to 250 and no probs. The tech that has been dealing with me says my cath pulls great just don't understand why it bottom out at 400.
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CebuShan
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« Reply #52 on: September 06, 2011, 02:12:50 PM »

Hi! Needlephobic! I can totally understand your situation. I, too am terrified of needles coming at me! I can GIVE shots but I sure can't take them! I do have a fistula now but I wouldn't let them stick me until I was ready. (I'll never totally get over it even thought they keep telling me it will get better) This is the worst thing I can think of happening to those of us that can't stand needles.
Any way, glad your cath has been working. Have they tried reversing it? When I had mine, it seemed that halfway through treatment I had to use the bathroom. When I would get hooked up again, it wouldn't run "normal", they had to reverse it. No one ever came up with an explanation of why. They just started automatically hooking me up in reverse after my bathroom break.

Hope things keep going well. Keep us updated. YOU ARE NOT ALONE!!!!!   :grouphug;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
boswife
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us and fam easter 2013

« Reply #53 on: September 06, 2011, 04:13:15 PM »

Just today, i was at my friends fathers house, and he was telling me about this 'cancer' that he had removed from his forhead.  He (for some reason) was to be awake but the drug they gave him they said......  "you will  *feel* everything, but you wont care".  He said at the time he thought how could that be.  Well, he couldnt believe it because he felt everything, the cutting, the stitches everything, but ***he didnt care***.  (btw... there was no pain, just could feel it)  Which then reminded me of when i had a tooth worked on and i was sooooooooooooooo fearful and they came in with something in a little shooter thing that i think was green.  They had said the same thing to me... "i wouldnt care"   WOW!!  i had forgotton about that little green cup and i tell ya, I could live like that!!  lol   I truly didnt care about what ever they were comming at me with.  Wonder what it was????
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #54 on: September 06, 2011, 09:33:39 PM »

I think it may be Versed:
Versed is a sedative, anxiety, and anesthesia medication that is used as a sedative, anxiety, or anesthesia medication, used before or during surgeries, medical procedures, or dental procedures. This prescription medication works to reduce anxiety, cause sleepiness, relax the muscles, and impair short-term memory by enhancing the effects of a certain brain chemical. Versed comes in the form of an injection or a syrup and is very fast acting.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
CebuShan
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« Reply #55 on: September 07, 2011, 07:09:39 AM »

I think it may be Versed:
Versed is a sedative, anxiety, and anesthesia medication that is used as a sedative, anxiety, or anesthesia medication, used before or during surgeries, medical procedures, or dental procedures. This prescription medication works to reduce anxiety, cause sleepiness, relax the muscles, and impair short-term memory by enhancing the effects of a certain brain chemical. Versed comes in the form of an injection or a syrup and is very fast acting.

Wow! Where can I get some of that!  ;D  It would be nice to have them stick me and NOT CARE!   :clap;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
cattlekid
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« Reply #56 on: September 07, 2011, 07:21:28 AM »

Versed is the bomb.  I've had it for colonoscopies, biopsies, cathter placements etc.  It definitely works for me as advertised.  I have no ill effects coming out of the Versed - can't say the same about general anesthesia.



I think it may be Versed:
Versed is a sedative, anxiety, and anesthesia medication that is used as a sedative, anxiety, or anesthesia medication, used before or during surgeries, medical procedures, or dental procedures. This prescription medication works to reduce anxiety, cause sleepiness, relax the muscles, and impair short-term memory by enhancing the effects of a certain brain chemical. Versed comes in the form of an injection or a syrup and is very fast acting.
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needlephobic
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« Reply #57 on: September 07, 2011, 03:41:02 PM »

Would like to try it but I don't see my neph agreeing to it
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CebuShan
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« Reply #58 on: September 07, 2011, 04:27:46 PM »

Ask!!
Does your GP talk to your neph? Get them to suggest it.
Hang in there!
   :cuddle;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
lmunchkin
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"There Is No Place Like Home!"

« Reply #59 on: September 07, 2011, 04:37:23 PM »

I would try it if I were you Needlephobic.  You have got to do something to ease you fears!  I hate this so much for you, what a delimma!

lmunch    :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
needlephobic
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« Reply #60 on: September 07, 2011, 06:54:49 PM »

My neph is a jerk and really doesn't listen to me. Every thing I suggested like the laughing gas or any kind of med that would knock me out or for a loop nope he said. My neph don't care he is a partner with the doc that owns the d center so he has to do what the owner doc wants. I see no use in even asking him. I don't like him and or trust him.  The owner doc even had the nerve to bill me and he is not my doc and has never done anything for me. So why pay it? And if I ever get over this fear I don't see transplant in my future. Because of the lies they put in my chart. Since starting D I been in the dark. Had to do my own research to find answers. Its like I was reading a thread on EPO  and that stuff was giving me minegrain headaches found out here there is a couple of other meds like EPO. I asked neph if there was any other meds like EPO  he said nope just lied right to my face. I really don't think the like this message board. I wonder if it is because here we find the truth and where I am at hey want to hide it. They don't give us all the lab report just the important parts well isn't it all important? I am at the verge of giving up. I started this thing alone no home support no D center support so I figured I'll die alone. :(
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lmunchkin
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"There Is No Place Like Home!"

« Reply #61 on: September 07, 2011, 09:10:21 PM »

Needlephobic,  I can only imagine your fears, frustrations and the apparent loneliness you feel right now! It's probably an emptiness that is awful beyond imagination.  There are others on this site that goe through alot of things on their own, and honestly, I do not see how they do it! I do what I can for my husband, but we do have each other.

I am in awe of how those of you doing everything Alone, especially with ESRD! I can remember years, not too very long ago, where family took care of their own! It seems like nobody "Cares" anymore or they just don't want to be bothered. 

I wish I had words to make you feel better, but I don't think words will help you to get over this fear that you have!  All I can say is don't give up hope! We need you with us!!!! Don't let these people push you around!

Unless you are at peace with dying, then I would not do it! Just my two  :twocents;

You are in our thoughts, Needlephobic,  :pray;

lmunchkin
 :kickstart;



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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
CebuShan
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« Reply #62 on: September 08, 2011, 09:21:03 AM »

Is this the only neph you can see? Or the only D center? I cannot imagine having to deal with a dr or clinic that I don't trust! I had 1 neph that I did not like. He had a few "favorites" and the rest of us he treated like we were an inconvenience. I finally had enough. My parting shot to him was that I refuse to be treated by the Pillsbury Dough Boy! Maybe if you could find somebody else, it might help.
 You're in my prayers.   :pray;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
needlephobic
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« Reply #63 on: September 08, 2011, 05:34:30 PM »

Is this the only neph you can see? Or the only D center? I cannot imagine having to deal with a dr or clinic that I don't trust! I had 1 neph that I did not like. He had a few "favorites" and the rest of us he treated like we were an inconvenience. I finally had enough. My parting shot to him was that I refuse to be treated by the Pillsbury Dough Boy! Maybe if you could find somebody else, it might help.
 You're in my prayers.   :pray;
 

 There is another dialysis across town from where I go Davita  been there and was told they will push to do needles well if you push me won't come there. want a independent Neph just can't find one all have partners or need references.
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