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Author Topic: what to do with remaining renagel?  (Read 4256 times)
sullidog
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« on: July 13, 2011, 06:48:48 PM »
I just switched to renvella from renagel, however I have 4 big containers of 90 day supply of renagel that's only a month old and has never been open, any ideas on what to do with this? I'd hate to waste them but if that's the best thing then I'll toss them.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
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Riki
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« Reply #1 on: July 13, 2011, 07:32:04 PM »
I'm on renagel and can't afford it. you can send it to me.... *G*
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Jie
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« Reply #2 on: July 13, 2011, 08:08:56 PM »
I thought both are similar.
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jbeany
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« Reply #3 on: July 14, 2011, 02:43:49 PM »
*Ahem...*  No one on this board would ever dream of illegally exchanging meds openly on a public forum, now would they?  Of course not.

That's what PM's are for.... So you can privately exchange any personal addresses and gifts you wish to send....   ;D

 
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lmunchkin
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« Reply #4 on: July 14, 2011, 04:22:17 PM »
Sullidog, my husband was on Renagel, then put on Phos Lo, then they put him back on Renagel later!  You never know what is around the corner with this.  If you do "gift" to someone on PM, at least keep one for yourself if you did go back on them!  We gave ours to In-Center just to turn around and get more that we had to pay for! Just speaking from experience!

lmunchkin     :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
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sullidog
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« Reply #5 on: July 14, 2011, 07:28:47 PM »
yes, it's similar but I switched do to constipation.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Riki
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« Reply #6 on: July 14, 2011, 10:21:43 PM »
Quote from: jbeany on July 14, 2011, 02:43:49 PM
*Ahem...*  No one on this board would ever dream of illegally exchanging meds openly on a public forum, now would they?  Of course not.

That's what PM's are for.... So you can privately exchange any personal addresses and gifts you wish to send....   ;D

I was actually kidding.. would probably never make it across the border anyway.. *LOL*
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jbeany
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« Reply #7 on: July 15, 2011, 01:11:52 PM »
A number of us have exchanged some lovely, expensive gifts that were no longer needed by the original owners - but yes, in the same country is probably your best bet!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Cordelia
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« Reply #8 on: July 15, 2011, 01:27:34 PM »
I'm on Renagel and find it so constipating. So Renvella is not as constipating? Does it create the undesirable gas that Renagel does? I'm just curious of the cost of Renvella as well. Is it cheaper or more costly than Renagel? I get a month's supply of the Renagel and it costs about $330 Canadian. Thank God for my husband's private insurance though as it only costs out of my pocket, $15 per month!   
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
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tyefly
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« Reply #9 on: July 15, 2011, 04:28:56 PM »
I love gifts.. :shy;
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RichardMEL
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« Reply #10 on: July 16, 2011, 03:52:16 AM »
Interesting.  I never had any "plumbing" problems while on Renagel.

Anyway after my tx when I did not require my supply of Renagel again I was able to donate it to the hospital renal ward. I was actually surprised when they accepted it (I didn't think it would be allowesd actually but I asked anyway as it couldn't hurt) they were happy to take it so I felt good that I was able to do something useful with it.
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Cordelia
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« Reply #11 on: July 16, 2011, 09:05:40 AM »
LOL Richard, Plumbing problems! LOL    ;D  Love it!    :rofl;  :rofl;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
brandi1leigh
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« Reply #12 on: July 17, 2011, 02:05:52 AM »
I have been repeatedly told by my dietitian and by my pharmacy that Renvela and Renagel are the exact same product. The company just switched names. I'm interested to know what the difference is between the two.
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lola
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« Reply #13 on: July 17, 2011, 04:55:04 AM »
We have donated extra meds to the transplant center in the past... :)
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MooseMom
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« Reply #14 on: July 17, 2011, 10:22:44 AM »
It's my understanding that renvela is a buffered version of Renagel, so like buffered aspirin, it's supposed to be easier on your GI tract.  Whether it actually is or not depends upon the individual, I suppose.
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Cordelia
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« Reply #15 on: July 17, 2011, 10:50:51 AM »
Is it.......cheaper than Renagel? Does anybody know? I'm seeing my nephrologist this Tues to ask to switch, if anybody can let me know before then, that'd be great    :flower;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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« Reply #16 on: July 17, 2011, 07:57:58 PM »
Does anybody know? 
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Annig83
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« Reply #17 on: July 18, 2011, 03:19:30 PM »
Hello.  I have found an article on the difference between the two.  Hope this helps.
http://www.renalbusiness.com/news/2007/10/fda-approves-genzyme-s-renvela.aspx

Also, you can donate the remaining Renagel to your dialysis center, I believe the Red Cross, nursing homes, etc.  There should be a drug return program in your state.
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*~Annie~*
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Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
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March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
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The Lady
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« Reply #18 on: July 18, 2011, 04:07:50 PM »
The nice thing about Renvela is if you have a pill swallowing issue like I do, (these binders tend to be fricking huuuge!) you can get it in powdered form. It doesn't taste fabulous, but it isn't that bad..just a bit grainy. Kinda tastes like a cheap, bland lemonade.
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