Effects of dialysis

[woodsman]

Today i noticed that when i am walking i find that my legs feel all tired out after a short distance, is this normal am i just tired?, After a bit of walking my legs feel as if they climbed a mountain?

[WishIKnew]

I don't know if it's common but I will tell you that since I switched to hemo I get tired so fast.  I was just doing a quick run to Target the other day, you know tooth paste, cleaning supplies.  About half way down the third isle I broke a sweat and just wanted to sit down.  What the heck is that about??

[lmunchkin]

Now I m not on dialysis, but J. was always washed out when leaving the D. Clinic.  I believe that is normal.  You have to remember, they are on a time line!  They have to rush more blood through machine at a faster pace, hence, the washed out feeling.  I was always giving J. ensure or boost to drink when he got out! Maybe some sodium to bring his bp back up.

WIK, did you feel washed out when you did PD?  J. never felt washed or tired when he did PD, in fact, he felt real good afterwards!  Now with NxStage, he is feeling so much better and has more energy!  The only, and I say ONLY draw back to NxStage, is you have to do it 5 to 6 days a week!  But the benefits of that far out weigh the negative! As I have said in previous posts, he gets a slower & longer cleaning of his fluids and the toxins in his blood.  I personally know that just removing fluid is not enough, its the toxins that are equally as important!

But anyrate, yea, i believe it is normal to feel tired after Incenter D.  Dont know of anyone coming out of clinic feeling like a marathon run or a nice crisp walk afterwards!  Nope! Don't believe I do!

Any more Infiltrations, Woodsman?

lmunchkin     

[KarenInWA]

But anyrate, yea, i believe it is normal to feel tired after Incenter D.  Dont know of anyone coming out of clinic feeling like a marathon run or a nice crisp walk afterwards!  Nope! Don't believe I do!

lmunchkin     

I usually do D in the evenings, but this past Saturday I did an early AM run.  I drove home, then walked w/a friend to a nearby restaurant for lunch.  Ended up doing shopping type errands for the rest of the day/evening.  Ended it w/a movie at my friend's house, and was in bed by 12:30/1AM!  However, I do run a higher than normal BP when on D, and right after it's done.  I don't like it, but maybe that's benefitting me?

KarenInWA

[lmunchkin]

There are some who can do more afterwards, but they, like you Karen, are few & far between.  Most have so many other issues going on, that Im sure do not help.  J. is like you, he wants it in the evenings, so he can sleep and wake up refreshed in the mornings.  And I work Tues thru Sat. w/h Sun. & Mon.  off, which evenings really work out for me too!

Higher bp (not too much) does make a huge differences!  I know when J. has a low bp or a low bs, it is not Pretty, I tell you what!

lmunchkin       

p.s.  guess everybody has noticed a little "King Of The Hill" sayings in my posts!  I love that show!

[iketchum]

I am a diabetic on hemo dialysis. My legs get tired easy now too. I am being sent to the vascular clinic to see if it is a side effect of diabetes. It is very annoying not being able to do the stuff I want because of this.

[WishIKnew]

No lmunchkin I never had the tired problem on PD - I felt great most of the time!  But I will say Hemo is getting better.  I know what to expect and how to shape my evenings so I don't crash and burn.  Tonight was noit bad at all! 

[lmunchkin]

Yeap, you just get used to it like anything else in life!  It is not desirable, but very necessary! I can only imagine what it is like!

lmunchkin     

[tyefly]

Well    I havnt told anyone yet  but    I am loosing my hair.... big time....  I would say  I have lost half of my hair....  scary..... I havnt said anything to anyone cause well... I dont want them to think that I am sicker that what I am ..... I want a transplant....so I dont complain at all about anything.... toes are numb...tingling burning all the time....legs hurt alot at times... joint pain.....   and now hair is coming out ....everytime I comb my hair its full of hair.....  I hate this stuff

[Cordelia]

Losing hair, that's from the heparin, I had the same problem, the first few months on D. I don't now and I've been on hemo since last august. Up til December I had problems losing the hair.....to the point where I'd get teased about it and it really, really bothered me.   

Feeling tired after hemo is totally normal too, I have to have a nap after my morning shift. I usually plan to do 'nothing' on my dialysis days which are tues, thurs and saturdays. A 2 hr nap after lunch makes me feel so much more energetic.   

[tyefly]

are you still loosing hair......    I have been doing dialysis for almost two years now and its just been in the last few months.....

[WishIKnew]

I've had joint pain in my hips - is that kidney failure related?  I just thought I was getting old (47)!  LOL  Especially after sitting cross legged.  Hum!

[Bajanne]

I didn't always have those kinds of feelings.  After my first months on dialysis, I felt a new energy.  I would leave dialysis, go teach classes and feel on top of the world.  But these last months.......  horrid feelings.

[Cordelia]

I would say  I feel 'better' (more energy) with being on dialysis now. I need a nap though after treatments LOL

I suffer from joint pain too and also get the tingling/burning toes. It's all kidney failure related so I've been told.

[ESRD Survivor]

Dialysis effects each person different.  Some dialysis days I am fine and can run errands afterwards, but tend to take a nap in the afternoon especially if I am laying down and watching tv.

I have a lot of hair loss and for a gal, its sooooo sad.  I was told to take zinc, I have, and see no difference.

They say the less fluid you gain between sessions the less problems you will have.  I live in Az, it will be 116 to 120 this weekend, impossible to not be thirsty.  I usually sip water here and there, not drink it if that makes sense.

Hopefully your neph will have some good ideas.  best of luck

[Cordelia]

That's very difficult I can imagine. I'm very lucky not to be on fluid restrictions since I'm still peeing. I feel for those who can't have as much fluid on a hot day.   

[lmunchkin]

Hey ESRD Surv, that is a dry heat isn't it!  When I was younger they told my father who had severe sinusitis to move to Arizona!  Don't think you get the humidity like say Atlanta or Tennessee.  Today it was 92 and surprisingly, fairly low humidity.

lmunchkin           

[ESRD Survivor]

Oh we do get humidity!  Not like back east but we have a monsoon season, and especially in August, we can be 105 and 90 percent humidity in a good storm.   Luckily it is not long term humidity.   

[lmunchkin]

You know, I have always wanted to take a month or so and just travel out west!  See the sites!  Maybe someday that will happen!  But my state is a beautiful state too!  Tennessee has got the most gourgeous hills that just Roll forever! You come to any city in TN and you are gonna see Hills!!!! The west has ther prairies and mountains and we got the Hills!

My desired state to visit would be Colorado!  Don't ask me why, I just want to go there!

lmunchkin            

[Seamus]

During the early stages of my hemo, hair started coming out in fistfuls.  The only guidance received, "see your hair stylist"!  Not too many guys in their 70's have a hair stylist.  While my dermatologist was digging out some skin cancers, he suggested Rogaine, a $50 cure.  I tried it, successfully.

My hair came back-in substantially darker, ( I was white-haired), and substantially curlier than it used to be.  The only obvious benefit that I know about from dialysis.  Otherwise, I am wiped out after every session and require at least a two hour nap, and sometimes two days to recover.

Is that unusual, and what causes the instant fatigue during hd?

Let me know your ideas.

Seamus