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Author Topic: Question about Neuropathy Pain Cream  (Read 4528 times)
Cordelia
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« on: June 15, 2011, 04:49:03 PM »

Anyone use cream on their feet to help with the pain of neuropathy? I was given a prescription today by my neurologist. He offered pills to help with the pain in my feet but I declined. I'll just suffer some horrible nasty side effect with more pills while on dialysis, noooo thank you....so.......he offered a cream instead. Anybody had experience using a cream? Does it help? Will I curse the cream and wished I didn't waste my money? Just curious what your experience has been.    :waving;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
greg10
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« Reply #1 on: June 15, 2011, 05:22:36 PM »

Anyone use cream on their feet to help with the pain of neuropathy? I was given a prescription today by my neurologist. He offered pills to help with the pain in my feet but I declined. I'll just suffer some horrible nasty side effect with more pills while on dialysis, noooo thank you....so.......he offered a cream instead. Anybody had experience using a cream? Does it help? Will I curse the cream and wished I didn't waste my money? Just curious what your experience has been.    :waving;
Yes, $86 for an 3 oz tube, which was about $80 too much and Medicare won't pay for it (perhaps they know it is ineffective).  It claimed to have Neurontin (gabapentin) in it, but it also has lidocaine and that is probably the active ingredient that is doing anything.  So save yourself about $80 and get a tube of lidocaine cream, it will probably be just as effective.   In our case, this Gabapentin cream was not effective against any symptoms of neuropathy (pain or numbness).

What has helped with the peripheral neuropathy was getting the blood sugar under control (even if you are not diabetic, you may be at risk, when was the last time you tested for blood glucose and is it normally under 150 mg/dL?)

Better dialysis seemed to have helped as well.  Our HDP is about 100.  Know your HDP if you are on hemodialysis.

Anti-glycation supplements such as Benfotiamine may also be helpful.  It is an antioxidant that was shown to be effective for the treatment of diabetic retinopathy, neuropathy, and nephropathy.  You can get a 100x150mg bottle for about $12.  Benfotiamine has also been shown to protect PD patients against glycation due to the high glucose dialysate that they carried.
http://ihatedialysis.com/forum/index.php?topic=23079.0

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« Last Edit: June 15, 2011, 07:42:48 PM by greg10 » Logged

Newbie caretaker, so I may not know what I am talking about :)
Caretaker for my elderly father who has his first and current graft in March, 2010.
Previously in-center hemodialysis in national chain, now doing NxStage home dialysis training.
End of September 2010: after twelve days of training, we were asked to start dialyzing on our own at home, reluctantly, we agreed.
If you are on HD, did you know that Rapid fluid removal (UF = ultrafiltration) during dialysis is associated with cardiovascular morbidity?  http://ihatedialysis.com/forum/index.php?topic=20596
We follow a modified version: UF limit = (weight in kg)  *  10 ml/kg/hr * (130 - age)/100

How do you know you are getting sufficient hemodialysis?  Know your HDP!  Scribner, B. H. and D. G. Oreopoulos (2002). "The Hemodialysis Product (HDP): A Better Index of Dialysis Adequacy than Kt/V." Dialysis & Transplantation 31(1).   http://www.therenalnetwork.org/qi/resources/HDP.pdf
Cordelia
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« Reply #2 on: June 15, 2011, 05:51:10 PM »

I'm not diabetic, just had a test done 2 months ago. Neuropahty is not just caused from diabetes.

The neuropathy I have is from the kidney dialysis/renal failure for me. My insurance will cover that cream if it's as expensive as you mentioned, I'm not worried then. I pay a copay of $15. I will try it and hopefully it will work.   
« Last Edit: June 15, 2011, 05:52:51 PM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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Posts: 2012


« Reply #3 on: June 18, 2011, 12:42:44 PM »

I got neuragena, over the counter, instead. It's helping to relieve that burning, stabbing, tingling pain!    :bandance; :clap; :yahoo; :2thumbsup;
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
jeannea
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« Reply #4 on: June 18, 2011, 01:40:31 PM »

I don't understand why you object to taking Neurontin capsules. I found they really helped with little or no side effects. I mean they really helped. Might be worth a try.
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Cordelia
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Posts: 2012


« Reply #5 on: June 18, 2011, 04:43:55 PM »

I have no idea what medication my doctor was going to prescribe, he did not tell me. I take enough pills with side effects I wish not to take more at this time.
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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