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Author Topic: I got put in my place today !  (Read 7022 times)
KICKSTART
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« on: March 24, 2011, 05:16:55 PM »

There are a few of us at D that when placed near each other like to chat. (most are elderly on our unit and just like to sleep or dont bother speaking) Well today 4 of us where in beds beside and opposite one another. 2guys , one old , one young and my friend ..a lady twice my age but sharp as a razor and a hoot ! When she is having a down day , i cheer her up and vice versa, we are good for each other. Anyway all four of us where having a good old chat The older chap is very funny and had us in stitches with some of his tales , the younger guy is a bit shy but comes out of himself when he gets with us. So all this made D pass a lot more quickly , till one of the staff came round and told us all to be quiet. So it looks like we have to go in , do our D in silence then go home. The thing is we are all good for one another, we share problems , we laugh and we socialise ! I expect on saturday we will all be in the far corners of the room, split up. 4 more miserable people at D !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
chook
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« Reply #1 on: March 24, 2011, 05:37:10 PM »

KS it is such a shame that you aren't allowed to have 'fun' at D.  I agree that talking and sharing makes the time go more quickly. At the unit I was at, I loved to hear people laughing and cracking jokes, and joined in if I could - it seemed to lessen the horror of it all for me. (I'm now back on PD). I hope you don't get seperated. Maybe they'll move you closer so you won't have to talk so loud!
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Diagnosed PKD 1967, age 8
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jbeany
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« Reply #2 on: March 24, 2011, 06:03:49 PM »

Oh, for pete's sake.  Really?  You're not allowed to enjoy a conversation now?  Or you're supposed to have it in sign language so you don't disturb anyone?  The staff having a hard time hearing their soap on the telly?

Yeesh.

Although I do know a couple of signs I would have flipped at the nurse.....  >:D
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

tyefly
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« Reply #3 on: March 24, 2011, 06:07:59 PM »

 You guys were probably having a good time talking and was just too loud for their comfort.... like a library  things need to be toned down.....

I wouldn't take it too seriously... and I would continue to talk and share things with the others.... 
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IgA Nephropathy   April 2009
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MooseMom
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« Reply #4 on: March 24, 2011, 06:21:16 PM »

Oh that's just too stupid.  I hate your clinic, KS, I really do.  Such a wet weekend.
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« Reply #5 on: March 24, 2011, 07:08:51 PM »

That's just stupid.  Did they at least give a socially acceptable reason like, "We need to be able to hear the alarms?"   :banghead;
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lmunchkin
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« Reply #6 on: March 24, 2011, 07:20:09 PM »

I would ask them if they would like to trade places with you and see if they would like to be in Your Time Out!  Maybe you would like to watch the "telly" as jbeany so rightfully indicated. The very nerve of these people just chaps my (well you get the picture)!
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
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monrein
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« Reply #7 on: March 24, 2011, 07:28:45 PM »

That's just plain crazy crap!!!!
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Pyelonephritis (began at 8 mos old)
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(2 1/2 hours X 5 weekly)
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DomJDavis1985
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« Reply #8 on: March 24, 2011, 07:34:17 PM »

that sucks! my clinic is nothing like that....we yell across the floor at each other...and the techs are loud and joke alot too...it really makes dialysis go by faster and a little more entertaining. ..but then again most of our techs except maybe one are younger..did they tell you why you needed to quiet down? maybe it wasn't the techs fault..maybe another patient complained about the talking....who knows? that still stinks though
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PatDowns
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« Reply #9 on: March 24, 2011, 07:50:03 PM »

I agree with Tyefly.  Keep the conversationn going, but maybe tone it down a bit?  I would NEVER allow staff to treat me like a child.  EVER!  And, let the charge nurse or unit administrator know as well. 
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
PatDowns
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« Reply #10 on: March 24, 2011, 07:57:26 PM »

that sucks! my clinic is nothing like that....we yell across the floor at each other...and the techs are loud and joke alot too...it really makes dialysis go by faster and a little more entertaining. ..but then again most of our techs except maybe one are younger..did they tell you why you needed to quiet down? maybe it wasn't the techs fault..maybe another patient complained about the talking....who knows? that still stinks though

While KS's Unit has taken things to the extreme, my expectations for a facility don't include being entertained.  I expect the staff to act professionally and provide quality care.  That's not going to happen while everyone is yelling across the floor and joking around.

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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
Des
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« Reply #11 on: March 24, 2011, 10:55:23 PM »

KS I really think it is spooky. Can it be possible that there are 2 such similar units across the world from each other.?????????? I have (yet again) the excact same issue as you do.

What is wrong with these people. DON'T THEY CARE??!  :rant; 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

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KICKSTART
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« Reply #12 on: March 25, 2011, 04:45:19 AM »

There was no yelling across the floor at our unit , just 4 people chatting about life , food and things we have done !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
ODAT
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« Reply #13 on: March 25, 2011, 07:58:50 AM »

Don't let that stop you (I'm sure it won't). Next time the staff starts getting loud, you all should say "shhhhh!"

There shouldn't be any "rules" like this where people have to be for so very long. Ridiculous.  :cuddle;
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lmunchkin
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« Reply #14 on: March 25, 2011, 10:49:07 AM »

Whats wrong with a little entertainment at work. As long as people respect one another! This is not work for people who need D, it is part of what they do to keep going! I personally dont want to work if I can not love what I do or have fun doing it! I do understand that things can & will be overdone in excess, but it can be maintained to more moderation.
I think more clinics are easing up on things, cause they realize that these patients are not at work, this is part of their daily lives. The in center he went to was more "running behind" all the time due to this & that, but they had fun and were quite professional in doing so!
Just my take on things! :twocents;
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12/2004 to 6/2009 Home PD
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7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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« Reply #15 on: March 25, 2011, 11:09:47 AM »

The thing is we wont get a choice , they will put us all so far away from each other we would have to shout out loud across the room. They have done this before and usually pair me up with the most cantankerous old man on the unit (no im not being unkind!) I once asked him if he minded the lights going down in the corner we were in because of it hurting my eyes. No he said i WANT the lights on , i want to read, so the lights have to be left on ...10 mins later he was fast asleep snoring his head off ! So the staff dimmed the lights for me , when he woke up he went mad saying why where the lights down . Oh well headphones and a dvd for me on saturday !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
lmunchkin
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« Reply #16 on: March 25, 2011, 12:27:00 PM »

Yea I understand there are different people with different view and all! But sometimes, KS, we just have to be the Bigger person here and let it ride! You know what I mean? Is it right? Probably not, but It is what I would do and have done in many situations that come along! I may not have wanted to, but I did! And just dropped it!
Who knows, maybe some where down the road, that individual may thank you for his ugliness towards you & thank you for putting up with his behavior, and he just might become your best friend.  You never know what your kindness may bring you!!!!
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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« Reply #17 on: March 25, 2011, 12:33:11 PM »

Ack, Kickie!  They're grumpy folk at your unit.  Maybe you could devise some sort of sign language/hand gestures to keep yourselves amused.  When they know you're gabbing about them non-verbally they'll put you all back together because they'll hate not knowing what's amsuing you so much.

 ;D
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« Reply #18 on: March 25, 2011, 04:17:39 PM »

Poppy believe me we use plenty of sign language ! :rofl;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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« Reply #19 on: March 25, 2011, 04:24:31 PM »

Aww.... what a buzz kill. Next time they say that, you all should start talking even LOUDER tp freak them out! lol
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lmunchkin
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"There Is No Place Like Home!"

« Reply #20 on: March 25, 2011, 05:40:54 PM »

Good Lord, Im so glad we are doing Nxstage at home. I so do not like going to Centers with him. Yes, they are there if you need them and I agree, they serve a purpose!  But I do not MISS the Center experiences that hubby had with them.
I really wish everyone could D at home whether it be PD or Hemo.  I strongly recommend this Nxstage (if eligible) to you hemo patients. And yes if you want it bad enough, it can be done by the patient, but it will be much more difficult, and you would not be allowed to do it yourself if Nxstage felt like you couldnt do it.
Well I think Im on the wrong thread for NxStage, but I got to tell you this little Machine is a sweet little puppy, I tell you what! KS, if you werent transplant eligible, I would beg you to at least try this on your own!  You would be amazed at what it can do and if I may add, it does what you tell it to do.  Ah ha, you had not heard that about Nxstage huh?
But in your case, I would try PD first because of the transplant issue. But if you do go to see if you are eligible for a transplant, try this Nxstage. If it doesnt work out, so what, you tried and it just wasnt meant to be. By the way, why is it good for people to do hemo incenter and be eligible for a transplant, PD I understand cause it is not so hard on Kidneys, but if hemo incenter and hemo at home are all dealing with blood, where is the differents when it comes to where you do hemo? In regards to the transplant issue that is.
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
KICKSTART
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« Reply #21 on: March 26, 2011, 01:32:29 PM »

I did PD for 7 years !!!  We dont have NXstage in the UK yet.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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« Reply #22 on: March 26, 2011, 01:41:52 PM »

Kicky, are you SURE that NxStage isn't offered there yet? I could have sworn I saw a news release about it moving into your fair country!

Aleta
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« Reply #23 on: March 26, 2011, 01:44:44 PM »

Yeah one lucky guy got to try it ! But in general its not available yet !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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« Reply #24 on: March 26, 2011, 01:50:30 PM »

Quote
Yeah one lucky guy got to try it ! But in general its not available yet !

 :thumbdown; :thumbdown; :thumbdown;   >:(
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
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