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Author Topic: Pictures of Fistulas  (Read 28340 times)
DomJDavis1985
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« on: February 27, 2011, 07:07:55 PM »
can some of u who have Fistulas if u don't mind post some pics....i have been reading online for days and kinda of have an idea in my mind as to how it will look but am thinking that maybe i have the wrong idea...any models??? don't be shy
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #1 on: March 12, 2011, 03:34:49 AM »
Here ya go Dom...I think my upper arm left fistula looks worse in pics then in reality but you be the judge enjoy!!
« Last Edit: March 12, 2011, 04:02:33 AM by rsudock » Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #2 on: March 12, 2011, 04:01:17 AM »
yeah I posted pics!
« Last Edit: March 12, 2011, 04:03:25 AM by rsudock » Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
DomJDavis1985
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« Reply #3 on: March 13, 2011, 09:26:13 PM »
thank you so much...when no one had responded for weeks i felt that maybe i had asked a rude question, lol..i am still kinda new to this Kidney Disease thing so i still don't know whats the etiquette on questions to ask and not to ask...but thanks for the pictures..the fistula doesn't look bad at all..just kinda looks like a mosquito bump or bee sting...i was under the impression that they were way bigger and noticeable
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #4 on: March 13, 2011, 10:34:20 PM »
well I use the buttonhole technque. so the 2 needles go in the EXACT same place everytime. I do have many veins all over my arm though that I don't think you can see very well. I don't think it was a rude question at all...happy to help!! :)


xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
gothiclovemonkey
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« Reply #5 on: March 13, 2011, 10:37:50 PM »
my fistula is ugly lol
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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TX listed 8/1/11 inactive
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Des
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« Reply #6 on: March 14, 2011, 05:18:20 AM »
I won't call it ugly - just used. :rofl;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
gothiclovemonkey
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« Reply #7 on: March 14, 2011, 02:50:49 PM »
i had a teenage girl tell me it looked like an alien baby! lol
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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woodsman
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« Reply #8 on: March 14, 2011, 03:08:56 PM »
« Last Edit: March 14, 2011, 03:11:00 PM by woodsman » Logged
lawphi
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« Reply #9 on: March 14, 2011, 04:58:09 PM »
My husband's fistula looks like a bruise.  The scars are worse, but could be treated with Retin A.  Over a few years, the surgical scar would fade.  I would never do more than a pea size amount on my whole face.

Button holes and self sticking are the way to go.  Also, avoid getting your blood pressure too low.  We lost the fistula on his wrist to clots.

We were told that plastic surgery can be performed to remove the bumps after you transplant.  I have been told that AV Grafts are more prone to lumps and bumps.
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation.  Donated kidney in June and went back to work after ten days.
chook
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Born to be a Granma!
« Reply #10 on: March 14, 2011, 05:12:28 PM »
This is my fistula after 8 weeks of haemo.
Even though I am normally on PD, my neph insisted I have a fistula 'as a back-up' and I had one about three months before I started PD.
The first fistula was created in my lower arm and was never a real success, even after the surgeon tried widening it. When I needed to use it, it didn't have enough flow, so hence the one in my upper arm.
(My granddaughter feels and listens to 'the thrill' and I tell her it is Granma's magic - which it is. It's my lifeline.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
DomJDavis1985
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« Reply #11 on: March 14, 2011, 08:29:42 PM »
wow it is amazing how different all the different fistulas looks....i am guessing that the longer you are don dialysis and use the fistula the larger it gets????? correct me if i am wrong....right now i am using a temp chest catheter..but i am sure that in the next few months (i have been using it now for a month and a half) that i will have to get rid of that and go to a fistula...i am kind of nervous and hesitant about that because 1)that means its NEEDLE TIME....with the catheters there are no needles involved and 2) i have to get the Fistula....which i don't really care about the looks..i just really don't want it to be that noticeable...its not that i am ashamed of this disease because i am not...but i am not ready for all the questions that i am gonna get...for now unless it comes to making sure i am sticking to my diet, i try to only think about dialysis for the 4 and a half hours i am stuck to the chair..when i leave dialysis and go to work, school,and out with my friends i honestly don't want any reminders of it..its easy to cover the chest catheter up with a tshirt....not so easy to cover up the fistula...but oh well..... :rant;
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gothiclovemonkey
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« Reply #12 on: March 14, 2011, 09:36:36 PM »
there is a woman in my clinic thats been on d for 11 years with a cath... she refuses the fistula, but its not recomended
i wear tank tops, people stare, peeople make faces, i dont care, its saving my life lol
my son even drew a pic of me, complete with a funky arm LOL it was cute...
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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YLGuy
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« Reply #13 on: March 14, 2011, 10:59:56 PM »
Here is a little video of me self-cannulating my fistula.  I have buttonholes as well.

http://www.youtube.com/watch?v=g4-u04Jh3XM
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YLGuy
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« Reply #14 on: March 14, 2011, 11:02:11 PM »
BTW, not rude at all.

I have been on dialysis coming up on 2 years now.
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galvo
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« Reply #15 on: March 14, 2011, 11:24:15 PM »
YLG, that is so cool. I must have a go.
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Galvo
willowtreewren
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My two beautifull granddaughters

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« Reply #16 on: March 15, 2011, 10:22:07 AM »
Awesome video, Marc! You make it look so easy!

I have to say tht I never, ever let go of Carl's lines during hook up until they were taped down.  :bow;

If I had let loose of the arterial line like you did, we would have had a blood bath!  :rofl; :rofl;

Aleta
« Last Edit: March 15, 2011, 01:23:31 PM by willowtreewren » Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #17 on: March 15, 2011, 01:00:19 PM »
Normally the tech tapes them down immediately but she was taking the video!   :pics;  :urcrazy;  :rofl;
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #18 on: March 15, 2011, 02:29:15 PM »
Marc..... you mean you dont tape your own needles down..... gee whiz...... 

   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Jean
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« Reply #19 on: March 15, 2011, 03:56:55 PM »
I just really like to see these pictures, as I am Pre-D now. And, I dont really know what to expect. Thank you all for posting. I did see Marcs and he was gracious enough to let me feel it too. * No nasty cracks here ) His is barely noticeable. Rsudock if that avatar is your face, who in the hell would care what your arm looked like anyways. But, anyways, the more informed you are, I think, the better things will be for you.
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One day at a time, thats all I can do.
willowtreewren
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My two beautifull granddaughters

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« Reply #20 on: March 15, 2011, 04:31:38 PM »
You crack me up, Jean!  :rofl; :rofl; :rofl;

Felt up Marc, did you?

 :clap;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21 on: March 15, 2011, 04:44:57 PM »
What can I say...I'm easy.  :rofl;
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DomJDavis1985
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« Reply #22 on: March 15, 2011, 08:04:57 PM »
Quote from: gothiclovemonkey on March 14, 2011, 09:36:36 PM
there is a woman in my clinic thats been on d for 11 years with a cath... she refuses the fistula, but its not recomended
i wear tank tops, people stare, peeople make faces, i dont care, its saving my life lol
my son even drew a pic of me, complete with a funky arm LOL it was cute...

11 years with a cath? wow...was it the same cath or has she had it replaced several times??
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gothiclovemonkey
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« Reply #23 on: March 15, 2011, 08:08:49 PM »
im not sure, but probably replaced some, but idk, if i get a chance to ask her, ill let u know!
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #24 on: March 16, 2011, 06:58:18 AM »
Quote from: Jean on March 15, 2011, 03:56:55 PM
Rsudock if that avatar is your face, who in the hell would care what your arm looked like anyways.

aw Jean that was sweet! Thank you! With all the crap I have had and will deal with thank goodness one thing I have is my looks! When that goes I will totally be screwed.  :rofl;

Dom I think it is safe to say that the longer you use the fistula the more likely it is to get lumpy and bumpy. I would be interested in our other members who have been on D using a fistula a long time, posting pics of their fistulas.
At first no one ever noticed my arm...now that I use it for D many people notice it, but the only people brave enough to ask me about it are the kids I tutor.

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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