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Author Topic: Long-term care policy for post-transplant care?  (Read 4210 times)
RightSide
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« on: February 12, 2011, 01:36:12 PM »

I got my kidney transplant on January 26--and I've been effectively immobilized ever since.  I'm a bachelor living alone in the suburbs where mass transit is lacking; and the doctors have told me I can't drive a car or lift anything heavier than 10 pounds for the immediate future.

I have contracted with a professional caregiver service, Visiting Angels, to have trained caregivers help me with heavy chores, travel to hospitals and to shopping malls, etc.

I have a Long Term Care policy with MetLife.  I was wondering if this type of policy might pay for this caregiver service, until I can resume all my normal activities.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: February 12, 2011, 09:33:36 PM »

I got my kidney transplant on January 26--and I've been effectively immobilized ever since.  I'm a bachelor living alone in the suburbs where mass transit is lacking; and the doctors have told me I can't drive a car or lift anything heavier than 10 pounds for the immediate future.

I have contracted with a professional caregiver service, Visiting Angels, to have trained caregivers help me with heavy chores, travel to hospitals and to shopping malls, etc.

I have a Long Term Care policy with MetLife.  I was wondering if this type of policy might pay for this caregiver service, until I can resume all my normal activities.

I think your county has the same health and human services program that we have in Los Angeles - they will help you get assistance while recovering from your transplant. In LA we just dial "211" and tell them what you need. I was able to find this http://www.mass211.org/ - their website says "With the support of social service organizations that provide health and human services throughout Massachusetts and in collaboration with Massachusetts Association of Information and Referral Specialists (MAIRS) the United Way introduces this statewide Information & Referral System." Here in LA my mom has gotten food delivery, rides to doctor appts., and housekeeping while recovering from lung surgery. I hope this helps.
« Last Edit: February 13, 2011, 02:27:27 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Deanne
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« Reply #2 on: March 31, 2011, 08:42:35 AM »

Did you get this worked out? Was MetLife able to help? I also have them for long-term care insurance and am considering asking about post-transplant coverage.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
KarenInWA
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« Reply #3 on: March 31, 2011, 10:41:33 AM »

Deanne, does you health insurance have any coverage for at home nursing visits?  Mine does, for up to 120 days a year.  I don't know the details, but I am hoping to take advantage of it if I can get a live-donor transplant before my union contract changes in 2013.

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Deanne
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« Reply #4 on: March 31, 2011, 10:49:41 AM »

I'm not sure about regular insurance, but I know long-term care insurance includes in-home care. I just don't know the specifics yet. I know you've also been struggling with the caregiver aspect. I have a better understanding now of the h*ll you've been going through.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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