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Author Topic: Huge Fistula (Aneyursm)  (Read 2366 times)
Steve-0
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« on: December 20, 2010, 11:45:15 AM »

Man, my fistula is HUGE.  I mean, huge.  Mine is located on my right arm - it starts in the crook of my elbow, and goes up my arm from there, you can feel it all the way into my shoulder!  Now, I don't use needles in the section in my elbow, and I haven't for the last four years.  (I've had it seven years) but that section is just HUGE.  The people in my center say it's just because I'm young, active and extremely vascular - they called it a psuedo-aneurysm.... it just looks like one because the vessel is so huge.

I'm just worried it'll become an "aneurysm".   My blood flow is perfect on my fistula - I run at 500 all the time, and my pressures are great.  What can anyone tell me about fistula aneurysms and such??


~Steve
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LoneHighway
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OTR Trucker, Off-Grid in New Mexico

« Reply #1 on: December 20, 2010, 05:39:23 PM »

You go, man! I hope mine gets like that. I want it to look like I have AA batteries in my arm, and people point and stare.  :beer1;

But seriously, bigger is better. Aneurysms come from repeatedly sticking the same close area but not actually making buttonholes. The tissue gets weaker and weaker until it balloons up.  Doesn't sound like you're doing that. And the fact you're young and active means you've got a fat healthy fistula that will last a long time.
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huldafolk
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« Reply #2 on: January 17, 2011, 07:40:29 AM »

If you actually have true pseudo aneurysms on you fistula, it looks like large bulges along an otherwise smooth large vessel.  These sites are caused by the needle insertion point being placed too close to the last one over and over. The vessel wall actually changes in it's make-up. It becomes weakened and begins to bulge because of the pressure.  You need to try to avoid puncturing the bulges and go for other areas of the fistula for treatments. The pseudo aneurysms are at risk if clotting off the fistula or actually rupturing causing a critical event.
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1980 diagnosed with ADPKD
2003 EMERG. Bi-lateral nephrectomies IVC STENT
2003-now 3x/week 4hours each hemo at clinic
2003-2004 multiple complications /ileostomy
2004 reversal of ileostomy
2010 colostomy
2003 to now ,on transplant list(on and off due to complications)
8 years on list> said to be at top of list for transplant.
2010 RCA Heart STENT
2011 Restent RCA with Drug Eluting (70% closed in 3 months)
LAD stent with drug eluting (66mm long stent)
On transplant list again!!2011/3
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #3 on: January 17, 2011, 01:12:14 PM »

I was told  that a huge fistula could be the results of high blood flow speeds.....   and High blood flow speeds create lots of problems with fistual....   seems like people who run high blood flow speeds often have or need more fistulagrams.... clotting problems.... and the fistulas just wear out faster.....

 
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #4 on: January 17, 2011, 01:51:20 PM »


But seriously, bigger is better.

here here!!   :rofl; sorry couldn't help it. dirty mind and such!

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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #5 on: January 17, 2011, 04:42:26 PM »

  good link     and more information.....

   http://www.advancedrenaleducation.com/Hemodialysis/AccessComplications/AVFStenosis/tabid/602/Default.aspx
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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