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carol1987
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« on: September 16, 2010, 07:25:20 AM » |
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So my first dialysis was put off for anpther week because I feel pretty good.
i have been realtively symptom free... just a bit tired but aransep shots have brought my Hemogloben up.
I am waiting for a call from my neph but found out that my Creatnine is now 7.1.
I know that potassium, phosporus, co2 all play a part in the decision and do not have the latest #s of those yet.
I have PKD and no other complications....
What was your creatnine when you started D?
I ,of course , am not anxious to get started but do not want to wait until I am feeling ill to start.....
opinions or questions I should be asking the doctor at this point would be helpful...
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Diagnosed with PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
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romanyscarlett
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Posts: 85
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« Reply #1 on: September 16, 2010, 07:57:55 AM » |
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Mine was 894 a week before I started dialysis. I'm in the UK and I've always had my creatine measured in hundreds so I'm not sure what it would be using the same scale as you.
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Rerun
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« Reply #2 on: September 16, 2010, 08:05:38 AM » |
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Even with dialysis people run around 9. Once you start dialysis they don't even look at creatinine anymore. So if you feel good stay off. Watch what you eat as far as potassium. NO bananas. When you start feeling bad and your doc has not called you. You call HIM/HER.
Best of luck.
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cookie2008
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« Reply #3 on: September 16, 2010, 08:45:27 AM » |
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Mine was at 8%, we stayed off as long as I could, started to feel sick to my stomach and tired all the time.
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
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FindingNeverland
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Cancer Survivor/Young Idealist
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« Reply #4 on: September 16, 2010, 09:12:46 AM » |
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Mine was 17... I was very ill and because my doctor didn't pick up on the symptoms and misdiagnosed me, we were unable to save the kidney which is why I'm on dialysis now.
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~*Laughter is the Language of the Soul*~
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carol1987
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« Reply #5 on: September 16, 2010, 09:27:27 AM » |
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Thanks for the replys.... it helps me in making my decisions. Got a call from the docs office.. I go back on 9/27 for another renal panel and see him the next day for consultation.... hanging in there! Wow findingneverkand a 17!! yikes!!!!! My little remaining kidneys are fighters.....  |
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Logged
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Diagnosed with PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
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Stoday
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« Reply #6 on: September 16, 2010, 09:27:58 AM » |
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Mine hovered around 6 for some time before I started. Then in the last month it shot up to 10. No question about my being ready for it then!
— Romneyscarlett's creatinine of 894 μmol/l is 10.4 mg/dl
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
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RightSide
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« Reply #7 on: September 16, 2010, 09:45:20 AM » |
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I started HD when my creatinine wasn't too bad: 5.5
But I decided to start HD anyway, because I was feeling so rotten: Terrible itching, terrible bone pains, unable to think straight.
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Restorer
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« Reply #8 on: September 16, 2010, 01:16:24 PM » |
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My creatinine was around 10 when I had my first PD catheter placed. Less than a month later I hadn't started yet and I was very sick and hospitalized, and my creatinine was around 13.
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- Matt - wasabiflux.org- Dialysis Calculators| 3/2007 | Kidney failure diagnosed | | 5/2010 | In-center hemodialysis | | 8/2008 | Peritoneal catheter placed | | 1/2012 | Upper arm fistula created | | 9/2008 | Peritoneal catheter replaced | | 3/2012 | Started using fistula | | 9/2008 | Began CAPD | | 4/2012 | Buttonholes created | | 3/2009 | Switched to CCPD w/ Newton IQ cycler | | 4/2012 | HD catheter removed | | 7/2009 | Switched to Liberty cycler | | 4/2018 | Transplanted at UCLA! |
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Phil
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What doesnt kill you, makes you stronger
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« Reply #9 on: September 18, 2010, 01:55:32 AM » |
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I had my fistula surgery when my creatinine was at about 8.....then in 1 month it shot up to 12....so I started HD immediately. I didn't really have any noticeable symptoms until my creatinine reached about 6....after that I just felt worse and worse...itching, unable to sleep, nausea, no apetite...etc etc.
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1993 - Diagnosed with Alport Sindrome
April 2010 - Fistula surgery on right forearm
May 2010 - Started HD
Still waiting for the call!!!!!
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