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Author Topic: My first week of hemodialysis  (Read 8023 times)
Stoday
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« on: August 02, 2010, 03:57:30 PM »
I had no trouble at all with my fistula operation. Good luck doesn’t last though and now Fate is getting its own back.

First session lasted 0 mins. Yeah, the tech infiltrated me with the first stick. ‘Better let it rest for a couple of days, see ya Monday’. On Monday successfully got 2 hours with a single needle. Same again on Wednesday. Now I feel GREAT!!! On top of the world, better than I’ve felt for months.

So on Friday they try two needles. After ˝ hour I get a swelling in the vein above the venous needle. I’m not sure what happened, but I think the vein got dilated. Anyway, they stopped the dialysis, so I only got ˝ hour that day. I have to wait 4 days before the next session, which is Tuesday afternoon.

My forearm now looks as though it’s been run over by a steam roller...
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
cariad
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« Reply #1 on: August 02, 2010, 04:47:24 PM »
Flipping heck, Stoday!  :(

Hope Fortune favours you once again soon.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Dianejt
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« Reply #2 on: August 02, 2010, 05:39:17 PM »

 Hope things get running smoothly real soon so you will feel well again.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
monrein
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« Reply #3 on: August 02, 2010, 05:43:02 PM »
Hope things go better once your fistula toughens up a bit.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
chook
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« Reply #4 on: August 02, 2010, 05:56:55 PM »
 :o That arm sure looks sore! Hope things imrpove next week.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
galvo
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« Reply #5 on: August 02, 2010, 09:28:05 PM »
Ugliest photo I've seen in some time.
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Galvo
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« Reply #6 on: August 02, 2010, 09:41:25 PM »
Well, they say that the first few months of dialysis are the hardest, and I guess you've proved that to be true.  Geez, that looks gruesome.  Does it hurt?  It sure hurts looking at it! :'(
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
natnnnat
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« Reply #7 on: August 03, 2010, 12:16:07 AM »
owwwwwwwww   :(
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Jean
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« Reply #8 on: August 03, 2010, 01:05:25 AM »
Ouch,Ouch,Ouch. Does it hurt? Ihope next week is better for you.
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One day at a time, thats all I can do.
Des
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« Reply #9 on: August 03, 2010, 02:05:09 AM »
Glad you feel better.

OUCH ! this looks SO familiar.!!!!!!!!!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
paul.karen
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« Reply #10 on: August 03, 2010, 04:47:35 AM »
Well im glad to hear you felt better then you have in a LONG time for a few days at least.
Hopefully they will get everything sorted out and you can be (on top of the world) for the rest of your time on dialysis until a transplant comes along.

I hope the arm doesnt hurt to bad....
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
billybags
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« Reply #11 on: August 03, 2010, 06:14:25 AM »
Stoday that looks awful. You poor thing.
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gothiclovemonkey
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« Reply #12 on: August 03, 2010, 07:23:36 AM »
Infultrations are TERRIBLE! I am so sorry and hope gets better for u. :cuddle;
I looked like barney for the first 2 years of HD, ended up switching clinics before the infultrations ceased. Davita... I dont advise anyone going to a Davita clinic, heard nothing but bad about them, and my own experience was... not so good to say the very least.
Also, some clinics allow u to learn to poke urself so that may be an option, also heard of a button hole, but i dont know enough about that to even tell u exactly how it works.
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
sullidog
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« Reply #13 on: August 03, 2010, 08:24:10 PM »
How did they do dialysis with a single needle? Do you also have a catheter?
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Stoday
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« Reply #14 on: August 04, 2010, 07:45:49 AM »
Thanks for all your kind words. They are much appreciated.

As for my arm — it only aches a little bit.

The single needle method uses the one needle to take blood into the machine and pump it back out again, so less efficient than two needles.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
romanyscarlett
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« Reply #15 on: August 04, 2010, 09:14:12 AM »
This exact same thing happened to me on my first session. Both attempts at needling me ended in infiltration and the bruise was pretty spectacular!

I've been having single needle dialysis for weeks and weeks now and finally on Friday they managed to get 2 needles in. Sadly the second needle wasn't successful on Monday but I'm confident that tonight it will work again. Just keep on doing your fistula exercises and stay positive. You'll get there in the end :)
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RichardMEL
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« Reply #16 on: August 05, 2010, 09:31:46 PM »
yikes! Even when my fistula infultrated it didn't look half as bad as that. crap!

hoping things improve for you and they can get you a proper dialysis treatment without issues!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Stoday
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« Reply #17 on: August 06, 2010, 05:13:07 PM »
I dialysed with two needles for the first time today and everything went OK. Seems I'm getting into the swing of things.

I still haven't started to hate dialysis; rather look forward to it because it means I no longer feel so bloody ill.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
sullidog
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« Reply #18 on: August 06, 2010, 06:07:12 PM »
Oh cool I didn't know you could single needle dialysis.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
wrenchturningredneck10
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« Reply #19 on: August 07, 2010, 11:51:34 PM »
i never knew about single needle dialysis either!   hope things improve for you!  I know when I first started last spring, they infiltrated me not long after the fistula was ready...don't care to ever do that again!

praying it gets better! :bestwishes;
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Des
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« Reply #20 on: August 10, 2010, 01:36:04 AM »
I had a few one needle dialysis sessions .... the tech called it "click-clack". It pulls first and the pushes back threw the same needle. The treatment is not that great but it is better than nothing. 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Sax-O-Trix
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« Reply #21 on: August 11, 2010, 06:27:41 PM »
Holy Cow!!!  I hope things are going better for you.  Your pic is rather frightening, I have never seen anything like it!  I really hope your arm doesn't hurt as bad as it looks...
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Preemptive transplant recipient, living donor (brother)- March 2011
Blake nighsonger
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« Reply #22 on: January 23, 2016, 07:51:14 PM »
son of a BITCH OWWWWWWWWWW
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Michael Murphy
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« Reply #23 on: January 24, 2016, 03:28:22 AM »
When I started I was infiltrated a lot now never, I finally asked the nurse why I have not and she said as time went by your fistula grows bigger and now it's big enough I could stick you from accros the room. Since the beginning of dialysis I have been afraid to move my arm much it turns out now I can move it if I am careful. This is a problem that will be solved over time as your fistula gets larger and safer,
« Last Edit: January 27, 2016, 03:50:27 AM by Michael Murphy » Logged
Noeyjerd
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« Reply #24 on: January 26, 2016, 10:24:20 AM »
That looks bad. I'm sorry. Hope it runs smoothly soon.
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