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Author Topic: You Know you have hit rock bottom when it cant get any worse -- and does.  (Read 2820 times)
Bub
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« on: July 28, 2010, 08:39:18 AM »
What more can I possibly have to deal with?  I was working on getting my medicare for a year with no luck.  This is the medicare that federal law guarantees us.  I finally contacted my congressman and just a few days later received my card in the mail.  Less than a month later I get a notice that my part B that pays for dialysis was cancelled and I could not reapply until January. 

That is a death sentence for me.

I contacted my congressman again and he had no luck.  I found a number for Center for Disability Law in my home town (non profit) and have called them.  Waiting!
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del
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del and willowtreewren meet
« Reply #1 on: July 28, 2010, 01:02:03 PM »
No problems like that for us (thank God) - dialysis is available to everybody through MCP.
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Don't take your organs to heaven.  Heaven knows we need them here.
lola
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I can fly!!!
« Reply #2 on: July 28, 2010, 01:23:43 PM »
Otto just got his and I had 2 :boxing; to get it thanks to our Davita social worker. We ended up cancelling part A in order to get part B, since part A never had paid anything that's the only reason we got to do this. Our new Social worker (not Davita thank god) also did all the paper worker for AKF to pay for it. Keep fighting it can be done trust me
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www.caringbridge.org/visit/ottomachado
KICKSTART
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In da House.
« Reply #3 on: July 28, 2010, 02:53:16 PM »
I cant believe what you guys have to go through ! I hope it works out for you .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
natnnnat
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« Reply #4 on: July 28, 2010, 05:27:12 PM »
I can't believe it either and I worry about it.   What happens to the people without insurance or medicare?  Fret.
Hope you have the tenacity to get some arrangement happening like the one suggested by Lola, or via this Center for Disability Law... 
 :boxing; :boxing; :boxing; :boxing; :boxing; :boxing;
Just what you need hey, another fight on your hands...
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
sullidog
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« Reply #5 on: July 28, 2010, 06:40:19 PM »
Sounds like it's time for an atorney.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
cookie2008
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« Reply #6 on: July 28, 2010, 08:20:30 PM »
Hi Bub,  What was the reason they cancelled your medicare part B.
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Poppylicious
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« Reply #7 on: July 29, 2010, 07:04:53 AM »
I can't believe what you have to go through either.  The NHS might not be perfect but I'm so grateful we don't have to jump over hoops and fight for the treatment we deserve.

I really hope you get it sorted Bub, without too much of a fight.  Tsk.

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
RightSide
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« Reply #8 on: July 29, 2010, 07:06:03 AM »
That's really terrible.

This past week, Obama unveiled the new health reform website, healthreform.gov

http://healthreform.gov/

Maybe there's some contact there that can help you.

Is a social worker working with you on this?
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