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Author Topic: Dialysis: Will it Cure Me? Can I Still Have a Good Life?  (Read 2677 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: July 23, 2010, 08:34:51 AM »
Will Dialysis Cure Me? Will It Make Me Feel Better?
Video: http://www.youtube.com/watch?v=VfKPTpA24ds&feature=related

How Will My Life Change? Can I Still Have a Good Life?
Video: http://www.youtube.com/watch?v=Q5apzY1DDy8
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #1 on: July 23, 2010, 08:48:43 AM »
Most of those people are at home dialysis.  Ask someone incenter.   :rofl;

Kickstart? 
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cookie2008
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« Reply #2 on: July 23, 2010, 10:18:53 AM »
Each patient is different some can work some cannot, you make the best of it as possible as you can.  Its just not dialysis there is other ailments that can happen.
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Riki
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« Reply #3 on: July 23, 2010, 05:26:36 PM »
I've watched a few of those types of videos before, and a lot of them focus on people who are so much older than me.  The people they usually talk to are grandparents.  If I was looking for this kind of information when I first got sick, at 12 years old, I wouldn't think any of it applied to me, because there really is no young person's perspective
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
RichardMEL
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« Reply #4 on: July 24, 2010, 06:34:14 AM »
Quote from: Riki on July 23, 2010, 05:26:36 PM
I've watched a few of those types of videos before, and a lot of them focus on people who are so much older than me.  The people they usually talk to are grandparents.  If I was looking for this kind of information when I first got sick, at 12 years old, I wouldn't think any of it applied to me, because there really is no young person's perspective

Time for you to get on youtube then, young lady!!!!  >:D >:D >:D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Riki
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« Reply #5 on: July 24, 2010, 10:13:43 AM »
Quote from: RichardMEL on July 24, 2010, 06:34:14 AM
Quote from: Riki on July 23, 2010, 05:26:36 PM
I've watched a few of those types of videos before, and a lot of them focus on people who are so much older than me.  The people they usually talk to are grandparents.  If I was looking for this kind of information when I first got sick, at 12 years old, I wouldn't think any of it applied to me, because there really is no young person's perspective

Time for you to get on youtube then, young lady!!!!  >:D >:D >:D

Me?  Nooooo.  I don't know if you've looked at my pictures on facebook, but I"m not exactly photogenic.. *LOL*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
RichardMEL
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« Reply #6 on: July 24, 2010, 09:44:27 PM »
Seen your pictures. lovely young lady. Do I have to fly over there and set up the camera myself?  >:D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Riki
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« Reply #7 on: July 25, 2010, 06:07:53 PM »
yep. you do.......
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
RichardMEL
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« Reply #8 on: July 25, 2010, 07:56:54 PM »
hey the combination of a unit with heated blankets and gettin you on video is soo worth it.

Now to phone my mate who works for Air Canada ticketing in Sydney......  >:D >:D >:D >:D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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