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Author Topic: It's possible that I might be able to go off of dialysis!  (Read 3605 times)
Adam_W
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Me with Baron von Fresenius
« on: June 23, 2010, 02:26:58 PM »
Over the last month or so, I have been gradually having more urine output, and about two weeks ago I actually had NORMAL urine output, which I still have. Also over the last month I have missed A LOT of dialysis because I've been gone a lot visiting my grandmother in the hospital. My prescription is six days/week, but I've only been getting two to three tx/week. One would thing I would be under dialyzed, but my labs are still good, and I feel stronger than I've felt in years. My centre had me do a 24hr urine test, and when we get the results, my doctor will determine if I can reduce or go off of dialysis for a while. I should find out in a few days. I'll let you all know what I find out.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
cariad
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« Reply #1 on: June 23, 2010, 02:42:59 PM »
Oh, Adam, what marvelous news! :cheer: My highest hopes that this works out for you. :beer1;


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KICKSTART
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In da House.
« Reply #2 on: June 23, 2010, 03:21:42 PM »
I love all these good news stories ..but im soooooo jealous !  :2thumbsup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
natnnnat
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« Reply #3 on: June 23, 2010, 05:55:17 PM »
Wow Adam.  Good on your kidneys!
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
jbeany
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« Reply #4 on: June 23, 2010, 07:18:06 PM »
That would be awesome!   :cheer:
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Bajanne
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« Reply #5 on: June 23, 2010, 08:56:28 PM »
 :yahoo; :yahoo;
Great news!  I hope it all works out for you!
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Jean
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« Reply #6 on: June 23, 2010, 11:51:36 PM »
That is such wonderful news. Please do let us know.   :bandance;
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Mimi
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« Reply #7 on: June 24, 2010, 12:05:28 AM »
Adam that would be great.  Good Luck.


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kristina
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« Reply #8 on: July 04, 2010, 09:23:59 AM »
I was very interested to read that you say your kidneys might have recovered
to the point when Dialysis can be reduced or even stopped.

Many years ago I was told that Dialysis makes the kidneys lazy
& therefore the kidneys would not re-gain enough strengths to function unassisted again.

I would be interested to know from you if modern treatments are available which
enable the kidneys on Dialysis to function again without Dialysis?

I have only ever been under the impression that if the kidneys are going to recover,
recovery would only be possible before Dialysis and not after.

Perhaps modern treatment now makes it possible?

Kind regards and good luck from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #9 on: July 04, 2010, 10:05:55 AM »
   Adam that would be great and I hope you are able to put dialysis behind you, even if for only a little while.   :bestwishes;
   Let us know, and if it doesn't work out we're still heree for you. 
« Last Edit: July 04, 2010, 10:06:57 AM by fc2821 » Logged
In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
Adam_W
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Me with Baron von Fresenius
« Reply #10 on: July 06, 2010, 05:41:30 PM »
I got my latest blood results today, and I'm down to three days a week instead of six. My KT/V was 2.5 which is better than it was when I was on six day/week. Next time I see my doctor in person, she will go over everything and we will see if I can stop dialysis. I have actually heard of this happening before, but it's so rare, we are all absolutely surprised and delighted. I'll keep updating as I find things out.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
RichardMEL
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« Reply #11 on: July 06, 2010, 08:43:26 PM »
Wow Adam that's fantastic for you - even if you've cut your D by half that's a massive improvement for you - have you seen other effects of improving function(hopefully!) like more energy, peeing more, etc?

Hoping you can get off D and have a less restricted diet, more energy etc - that would be THE LIFE!!!

Keep us in the loop!!  :yahoo; :yahoo; :yahoo; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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