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Author Topic: Activity level on dialysis...?  (Read 11988 times)
Matt58044
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« on: June 20, 2010, 09:26:07 PM »

I have a good 6 month old fistula.  With it, I have been golfing, swimming, exercising, even lifting some lighter weights. 

I may start dialysis as soon as this week.  I want to be able to keep golfing, swimming, exercising, and lifting those light weights.  I also have plans to go to a water park and an amusement park at some point this summer.

Is there any reason to think I won't be able to continue to do those things once I'm on dialysis?  (Given, of course, that my energy level allows)

I've always thought of dialysis as a more intense IV treatment in that you go in, get needles in, wait, get needles out, and go home.  Other than bandages for a bit after dialysis, is there anything that limits you physically?

Thanks in advance.
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RichardMEL
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« Reply #1 on: June 20, 2010, 09:39:15 PM »

G'day Matt!

Look there's no reason to think you can't keep doing the things you want to do (they maybe iffy on the weights hough... at least with your fistula arm).

About the water park no issue there unless you have a chest catheter put in for some reason(fistula not working or similar) but that seems unlikely. I've been swimming with my fistula and it is not an issue.

Dialysis affects people differently. Some days I find it quite draining and need to sleep after, but the day after I am normally fine. Others are affected differently - so you may find as you adjust to it that your energy levels chop and change.

I think the key is not to push anything. If you feel OK to do whatever it is you want to do then go for it.. but if you don't you need to accept your limitations and not push things just so you can say you went to the gym or went golfing or whatever.

But I think you should be able to keep up with everything - if you can do it now this close to dialysis there's no reason to see why you can't keep it up once you start. Well that's my view anyway.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Des
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« Reply #2 on: June 20, 2010, 11:43:00 PM »

Matt,

If you can do all those things before dialysis.... JUST IMAGINE WHAT YOU CAN DO AFTER DIALYSIS. I was too tired to do anything before dialysis but once it started my energy levels returned.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
MooseMom
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« Reply #3 on: June 20, 2010, 11:56:25 PM »

The whole point of dialysis is to allow you to do these things.  I think anyone will tell you that the more active you are, the healthier you body AND your mind will be.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RichardMEL
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« Reply #4 on: June 20, 2010, 11:59:51 PM »

The whole point of dialysis is to allow you to do these things.  I think anyone will tell you that the more active you are, the healthier you body AND your mind will be.

good point MM! Not only is it exercise which is obviously good for your heart and body, but also the emotional benefits can't be dismissed of doing positive things like exercising, getting out there and playing games and doing stuff you LIKE... that definitely is a good thing.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Zach
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« Reply #5 on: June 21, 2010, 05:37:21 AM »

Go for it!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
del
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del and willowtreewren meet

« Reply #6 on: June 21, 2010, 05:52:21 AM »

The doctor once told hubby that if dialysis was working as it should be he should be able to do whatever he wanted to do. He has used a chain saw to cut firewood, shoveled dirt,build a shed, build a boat and done all of the other things he did before he started dialysis!! 
Go for it!! :beer1;
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Don't take your organs to heaven.  Heaven knows we need them here.
lola
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I can fly!!!

« Reply #7 on: June 21, 2010, 08:17:44 AM »

I think it all depends on how you feel, my husband still rides dirtbikes.
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Matt58044
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« Reply #8 on: June 21, 2010, 12:22:40 PM »

Thanks for the responses guys.

I guess I wasn't quite clear on what I meant, so let me try and re-word it.

With the fistula being in active use, does it limit what I can do with my arm anymore? I understand my energy and the like should improve.

You guys are so encouraging, though.  :2thumbsup;
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MooseMom
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« Reply #9 on: June 21, 2010, 12:37:32 PM »

Oh, that I don't know about seeing as my fistula isn't in active use, either.  I can't see how swimming would hurt it.  Don't know about golf.  I've never heard of any restrictions except regarding bp readings and blood draws; for those things, use of the fistula arm are taboo.  Maybe it depends upon where it is?  I'm eager to hear more informed responses to this question.  Sorry for the confusion!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RightSide
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« Reply #10 on: June 21, 2010, 05:14:05 PM »

I have a good 6 month old fistula.  With it, I have been golfing, swimming, exercising, even lifting some lighter weights. 

I may start dialysis as soon as this week.  I want to be able to keep golfing, swimming, exercising, and lifting those light weights.  I also have plans to go to a water park and an amusement park at some point this summer.

Is there any reason to think I won't be able to continue to do those things once I'm on dialysis?  (Given, of course, that my energy level allows)

I've always thought of dialysis as a more intense IV treatment in that you go in, get needles in, wait, get needles out, and go home.  Other than bandages for a bit after dialysis, is there anything that limits you physically?

Thanks in advance.
Some patients (not I) have trouble tolerating dialysis--they report being dizzy or fatigued after each treatment.  If so, then you may have to take things easier.

Also, I was told never to lift anything heavier than 10 pounds with the arm in which my AV fistula access was placed.  That means no weight lifting on that arm.

Other than that, you should be able to do pretty much whatever you want to do.
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RichardMEL
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« Reply #11 on: June 21, 2010, 05:45:20 PM »

With the fistula being in active use, does it limit what I can do with my arm anymore? I understand my energy and the like should improve.

The only real limits I think you need to be concerned about are anything that involves weight on your fistula arm - as that's a no-no. I know you mention you lift light weights - I think you definitely need to talk to your team about that one. I mean my unit actually says to avoid heavy clothing on the fistula arm (!) which I think is a little ultra conservative. In terms of doing things like riding a bike or swimming and stuff like that using your arm I see no limit there.

Still it would be a good idea to discuss the sorts of activities you're planning to do and any concerns with your team.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
natnnnat
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WWW
« Reply #12 on: June 21, 2010, 09:09:11 PM »

My fellah used to play a lot of golf on dialysis and had no trouble with his fistula which is/was located in the forearm of his left hand.  He was a left handed player.  Hope this helps?   He played enough golf to win some amateur competitions.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
wrenchturningredneck10
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« Reply #13 on: June 21, 2010, 09:52:15 PM »

I have found my only restriction on my activity level is my energy level!  I've only been doing it just over a year now, so  I can't speak as well about the long-term aspect, but so far I've been keeping up with everything I want to do!
I'm also in college right now, graduating this fall.....so far I've kept up a full-time courseload.
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alohacandy
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« Reply #14 on: June 22, 2010, 04:26:25 AM »

2 of our incenter HD patients golf regularly together and asked me to help them start a golf league for patients, family, staff to play one Sunday a month.  On the first day, I had one staff member, one transplant patient, and 6 HD patients signed up so we got off to a good start with interest.  I have others asking about a bowling league which I would think they would need to bowl with their non access arm (told them to check with their surgeon).  Exercise at any level is good for your overall quality of life.  You will feel better emotionally, have more energy, sleep better....just don't overdo it and build up gradually....but most of all....GO FOR IT!   :cheer: :yahoo;
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del
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del and willowtreewren meet

« Reply #15 on: June 22, 2010, 05:26:05 AM »

You just have to be careful of the weight you lift with your fistula arm. be really careful not to lift anything where the weight lies right on the fistula - like sitting a child on your arm or carrying a heavy bag on that arm.  Don't let anything restrict the flow of blood in the fistula.  Hubby was told not to wear his watch on the fistula arm and to try not to sleep on it.  Hubby has wheeled wheel barrows full of cement lots of times since starting dialysis and has used a chain saw to cut wood!!  Just be careful not to restrict the blood flow or to cut that arm!!
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Zach
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"Still crazy after all these years."

« Reply #16 on: June 22, 2010, 01:43:01 PM »

My first Nephologist told me to "take up chess."  I went for a second opinion, and the nephrologist said anything I did before dialysis, I could do after I started dialysis.

You should read some of these IHD threads:

Top 7 Fitness Exercise Tips for Kidney Patients
http://ihatedialysis.com/forum/index.php?topic=18814.msg322235#msg322235

Want to join me in exercise?
http://ihatedialysis.com/forum/index.php?topic=3027.msg326334#msg326334

EXERCISE
http://ihatedialysis.com/forum/index.php?topic=415.msg326693#msg326693

I, for one, lift weights 3 x week for about 90 minutes each session.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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