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Author Topic: fistula  (Read 11409 times)
kitkatz
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« Reply #25 on: December 12, 2006, 10:08:26 PM »
Hey you! You are not SUPPOSED to die on us!   I am glad you are okay!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
anja
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« Reply #26 on: December 12, 2006, 10:23:20 PM »
Hey, Johnr, what the heck??????  Didn't expect things to take that turn, did you?   We have been wondering about you and wishing the best, you had to come back for Maiah's sake!  Take care and get well quickly.
« Last Edit: December 13, 2006, 09:43:31 PM by anja » Logged
angela515
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« Reply #27 on: December 13, 2006, 09:03:27 AM »
Wow, welcome back, we've missed you!  :grouphug;
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« Reply #28 on: December 13, 2006, 06:22:05 PM »
Welcome back!  We are all at the edge of our seats waiting to hear your story!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



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Joe Paul
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« Reply #29 on: December 16, 2006, 03:02:29 AM »
Wow John welcome back, glad you made the return and hope everything is ok.
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boxman55
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« Reply #30 on: December 16, 2006, 07:49:08 AM »
I had a fistula done in sept and it never took so I am still using a cath
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gizmar
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« Reply #31 on: December 16, 2006, 06:20:28 PM »
John, that's horrifying - are you okay?  Have you had previous surgeries?  Did you react this way?
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Sluff
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« Reply #32 on: December 17, 2006, 12:24:22 AM »
Hey John

What an experience, I hope you don't have any residual problems from that experience. Please keep us in the loop on your improvements.

- Sluff
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Lucinda
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« Reply #33 on: December 17, 2006, 01:16:22 AM »
Hi Jonn - how are you???? We are all worried about you!!  Can you please post and just let us know you are OK.  I am going to send a PM and see if I can get a response.  Everyone asks about you in the Chat Room.  You had a really bad experience and every one is here to listen....just let us know.  Cheers, Lucinda.
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Amanda From OZ
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« Reply #34 on: December 17, 2006, 04:16:20 PM »
i'm glad you are back.  Hope Everything is okay  :cuddle;
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goofynina
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« Reply #35 on: December 18, 2006, 02:06:39 PM »
John, i've been away for a few days and i come back to THIS??  Don't you ever do that again ;)  I am so glad you are ok.  Remember, we are here for you ALWAYS!! :grouphug;
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Epoman
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« Reply #36 on: December 18, 2006, 09:18:42 PM »
Quote from: goofynina on December 18, 2006, 02:06:39 PM
John, i've been away for a few days and i come back to THIS??  Don't you ever do that again ;)  I am so glad you are ok.  Remember, we are here for you ALWAYS!! :grouphug;

He hasn't come back yet, he's been gone for days again. I wonder if he is ok. Send him a email goofnina to check up on him.
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- Epoman
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Lucinda
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« Reply #37 on: December 18, 2006, 10:06:44 PM »
I sent him an email a couple of days ago but he didn't respond. 
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goofynina
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« Reply #38 on: December 18, 2006, 10:54:09 PM »
Quote from: Epoman on December 18, 2006, 09:18:42 PM
Quote from: goofynina on December 18, 2006, 02:06:39 PM
John, i've been away for a few days and i come back to THIS??  Don't you ever do that again ;)  I am so glad you are ok.  Remember, we are here for you ALWAYS!! :grouphug;

He hasn't come back yet, he's been gone for days again. I wonder if he is ok. Send him a email goofnina to check up on him.

Email sent on 12/18, waiting for reply  :popcorn;
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jonn r
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« Reply #39 on: December 20, 2006, 02:40:51 PM »
here i am...just not doing great....kind of tired....i will check in on thursday....hope all is well
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Sluff
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« Reply #40 on: December 20, 2006, 02:49:31 PM »
Quote from: jonn r on December 20, 2006, 02:40:51 PM
here i am...just not doing great....kind of tired....i will check in on thursday....hope all is well



GREAT TO HEAR FROM YOU!!! Glad your doing fine. :clap;
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anja
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« Reply #41 on: December 20, 2006, 10:26:33 PM »
Hey, johnr, glad to hear from you !  Sorry you are so tired, but happy you are okay. 
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nextnoel
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« Reply #42 on: December 21, 2006, 07:55:43 AM »
Johnr, I'm so glad to hear from you!  When you're feeling better, touch base with us again, and in the meantime, I'll be thinking good thoughts your way!   :grouphug;
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Black
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« Reply #43 on: December 21, 2006, 10:02:05 AM »
Thanks so much for checking in -- we've been so worried about you.  Get some rest and please check in again when you're feeling better.  :cuddle;
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
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« Reply #44 on: December 21, 2006, 02:23:58 PM »
Quote from: jonn r on December 20, 2006, 02:40:51 PM
here i am...just not doing great....kind of tired....i will check in on thursday....hope all is well

Thank you for taking the time to check in bud, I khow hard it is to, when you feel like crap. I personally am back in A-Fib and it makes it ill, emotionally and physically. But I wanted to take a moment to wish you well and to thank you for keeping us updated.

- Epoman
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- Epoman
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Ohio Buckeye
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« Reply #45 on: December 21, 2006, 06:38:09 PM »
Good to hear from you.
Hope you are feeling better.
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DeLana
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« Reply #46 on: December 22, 2006, 12:36:25 PM »
Hope you're feeling better!  I'm keeping you in my thoughts.

DeLana   :grouphug;
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jonn r
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« Reply #47 on: December 26, 2006, 09:26:56 AM »
so i am going back to dartmoth on january 8 to see the dr,s who saved my life..they want to do the fistula again but i am kind of scared ...but in the same respect i HATE the tube sticking out of my neck....i feel like such an outcast...like a freak..i know people are not looking at me and cant even see it but it just makes me nuts knowing its there...plus i want to take a shower...you know the kind that the water runs down your head and ALL over your body....they asked me if i wanted to do home dyalisis i said i dont think so...even though i drive over an hour to the place and i have to be there at 6 am i dont think i want to do it at home...more to come....hope all is well with everone

jonn :clap; :clap; :clap; :clap;
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Sluff
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« Reply #48 on: December 26, 2006, 10:45:36 AM »
We are here for you John.
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okarol
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« Reply #49 on: December 26, 2006, 11:02:33 AM »
Hi John,
Jenna had her tunnel catheter for about 10 months, it was tough without showers because she had to wash her hair in the sink,
and she has tons of hair. Then I started taking her to a salon, which was a pain cuz she doesn't like them spending all the time
fussing over her, but it worked out. Her original fistula surgery had to be redone - the first doctor botched it and wanted to abandon
the artery. Luckily we were able to find another vascular surgeon who saved the vein and artery and got the fistula to work. It took
about 5 months to mature but has worked great since then.
I am so glad to hear from you, I was so worried. Take care and let us know how you're doing please!
~Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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