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Author Topic: Headaches  (Read 1977 times)
Lillupie
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« on: March 24, 2010, 09:42:21 PM »

I have a really good friend of mine waiting for a Pancreas/kidney transplant (is not online) has a severe headache. I personally take Advil or Excedrin. (I know we are not suspose to).

I was wondering do anyone here knows what as kidney patients we are legally able to take and be ok?

Lisa
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Lisa
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« Reply #1 on: March 25, 2010, 11:30:08 AM »

I was told only Tylenol or something prescribed by a doctor and then, make sure your neph ok's the meds.. Also if she is dialysing, make sure it is a drug that doesn't get filtered out during treatments.
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
monrein
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« Reply #2 on: March 25, 2010, 11:46:39 AM »

Tylenol is all I've been told is OK.  If your friend doesn't have a history of migraines and the pain is very severe, she should perhaps call her doctor to rule out anything more serious. If it's a post-dialysis headache...I used to have to just go to bed with tylenol and the next day was usually better.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
sullidog
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« Reply #3 on: March 25, 2010, 05:27:00 PM »

Tylenol is the only ting I'm aloud. Does this happen all the time? If it's post dialysis I am having the same issue so my neph is adjusting my sodium profile, not sure what he called it but he's running me 2 and half with hier sodium and then last hour running it normal. He says that helps with post-dialysis headaches.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
monrein
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« Reply #4 on: March 25, 2010, 05:33:15 PM »

The sodium profiling works for some but for me it was dreadful.  So thirsty afterwards I could have gone mad.  I was dialyzing 5 days a week, two and a half hours at a time but would have asked for longer sessions, if I hadn't had a transplant in the works, since longer sessions gets at the larger molecules much more effectively.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #5 on: March 25, 2010, 06:44:46 PM »

Only tylenol.  Every doctor I have seen says the same thing.
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kitkatz
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« Reply #6 on: March 25, 2010, 10:21:40 PM »

I was told by a dialysis nurse to take what works for me.  I have taken Excedrin only when the pain was so bad I knew that was the only thing that would help a little bit.
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