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Author Topic: We Lost Another One.  (Read 4796 times)
Bub
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« on: March 05, 2010, 06:59:53 AM »

We lost Dale, a great friend of mine, early this week.  I spoke with him Saturday and he seemed fine, but took a nap one afternoon and never woke up.  I try not to keep a running total in my head, but nearly 40 since i started 16 months ago.

Rest in perfect peace Dale.  We will miss your positive attitude and most of all, your sense of humor.  And may God bless and keep your wife, who after 59 years of marriage, will need all the help she can get.
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paris
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« Reply #1 on: March 05, 2010, 08:17:47 AM »

My deepest sympathy to you and Dale's family.   It is hard to see first hand what this disease does.  Keep taking care of yourself, Bub.   We need you.   :cuddle;
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MooseMom
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« Reply #2 on: March 05, 2010, 08:41:38 AM »

I'm so sorry.  The world just doesn't seem the same to you, does it.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #3 on: March 05, 2010, 10:16:31 AM »

I am so sorry about your friend.  :cuddle;

Are you saying you have lost 40 fellow patients in 16 months?  ???
In Jenna's 3 years in-center hemo I know of 6 patients from her shift who died, 2 while on the machine. And 4 others got transplants. It was approx. a 50 station center.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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« Reply #4 on: March 05, 2010, 10:19:59 AM »

Your post is a lovely tribute to your friend Bub.  It's hard to deal with all the loss involved in CKD and the hardest of all is losing people.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
billybags
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« Reply #5 on: March 05, 2010, 10:47:42 AM »

So sorry to hear that Bub, makes you think doesn't it.
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kitkatz
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« Reply #6 on: March 05, 2010, 12:52:07 PM »

It makes you realize, it is only a step away to being gone from this plain of existence.  Sympathies extended to you and your friend's family.
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Take it one day, one hour, one minute, one second at a time.

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Romona
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« Reply #7 on: March 05, 2010, 01:50:47 PM »

 :grouphug; I'm sorry for the loss of your friend.
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Bub
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« Reply #8 on: March 05, 2010, 03:05:50 PM »

My center serves roughly 200 patients at any one time.  Last calendar year we lost 36.  Statistics say that 20% of in center hemo patients die each year and half of those go by a heart attack.

Thank you for your sympathies.

It is hard to see first hand what this disease does. 

Yes Paris, tears my heart out sometimes.  I have given up feeling sorry for myself, but I feel for others as I know what they are going through.

So sorry to hear that Bub, makes you think doesn't it.

Does indeed.  We are all that close, but then we soon learn that all life is tenuous at best.  I sometimes feel that I should just be a loner at dialysis because people I get to know leave.  But thats not going to happen.  I am somewhat, gregarious, is that the correct word?
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galvo
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« Reply #9 on: March 05, 2010, 04:04:30 PM »

Sad.
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Galvo
Jean
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« Reply #10 on: March 05, 2010, 11:56:40 PM »

I know just how you feel Bub. I live in a senior mobile home park, which we jokingly call " God's Waiting Room". So far this year we have had 4 friends die. Not the same as dialysis deaths, but raises the same feeling for me. I Wanna MOVE!!!!
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One day at a time, thats all I can do.
calypso
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« Reply #11 on: March 06, 2010, 09:26:52 AM »

I am so sorry about your friend.  :cuddle;

Are you saying you have lost 40 fellow patients in 16 months?  ???
In Jenna's 3 years in-center hemo I know of 6 patients from her shift who died, 2 while on the machine. And 4 others got transplants. It was approx. a 50 station center.

On the news lately they've been talking about kidney kisease and transplantation and they mentioned that on average, 50% of patients on dialysis die by the 5th year, whereas the average wait time for a kidney is 5-7 years. I don't know if they mean in this state, or national.
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« Reply #12 on: March 06, 2010, 09:41:06 AM »

My sympathies to you and the others who are grieving Dale's passing. :grouphug;
I am hoping to outlive the statistics!  This is my 5th year on dialysis.  So far, so good!
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I LOVE  my IHD family! :grouphug;
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« Reply #13 on: March 06, 2010, 03:24:18 PM »

Deepest condolences to all the lives who Dale has touched.
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Lisa
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« Reply #14 on: March 06, 2010, 04:03:07 PM »

...sending my prayers to you and your friends family.
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
Jie
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« Reply #15 on: March 06, 2010, 04:51:18 PM »

On the news lately they've been talking about kidney kisease and transplantation and they mentioned that on average, 50% of patients on dialysis die by the 5th year, whereas the average wait time for a kidney is 5-7 years. I don't know if they mean in this state, or national.

Please don't confuse the waiting time with this 20% annual mortality rate. At the end of 5 years, only 33% of dialysis patients are still alive with a 20% annual mortality. However, this 20% rate is for all dialysis patients, and most of them are very old and would die anyway. When talking about the waiting time, we are talking about the healthy portion of dialysis patients, that is, the patients who are waiting for transplant. The annual mortality rate for the patients waiting for transplant is about 7%, and at the end of 5 years, about 70% of these patients are still alive. The mortality rate during the first year for the transplanted patients is about 5%, and if this rate holds for every year, at the end of 5 years, only about 77% of transplanted patients are still alive.
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« Reply #16 on: March 06, 2010, 05:05:53 PM »

Thank you for reminding me of how fragile my life is on here.  It is just frustrating. I  once again had to take my now ex bf to hospital number 3 in less then 3 months just because his back hurt! I am always having to explain to him that i have to go and do dialysis.

Lisa
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It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

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kellyt
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« Reply #17 on: March 06, 2010, 05:07:53 PM »

That is so sad.   :'(   I'm so sorry for the loss of your friend.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
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Bub
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« Reply #18 on: March 08, 2010, 06:56:26 AM »

Thank you all.  I am so glad I can speak about this here on IHD.  I have told my friends about it but they seem to think that I cant feel so deeply for someone that I have known for only 16 months.  But Dale and I were close because we shared the same experiences in dialysis and he was an excelent mentor to me.
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« Reply #19 on: March 08, 2010, 10:51:46 AM »

I agree, you don't have to know someone a long time if you're trudging the same road together. Some of the best friends I have made were in shared experiences that most people could not relate to, such as my alanon group, or here on IHD, where members KNOW and understand. It creates a bond beyond just being acquaintances.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #20 on: March 09, 2010, 02:45:47 AM »

So sorry for your loss Bub :grouphug;
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Ken
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« Reply #21 on: March 09, 2010, 11:24:47 AM »

You never know when you will come across someone who will touch your life.  Everyone you meet, under any circumstances, represents an opportunity for your life to follow a different path.  It does not matter for how long you have known someone; anyone can potentially give so much to you, just as you can give back.  I am so sorry for the death of your friend.  I know that you will treasure his memory and will gain such strength by all he taught you.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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