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Author Topic: I've got my lab results today  (Read 3493 times)
GoingThere
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« on: March 01, 2010, 01:41:39 AM »
Hi!

I've got my lab results today. Kidney function is worse. Creatinin is higher, it is 600 now, so 100 up in 3 months. With that speed I will be on dialsys in the summer. But I'm so calm. Is that normal? Usually I would freak out:)

GoingThere
Logged
1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
Rerun
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« Reply #1 on: March 01, 2010, 06:30:20 AM »
Your mind must be wrapping around the idea of dialysis.  Say it out loud "I'm going to be on dialysis".  If you don't bust into tears then you are doing well.

                  :yahoo;

We measure creatinine in the US different, so I don't know what your numbers mean.
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MooseMom
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« Reply #2 on: March 01, 2010, 08:10:46 AM »
No, that's not been my experience.  I've been sobbing and unconsolable for days.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
GoingThere
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« Reply #3 on: March 01, 2010, 08:44:41 AM »
@Rerun: I think that creatinin is 6 in your units (our number divided by 100).  The hardest part for me was 4 months ago, when my 5 years stable function deteriorated. With help of this forum and my therapist I faced with new situation.
And the thing that worried me most was how would any girl liked me when beeing on dialsysis (with fistula). But apparently they still like me. :yahoo;


I'm pushing my doctor to start transplant test. My mom is willing to give me a kidney. Keep fingers crossed :)!

Goiingthere

P.S.: Do you have any idea how much phosphate does soya beans have?
Logged
1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
KICKSTART
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« Reply #4 on: March 01, 2010, 09:38:49 AM »
No idea how much Phos soya beans have , but i take it your a veggie? I got the ok from my dietician to use soya and quorn , so it cant be that bad !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
jbeany
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« Reply #5 on: March 01, 2010, 02:58:18 PM »
Sounds like you are past the denial stage and onto acceptance.  That's a good thing.  Nothing wrong with being calm - besides, you are free to freak out later if you still want to!

Check the diet and recipe section on here.  There's a link to a usda nutrition website on there that lists all the mineral contents of just about every food.  The only thing completely off limits is starfruit, but everything else can be enjoyed in moderation, even the stuff with high phos levels.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
kellyt
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« Reply #6 on: March 01, 2010, 03:21:32 PM »
If your creatinine is that high you shouldn't have to 'push' you doctor too hard, I hope.  My doctor got me in for testing when I hit about 3.5 or 4.  Absolutely good luck!  I hope they accept your Mother as your donor and everything goes great!   :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
sullidog
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« Reply #7 on: March 01, 2010, 05:13:20 PM »
I was the same way and I didn't even get warning! I figured heck have to do this for the rest of my life might as well not complain, but of course like all of us, I have my days/moments..
Good luck
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
-Lady Noir-
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« Reply #8 on: March 02, 2010, 02:54:32 PM »
Quote from: GoingThere on March 01, 2010, 01:41:39 AM
Hi!

I've got my lab results today. Kidney function is worse. Creatinin is higher, it is 600 now, so 100 up in 3 months. With that speed I will be on dialsys in the summer. But I'm so calm. Is that normal? Usually I would freak out:)

GoingThere

Hi, i'm sorry to hear that. My partner Mike was sitting at around 1400 when he first started dialysis, and slowly his creatinine went down to about 700 [ On manual bag changes ]
but when he started on the night machine his creatinine crept back up to over 1400! It was a shock to say the least. However, he was dry during the day. They decided to make him wet during the day with one extra bag change. He's due a blood test today. We will soon find out if its made any affect on his creatinine level!
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
Stoday
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« Reply #9 on: March 02, 2010, 07:18:59 PM »
Some people are worriers. You, sullidog and I are not and I'm sure we are the better for it.

I knew a bloke who got a heart attack around the same time as I did, in 2005. It really worried him and he took every precaution to reduce stress, took his meds like a good boy etc. Me? I was a bit cavalier, but that's my nature.

He doesn't worry anymore. He's dead.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
kellyt
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« Reply #10 on: March 03, 2010, 06:03:29 PM »
Quote from: Stoday on March 02, 2010, 07:18:59 PM
Some people are worriers. You, sullidog and I are not and I'm sure we are the better for it.

I knew a bloke who got a heart attack around the same time as I did, in 2005. It really worried him and he took every precaution to reduce stress, took his meds like a good boy etc. Me? I was a bit cavalier, but that's my nature.

He doesn't worry anymore. He's dead.


This post could easily go in the "What NOT to say or do at your Transplant Evaluation'.    :rofl;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
RightSide
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« Reply #11 on: March 04, 2010, 10:46:05 AM »
Quote from: GoingThere on March 01, 2010, 01:41:39 AM
I've got my lab results today. Kidney function is worse. Creatinin is higher, it is 600 now, so 100 up in 3 months. With that speed I will be on dialsys in the summer. But I'm so calm. Is that normal? Usually I would freak out:)
Gee, I was actually looking forward to dialysis, because I felt so sick.  I knew it was from toxins that were poisoning me, and I wanted to get those toxins out of my body ASAP.
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GoingThere
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« Reply #12 on: April 22, 2010, 12:40:54 PM »
Another cycle of lab results are back. BUN and creatinin level are the same as in February  :bandance; I do have a little higher level of phosphor. I really have no idea why. I don't eat any milk or milk product and fish. I take binders.....so.....what about beae? I do drink now and then beer.

I also put pressure on my neph to start kidney transplant activities. No success yet  :Kit n Stik;

Feeling fine, dancing alot, salsa and bachata. I nearly become professional  :shy;

You can see how bachata looks here

http://www.youtube.com/watch?v=CdatnKT0a1c

Regards Uros
Logged
1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
MooseMom
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« Reply #13 on: April 22, 2010, 01:17:59 PM »
Isn't it awful waiting for the next round of lab results to come in?  I would get so horribly nervous that my neph prescribe anti-anxiety meds for me to take just during that week between having blood drawn and getting the results.  I've been doing that for six years now and it has never gotten any easier.  I am glad to hear that you are still holding on.  Any day avoiding D is a good day.  I'm experiencing the same type thing you are....stable for a long time and then POW...GFR dips below 20.  But now I am going all the tests required to get on the transplant list, and I hope your neph will put you on the same path.  Keep us posted, OK?  When is your next set of labs?
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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