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Lillupie
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« on: February 21, 2010, 08:42:54 PM » |
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hi, I dont know if anyone on here has heard of Kidneyfun.com? Well it was the first site that I ever joined. I kind of want some advice from the folks on here. The girl who ran Kidneyfun put her heart and soul into it. Well last year she got a kidney transplant and now really doesnt want to be bothered with it because she is more or less "normal" now. At the end of this month Kidneyfun.com is due to shut down. Her ex fiance is willing to pay the $170 a year to keep the site up and running, but none of us are really want to become the head adminstrator. We have a few moderators, but they cant be the head adminstrator for they have their own websites. I really loved this site. I personally am not sure how much work is involved with being a site moderator, and can I personally handle the responsibilities? Would any of you want to try going to this site as well? I know its such short notice. http://www.kidneyfun.comThanks Lisa |
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"
It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!
dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
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tyefly
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« Reply #1 on: February 21, 2010, 08:46:43 PM » |
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Some of us are already there..... there are lots of people there that I am sure that would be willing to help...
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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Lillupie
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« Reply #2 on: February 21, 2010, 08:49:34 PM » |
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are you on there now?
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"
It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!
dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
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tyefly
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« Reply #3 on: February 21, 2010, 08:54:12 PM » |
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yes
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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RichardMEL
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« Reply #4 on: February 21, 2010, 08:55:31 PM » |
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Sounds like something Dan & Hurlock should step up for   |
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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tyefly
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« Reply #5 on: February 21, 2010, 08:58:43 PM » |
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Site Has been going for awhile..... it look like a good site... there are others as well.... different people same support...... and more good information...... its nice to have more information.....
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Logged
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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okarol
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« Reply #6 on: February 21, 2010, 09:01:48 PM » |
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I am a member but since Shay has stopped posting it looks pretty quiet. Most of the members appear to have moved on to Kidneyspace and the NKF message board, but the main draw was the games.
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tyefly
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« Reply #7 on: February 21, 2010, 09:03:40 PM » |
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Yes kidneyspace is fun and so is Home dialysis central..... I even like DSEN.......LOL Ok I like it all.......  |
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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Lillupie
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« Reply #8 on: February 21, 2010, 09:27:16 PM » |
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and I dont think the people on homedialysiscentral like me.....I've tried posting on there a few times long ago...I might have to again. I contacted the nocturnal doctor in Austrilla (i think), Dr. Agar, about my book, and he told me to post on there....
Lisa
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Logged
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"
It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!
dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
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Sluff
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« Reply #9 on: February 22, 2010, 06:11:13 AM » |
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I should take it over. I will give them a call.
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Rerun
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« Reply #10 on: February 22, 2010, 06:19:06 AM » |
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More information is good, but I don't think it is very cool to come to IHD and solicit members. My "rude"  Rerun~ |
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Lillupie
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« Reply #11 on: February 22, 2010, 07:43:40 AM » |
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I am sorry. I didnt mean to solicit members. I just dont want to see the site go by the wastesite. I am thinking about being a adminstrator pr a moderator there and am n ot sure how to do it, and I dont want to do it by myself.
Lisa
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Logged
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"
It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!
dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
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tyefly
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« Reply #12 on: February 22, 2010, 07:55:30 AM » |
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There should not be a problem in talking about other sites..... there are many other sites that have been talked about on this site..... DSEN.... Nxstage..... different webinars.... NKF..... I would think that this site along with the people would be secure enough to accept the fact that there are other sites...... and Its ok ...... after all there are Moderators here at IHD that are members of other sites......
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Logged
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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paris
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« Reply #13 on: February 22, 2010, 07:57:53 AM » |
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A lot of us are very familiar with the previous admins and mods there. And have been members on their site. Both postitions take a huge amount of time, especially the administrator. Keeping a site safe, spam free,etc. takes a great deal of time. I hope you do it if you feel like this is something you can do to help.
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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BigSky
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« Reply #14 on: February 23, 2010, 05:53:50 AM » |
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More information is good, but I don't think it is very cool to come to IHD and solicit members.
My "rude"
Rerun~
I disagree. Epoman often went to other such sites to inform members about his site. In fact I found out about this site when he posted about it on the Davita boards. |
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Rerun
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« Reply #15 on: February 23, 2010, 12:28:46 PM » |
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Yeah, you guys are right.
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tyefly
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« Reply #16 on: February 23, 2010, 12:38:38 PM » |
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Thx Rerun.........
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Logged
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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kitkatz
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« Reply #17 on: March 04, 2010, 08:09:44 PM » |
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Kidneyfun.com is now closed. If you have pics or posts you want go get them soon. I pulled my journal entries into a Word file. It looks like it is going down permanently. Gamecock put a huge announcement up on the board.
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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