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Author Topic: surprised!  (Read 4013 times)
billybags
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« on: February 09, 2010, 07:15:18 AM »
Change of Binder!
3 posts - 3 authors - Last post: yesterday
Quote
I dont have any luck with binders but since ive been on hemo i dont need any ! As far as i know Phosex is ok , i think its the latest ...
ihatedialysis.com/forum/index.php?topic=17674.0 - Cached

I found this whilst I was checking up on binders on the web. I must be thick or what but I thought, what was on IHD stayed there. I will now be taking my picture off.


Edited: fixed quote - okarol/admin
« Last Edit: February 09, 2010, 08:24:29 AM by okarol » Logged
cdwbrooklyn
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Positive Thoughts equal Positive Energy
« Reply #1 on: February 09, 2010, 08:06:08 AM »
I'm confused.  What happened?  Can you explain the above a little clearer.  Sorry, I'm just trying to find out what happened.
Logged
Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: February 09, 2010, 08:25:43 AM »
I don't understand either, your original thread is still there... what's up?

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."
« Reply #3 on: February 09, 2010, 08:36:28 AM »
I think she is referring to the fact that some of our posts are picked up by search engines such as Google.

8)
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
willowtreewren
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My two beautifull granddaughters

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« Reply #4 on: February 09, 2010, 08:39:48 AM »
Hi, Billybags.

I found IHD by doing a search on the web for a particular topic. And guests may peruse our "sacred halls", too.

I always knew that even though we are members, it is a public place.

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cdwbrooklyn
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Positive Thoughts equal Positive Energy
« Reply #5 on: February 09, 2010, 09:04:03 AM »
Oh, that's what billybag was talking about.  Yeah, the website is opened for the public can read.  That's how I find this site.  One day, I was trying to search some information regarding dialysis and this site came up.  I was serious just by the name of the site.  I've logged in and read, read, read, read, read, and read before becoming a member.   Yes other people can read this site whose not IHD members.     ;D
Logged
Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
billybags
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« Reply #6 on: February 09, 2010, 10:38:50 AM »
Zach, you are spot on,  I did not realise that Google picked up some of our post's and it came as a surprise that's all. I know people can come on IHD and read what ever is there but to see it on a googled site it threw me. Any way do you like my incognito picture?
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fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #7 on: February 09, 2010, 10:44:46 AM »
Quote from: billybags on February 09, 2010, 10:38:50 AM
Zach, you are spot on,  I did not realise that Google picked up some of our post's and it came as a surprise that's all. I know people can come on IHD and read what ever is there but to see it on a googled site it threw me. Any way do you like my incognito picture?


   Yup, not as good looking as you but.....
Logged
In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
boswife
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us and fam easter 2013
« Reply #8 on: February 09, 2010, 10:48:12 AM »
hehe...... pretty cute bunch of new animals and people we got here...  I have chickens so threfore....my new av is a chicken     :-)  also much what i've been considered in REAL life anyway..lol
« Last Edit: February 09, 2010, 10:49:27 AM by boswife » Logged
im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
billybags
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« Reply #9 on: February 09, 2010, 10:57:11 AM »
fc2821, If I didn't know any better, I would think you were flirting! You've made my day, ok so it doesn't take much when you get to my age. Thanks
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: February 09, 2010, 11:10:29 AM »
Quote from: Zach on February 09, 2010, 08:36:28 AM
I think she is referring to the fact that some of our posts are picked up by search engines such as Google.

8)

Thanks Zach.

Yes, the forum posts are public, but photos posted in threads like "===== PICTURES OF OUR MEMBERS =====" can only be viewed by members who are logged in.

okarol/admin
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #11 on: February 09, 2010, 11:40:37 AM »
   Thanks Karol, I started wondering about that after I posted a few. 

   
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
Jean
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« Reply #12 on: February 09, 2010, 04:15:10 PM »
I had no idea we were "googled" by Google. Oh well, no big deal. Guess that is why tho we want to not put our regular e-mails on here . Addresses, I mean.
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One day at a time, thats all I can do.
glitter
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« Reply #13 on: February 10, 2010, 09:29:00 AM »
IHD is a good thing to be found on Google- It helps people who need to be here to find us.  :beer1;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Malibu
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« Reply #14 on: February 10, 2010, 03:46:36 PM »
Anybody can see what you put on here.  The posters on here might not be who you think they are either so be careful what you put.  Such as your real name.  >:D Not everyone is nice.  If someone were to get your real name and your location, say from your profile... you might be in trouble.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #15 on: February 11, 2010, 01:49:40 AM »
Well, I'm in the phone book too!  Should I not do that either?  I think you do need to be careful, but most people on here are honest about who they are.  Lets face it - if I was to make a personality I don't think it would be a 46 year old with a tube and PD belly!  :rofl;
But a good point about cyberspace.  Everything, and I mean everything you write on a computer could be looked at by someone else.  I wouldn't be worrying too much about google!
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Zach
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"Still crazy after all these years."
« Reply #16 on: February 11, 2010, 05:38:12 AM »
Quote from: Malibu on February 10, 2010, 03:46:36 PM

Anybody can see what you put on here.  The posters on here might not be who you think they are either so be careful what you put.  Such as your real name.  >:D Not everyone is nice.  If someone were to get your real name and your location, say from your profile... you might be in trouble.


Always good to remember that possibility.

8)
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #17 on: February 11, 2010, 10:55:30 AM »
Quote from: Malibu on February 10, 2010, 03:46:36 PM
Anybody can see what you put on here.  The posters on here might not be who you think they are either so be careful what you put.  Such as your real name.  >:D Not everyone is nice.  If someone were to get your real name and your location, say from your profile... you might be in trouble.

Wherever you post/share/view on the internet should be done cautiously - Use common sense.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #18 on: February 11, 2010, 12:27:10 PM »
    Everyone has a valid point.   :thx;
Logged
In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
kitkatz
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« Reply #19 on: February 14, 2010, 04:06:52 PM »
Cached just means site was saved by our server, I think
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
texasstyle
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« Reply #20 on: February 14, 2010, 04:23:23 PM »
We were given the address of this site by a tech at the dialysis center. Just thought I'd say that lol.
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caregiver to husband using in-center dialysis 4 years
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