how high is your creatinine?

[sullidog]

I'm just curious how high has ones creatinine has gone? Mine was at a 10 for a long time and this month it moved up to an 11. Yeah that's hi, and I still urinate so I'm a bit surprised.
Troy

[boswife]

I was just going to put in a post asking (mabie) the same thing.. My question was going to be just .... what are everyones creatinine #'s but since your question is "how high" i'll  answer that and tell ya his highest was 4.3  and averages there and under to 2.6..  Im very interested in others response as well, so hope we get lots of answeres..

[Malibu]

My hubbies is:
15.? first day of dialysis (tested before dialysis)

7.43 from Tuesday labs.

[Quickfeet]

I'm floating around 3.5 and 4.2 (max so far).

p.s. I haven't begun D yet, so i might not count.

[Yvonne]

Here in the UK John's creatinine is 439 I wonder how we not the same as you, they say if it goes over 800 he will have to go on dialysis.?
But even at 439 he is very tied sleeps a lot and out of breath.

[Hanify]

NZ is the same as the UK with the way we say the level.  So mine is around 900 which I believe is the same as about 8 in American terms.  The highest I got was about 1000

[lou]

Got my bloods back yesterday and mine is now 564. (am also in the UK!). Been on dialysis 5 months.

[Zach]

Creatinine is a metabolic waste product of muscle activity.

While it is an important maker for people with CKD 1-4 (to help determine kidney function) it is less important once a person starts dialysis.  If you still urinate, it may continue to be relatively low (4-6 mg/dL-US standard).

A person no longer urinating with more muscle will tend to have a higher Creatinine (10-12 mg/dL), and it tends to be a stable number from month to month.  However a low Creatinine of a person in this same situation may mean possible malnutrition.

From Page 24 of the KDOQI Nutrition Guidelines of the National Kidney Foundation (US):

Serum Creatinine and the Creatinine Index

The serum creatinine and creatinine index are valid and clinically
useful markers of protein-energy nutritional status in maintenance
dialysis (MD) patients. (Evidence and Opinion)

• The predialysis or stabilized serum creatinine and the creatinine index
reflect the sum of dietary intake of foods rich in creatine and creatinine (eg,
skeletal muscle) and endogenous (skeletal muscle) creatinine production
minus the urinary excretion, dialytic removal, and endogenous degradation
of creatinine.

• Individuals with low predialysis or stabilized serum creatinine (less than
approximately 10 mg/dL) should be evaluated for protein-energy malnutrition
and wasting of skeletal muscle.

• A low creatinine index and, in the absence of substantial endogenous
urinary creatinine clearance, a low serum creatinine concentration suggest
low dietary protein intake (DPI) and/or diminished skeletal muscle mass
and are associated with increased mortality rates.

http://www.kidney.org/professionals/kdoqi/pdf/KDOQI2000NutritionGL.pdf

[RightSide]

After being on dialysis for about 15 months, mine is around 4.0

[Yvonne]

I wish I could understand this dialysis. John is not on dialysis yet, he has only one half of his horseshoe kidney left, the other half was removed along with his bladder and prostrate with cancer. He urinates through a stoma worn on his tummy and has to empty this about 5 times a day and the night bag is always full.  So do you think as he urinates so much he will not ever need dialysis

[Xbandito]

Hi Yvonne, My creatinine was 439 and I started D 3 weeks ago, I too was very tired, breathless and just did not have my head with me most days. I too still urinate a lot (though the way the D staff are acting, you would think I aint piddled in years).
          If John feels he can go on without D I would say carry on but, you can ask to go onto D now if he so wishes.

[billybags]

My husbands creatine is (UK) 883 and urea 20.0 He has been on D for just over a year and he still pee's alot. The highest its been is 1033.

[monrein]

Yvonne, the need for D is NOT indicated by the amount of urine produced.  The thing to look at are the lab numbers since kidneys often can still pull off fluid but NOT take away the crucial toxins (creatinine, BUN) or excess electrolytes (potassium, sodium etc). 

[sullidog]

Yes, the staff seem to think one can't urinate, would you like me to whip it out and show you? Ok getting off topic with that one but still I don't understand how the staff just assumes such things.
Troy