I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 24, 2024, 08:47:32 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  US health care
0 Members and 9 Guests are viewing this topic. « previous next »
Pages: 1 [2] 3 4 Go Down Print
Author Topic: US health care  (Read 18695 times)
dwcrawford
Member for Life
******
Offline Offline

Gender: Male
Posts: 5315


Getting the heck out of town.

« Reply #25 on: January 23, 2010, 08:59:11 AM »

Please note that more than once in my little statement I stated that "I am torn" on the issue.  I had medicare and my insuurance long before I had my kidney problem so I'm really not up on details.  I've worked really long and hard (well not so hard... not so long either as I think about it but I've worked) to protect myself with insurance.  I try not to be so selfish or isolated in my thinking as I understand so many points of view, and I don't want to be a part of this debate.  I simply want to  read what the rest of you believe.  I could decide whether I'm pro or con that way, not that it would have any influence.
Logged

Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840


« Reply #26 on: January 23, 2010, 09:13:02 AM »

I'm torn, as well, Dan.  It's maddening the way it is now and it's maddening the way they are presenting it to possibly be.  I want good change, either way, so that my heart and mind can finally be at ease.  It's not like all this crap we're all going through as ESRD patients is every going to go away, right?   :(  We can only hope it gets better.   :pray;
Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Bill Peckham
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3057


WWW
« Reply #27 on: January 23, 2010, 09:36:19 AM »

There's no way any American is going to be able to fully explain this, and you wouldn't want anyone to try. Trust me. This is a huge question. I'll give you my understanding of it as briefly as possible.

We have a system of Medicare (fed gov't) that covers certain people, but only at 80% (patient would pay 20% of the costs unless they qualify for further assistance) for most services, even dialysis and transplant, and the rules for getting Medicare are a bit arbitrary. Everyone over 65 is eligible. Dialysis patients and transplant patients get it automatically thanks to some relentless advocacy in the 1970s, and people who are disabled two years can often get it, but that depends on when you become disabled. If you are over a certain age when you become disabled, you need to have work credits (you need to have earned a certain amount of income in your lifetime) in order to be eligible for Medicare. If you are someone who never worked, say a stay-at-home mother, and you become disabled at 40 with cancer, sorry. Try to hang on until you're 65.

Insurance is generally group or private. What someone like me, with a history of ESRD and transplant, wants is group. Group insurance almost always comes through work, usually what we call W-2 work (a tax form, W-2 means you are an employee, not a contractor). Laws vary from state to state, the state where we live now has no mandate that employers must offer this insurance to employees. The reason that you want group is that the employer and the insurance company must offer the same deal (with minimal exceptions) to all employees (and their families) and pre-existing conditions clauses are limited. There are no health exams.

Private insurance is an excellent way to get.... uh, hosed, is the most polite word I can think of. Some of the best insurance horror stories involve paying into private insurance faithfully for years, suffering a health crisis, and then having the insurance company pore over your application documents looking for anything they can call a pre-existing condition. There is a famous story about a woman with cancer who had her insurance rescinded because she did not declare a case of acne on her application. This is what people refer to when they say "uninsurable". Private insurance companies can and do turn applicants down all the time for not being healthy enough (preexisting conditions like ESRD, or our friend who has asthma, or our other friend with persistent migraines, or....)

Almost everything must be pre-approved by the insurance company. Anyone who calls an insurance company, regardless of whether it is group or private, will hear a recorded message saying that basically they are not responsible for whatever their own reps say, and that you must wait for formal approval. This can take forever, with all sorts of delay tactics employed. Did you know that liver transplants are considered experimental? Either did I! Until CIGNA said so, and a 17-year-old in LA died. This is what we are up against.

There are other ways to pay for health insurance, and state programs, and of course, COBRA, which is what I am dealing with now (a federal law that if you are fired or quit your job involuntarily, the company must let you continue to buy into their group insurance for a certain period of time, but you will pay much, much more than the premiums that the employees pay). I don't know all of the different rules and possibilities with health insurance, and as far as I can tell, neither does anyone else. I am sure there are exceptions to everything I just wrote. It is an incredible, self-sustaining bureaucracy.

As for why Americans fear health reform, that is an equally enormous question, and I'm not exactly sure myself, since everyone I see on a regular basis, including my GP, cannot wait for the day. The people who have the most to lose from reform (insurance companies, for example) also happen to have an awful lot of money to put toward convincing everyone that it would be the end of civilization.

Aren't you sorry you asked?  ;)

Nice cariad. One quibble you need work credits when you reach 65 too. If you ever want to blog dialysis reimbursement you'd be welcome on DSEN.

Rerun's point on costs of healthcare vs. health insurance is a point too often glossed over. One solution that could be a game changer that I have not seen is allowing Medicare reimbursement to Mexican healthcare providers - at say 80% of the 80%. I think the surveying and the accounting could be handled.

It would relieve a lot of pressure on the system if 5% of Medicare beneficiaries moved to Mexico. Medicare would see immediate savings. The decrease in demand would increase price competition at home. It wouldn't cost anything if people didn't want to move but I think a lot of people would end up moving.
Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Malibu
Full Member
***
Offline Offline

Gender: Female
Posts: 191

« Reply #28 on: January 23, 2010, 06:54:16 PM »

We have not had medical insurance until MM got Medicare when he went on dialysis.  Before that we paid out of pocket for everything for his kidney disease and YES, ALL THE DR'S AND HOSPITALS GAVE US UP TO 75% DISCOUNT.  I asked everybody and they obliged.  But the bill had to be paid up front, ahead of the procedure to get the discount.  No discount on drugs.

The price of healthcare (procedures, Dr office visits, etc.) is outrageous.  I think I've already posted this but I'll say it again, because we were paying cash for MM's AV Graft installation I called several hospital to get prices.  The price ranged from $2350 to over $10,000 just for the hospital bill.  And that was the discounted 'cash up front' price. 
Logged
pdpatty
Full Member
***
Offline Offline

Gender: Female
Posts: 237

« Reply #29 on: January 23, 2010, 07:03:14 PM »

I'm going to post here simply because I'd like response to show up in my "new posts" section.  The only comment I will make (since I am totally torn about the issue) is:

There are places in American where people from  countries with socialized or government health care or flocking for treatment.  Ditto with health care professions flocking to come work and to gain great comments for their resumes.

I have Medicare and a Cadilac (supplement plan and drug plan -- it does cost out the (censored).  But  you can correct me if I am wrong but I get the impression that dialysis patients are covered by medicare and provided drug help.  Is it good to have bad Kidneys? 

Again, I am torn with the issue...

Obama promised change.  We got change (the banks surely did, the auto companies surely did).  But change isn't good unless it is change for the better... is it?  and is it?


It is still only 80% covered ( a negoated payment) the rest is picked up by my suppliment. Some drugs are not covered by the patD drug plan or if they are,are so expensive that you get to donuthole in just a few months and then pay out of pockey. No it is not a good thing to have bad kidneys.

example: I had a little over $800 left until donuthole in Dec 2009. Decided to pruchase 93 Fosrenol 1000mg tabs (doc has been giving me samples for last 2 years) Got script ,went to Walgreens and they billed the insurance $700 for 93 tabs. That is almost $7 a tab.


Oh yes, the only time Disability Social Securit will drop the need for required work credits is if you have lost your eyesight. I know,that is what I origionally got disability for. You can work a little a one day,have accident that would leave you legally blind and get disability. I am legally blind.
Logged
RightSide
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1117


« Reply #30 on: January 23, 2010, 08:15:38 PM »

To understand why the U.S. health care system is the way it is, it helps to understand the history.

During World War II, all prices and wages were frozen.  Employers were not allowed to offer higher wages or higher salaries to attract and retain workers.  So the Franklin Roosevelt administration hit upon the idea of allowing employers to offer group health insurance to their workers as a tax-free fringe benefit in lieu of wage raises.  This was a good deal for both the employer and the employee, since health benefits were tax free unlike wages. 

After World War II, the Internal Revenue Service tried to rescind the tax benefits of group health insurance.  But this benefit had become so popular that Congress overrode the IRS and kept the benefit.  And it's remained that way ever since.

Unfortunately, this has had the side effect of decoupling health care costs from those who pay them, since the employer never sees the medical bills, and the employee's health insurance premiums are paid by his employer regardless of the claims he files.  Hence there's no incentive to hold down costs--and costs have risen faster than inflation as a result.

It has also had the undesirable side effect of tying an employee's health insurance to his employer.  Because if the employee loses his job, he loses his group health insurance with it. In the 1950s when large corporations offered virtual lifetime employment to their workers, this wasn't much of a problem. But today, companies downsize all the time and workers change jobs all the time.

Most of the proposed health care reforms have focused on trying to deal with these kinds of problems.
Logged
murf
Full Member
***
Offline Offline

Gender: Male
Posts: 318


« Reply #31 on: January 24, 2010, 04:55:56 PM »

Just one question. What happens in USA if you get chronically (possibly terminally) ill and have no insurance. Does the government step in? BTW, I didn't want to start a political debate, just be informed about a health system in another country.
Logged

Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
BASSMAN
Full Member
***
Offline Offline

Gender: Male
Posts: 222


WWW
« Reply #32 on: January 24, 2010, 05:58:25 PM »

Just one question. What happens in USA if you get chronically (possibly terminally) ill and have no insurance. Does the government step in? BTW, I didn't want to start a political debate, just be informed about a health system in another country.

You Can receive emergency  stabilizing treatment at any hospital emergency room regardless of insurance or ability to pay.  People die in this country every day that could be helped but have no insurance.

Anytime this subject comes up it will turn political if you live in the USA.
« Last Edit: January 24, 2010, 05:59:40 PM by BASSMAN » Logged

Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
BASSMAN
Full Member
***
Offline Offline

Gender: Male
Posts: 222


WWW
« Reply #33 on: January 24, 2010, 06:03:10 PM »

Out of curiosity I just googled "died because of no health insurance".  Give it a shot.  Some interesting reading.
Logged

Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
Malibu
Full Member
***
Offline Offline

Gender: Female
Posts: 191

« Reply #34 on: January 24, 2010, 06:12:09 PM »

bassman, your pic is really spooky.  And kind of scary.  :O)~

I cannot tell you how many people I have told about the cash discount.  The tech/helper at the chiropracter clinic I went to was suffering from kidney stones.....she was having them at home because she did not have insurance.  I told her to phone ahead and ask for a cash discount!  She had no clue.  One of the Dr's I go to (for MM), when we check out the Secretary cannot give me a cash discount unless I verbally ask for it.  ?WTF?

There are State Health agencies in most states that will help but lots of folks don't know about them and if they are told no they give up.  You have to fight for it sometimes.  And that is sad but that is the way it is.
Logged
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840


« Reply #35 on: January 24, 2010, 06:46:09 PM »

I didn't have insurance when I was originally diagnosed with kidney disease in 1994.  My neph did the biopsy at a huge discount and he got the hospital to discount some, too.  I paid small payments, but regularly on my account without fail and when I got the balance to like $600 I called them and said that I'd send in a payment of $300 today if they would consider writing off the balance.  SHe had to check with some high ups but they agreed.  Apparently it's done all the time.  Try it if you haven't, but you have to have a good record of payment I think.  I had to give her the check # over the phone and promise that it would go in the mail and be postmarked that day.  But, it saved me $300.

USA will not turn you away, and there are ways to get amounts lowered or even written off in full.  Drug companies will help you with medications, as well.
Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
hurlock1
Full Member
***
Offline Offline

Gender: Male
Posts: 277


THIS MEMBER IS BANNED FROM IHD

« Reply #36 on: January 25, 2010, 04:34:39 AM »

bassman, your pic is really spooky.  And kind of scary.  :O)~
Just curious BASSMAN. Is your name Bassman like a fish? You know Large mouth bass or brown bass, or is like a baritone, electric bass or acoustic bass? Fish or musical? You look like an aliein. Maybe that is what a fish/man looks like on your planet. :waving;
Logged
hurlock1
Full Member
***
Offline Offline

Gender: Male
Posts: 277


THIS MEMBER IS BANNED FROM IHD

« Reply #37 on: January 25, 2010, 04:53:19 AM »

bassman, your pic is really spooky.  And kind of scary.  :O)~

I cannot tell you how many people I have told about the cash discount.  The tech/helper at the chiropracter clinic I went to was suffering from kidney stones.....she was having them at home because she did not have insurance.  I told her to phone ahead and ask for a cash discount!  She had no clue.  One of the Dr's I go to (for MM), when we check out the Secretary cannot give me a cash discount unless I verbally ask for it.  ?WTF?

There are State Health agencies in most states that will help but lots of folks don't know about them and if they are told no they give up.  You have to fight for it sometimes.  And that is sad but that is the way it is.
When I had my kidney stones, I just took them with me where ever I went, There was no discount for having them just at home. I didn't think to ask for a discount. This was years ago and I remember them hurting me very much. I didn't have a classy job like a tech/helper at a chiropractor, but I do remember that for several days, I couldn't have gone to work, if I wanted to.
Logged
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile

« Reply #38 on: January 25, 2010, 04:56:05 AM »

I didn't have insurance when I was originally diagnosed with kidney disease in 1994.  My neph did the biopsy at a huge discount and he got the hospital to discount some, too.  I paid small payments, but regularly on my account without fail and when I got the balance to like $600 I called them and said that I'd send in a payment of $300 today if they would consider writing off the balance.  SHe had to check with some high ups but they agreed.  Apparently it's done all the time.  Try it if you haven't, but you have to have a good record of payment I think.  I had to give her the check # over the phone and promise that it would go in the mail and be postmarked that day.  But, it saved me $300.

USA will not turn you away, and there are ways to get amounts lowered or even written off in full.  Drug companies will help you with medications, as well.

Having to negotiate and bargain for discounts in this way is not a cakewalk even when one is healthy.  To be ill and have to do battle in this way leaves me beyond perplexed.
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kimcanada
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2802


WWW
« Reply #39 on: January 25, 2010, 05:10:50 AM »

I am so monrein, its like you are at a yard sale , I have many issues wit my healthcare, but I would not change it for the world. And at the end of the day and so thankful I have a government that puts my health ahead of insurance companies
Logged

**********************
**********************
http://www.kimhoben.com
**********************
**********************
plugger
Sr. Member
****
Offline Offline

Gender: Male
Posts: 654


I only look like a sheep - but I ain't

WWW
« Reply #40 on: January 25, 2010, 08:02:59 AM »

Just one question. What happens in USA if you get chronically (possibly terminally) ill and have no insurance. Does the government step in? BTW, I didn't want to start a political debate, just be informed about a health system in another country.

It looks to me this happens:

http://www.pnhp.org/news/2009/june/illness_medical_bil.php

A lot of times even when you have insurance.
Logged

Proud member of DialysisEthics since 2000

DE responsible for:

*2000 US Senate hearings

*Verified statistics on "Dialysis Facility Compare"

*Doctors have to review charts before they can be reimbursed

*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis

*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019

*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years

On my tombstone: He was a good kind of crazy

www.dialysisethics2.org
BigSky
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2380


« Reply #41 on: January 25, 2010, 08:04:33 AM »

The problem is people wanted reform and this bill was not reform.

Instead it was 1000's of pages that was loaded with legal mumbo jumbo that was wide open to interruption down the road instead of being specific.


The idea of taxing people health care benefits was probably one of the most harmful things to come up in the whole thing.


They should have did a single payer system (something Baucus refused to even be truly heard) and also eliminated earned income credit.  Use that money that is given out in earned income credit towards health care instead.



Logged
plugger
Sr. Member
****
Offline Offline

Gender: Male
Posts: 654


I only look like a sheep - but I ain't

WWW
« Reply #42 on: January 25, 2010, 08:11:19 AM »

I have to agree with you BigSky! 

By the way, this discussion has reminded me of a question I have.  I remember when my kid was in the clinic back in 2000.  My recollection was my private insurance was getting gouged, while it appeared Medicare was the one holding back costs.  I was wondering if it is still that way?
Logged

Proud member of DialysisEthics since 2000

DE responsible for:

*2000 US Senate hearings

*Verified statistics on "Dialysis Facility Compare"

*Doctors have to review charts before they can be reimbursed

*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis

*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019

*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years

On my tombstone: He was a good kind of crazy

www.dialysisethics2.org
cariad
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4208


What's past is prologue

« Reply #43 on: January 25, 2010, 09:40:23 AM »

Quote
Nice cariad. One quibble you need work credits when you reach 65 too. If you ever want to blog dialysis reimbursement you'd be welcome on DSEN.
Thanks, Bill, I'm enormously flattered. I am not back on dialysis, and have a 2nd transplant scheduled for March, but if you ever need a strongly worded opinion piece on transplant, I do believe I'm your gal. Work credits even at 65? Man, it's even worse than I thought.

Kimcanada, monrein, thank you for your insight. Yes, the emotional toll can be immense, having to work up the courage and the self-esteem to advocate for yourself while ill is beyond the abilities of many people. I also imagine that it is no picnic for the providers. I have seen my GP - a lovely man, and my favorite doctor - turn people away for lack of a co-pay or cash to pay upfront. My GP is certainly cheaper than an ER, and will be able to deliver much better service, but he also occupies the bottom income rung for physicians and has to look after his own practice.

USA will not turn you away, and there are ways to get amounts lowered or even written off in full.  Drug companies will help you with medications, as well.

I couldn't disagree with this statement more. I guess it depends on what you place under the "health care" umbrella, but I have heard of plenty of people turned away, especially with severe mental health issues. I have said this before, but in my decades of post-transplant life, I have had all but zero success getting help with prescription drugs.

Having medical bills written off on your record affects all aspects of your financial life - ability to get loans, sometimes even ability to get jobs. I went to UW-Madison in 2002 for an appointment with a transplant nephrologist, after two separate calls to my insurance to make sure I was covered there. The reps said yes, absolutely. This was before those messages warning "even if the rep says you're covered, we might just surprise you." Well, United Healthcare took so long to process the claim, that I ended up going a second time 6 months later before getting a letter in the mail from the hospital saying "you were never covered here, and you now owe us $5000 for your two visits". We appealed it to the ends of the earth, finally were forced to settle for $3000, and it went on my husband's credit report as a settlement, since the insurance was group through his work. It is only now falling off his record.

Murf, Bassman is right, it is impossible to discuss this without a political argument springing up. There are people here who work just as hard as anyone else, cannot get or afford insurance, pay taxes which include taxes for Medicare, pay toward the salaries of government employees (who almost always have excellent coverage) and then are allowed to fall into bankruptcy or worse when they need medical care. It is very political and very personal.


Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Malibu
Full Member
***
Offline Offline

Gender: Female
Posts: 191

« Reply #44 on: January 25, 2010, 10:55:10 AM »

cariad, There is lots of help for folks in the US, you CAN get it.  People tend to accept no as an answer instead of actually putting forth effort and getting help for themselves.  I agree that if you are sick it is not easy to fight for yourself...but the help is there if you want it.  I also have been successful in getting several prescrip drug co's to send us drugs free of charge, so that help is there as well.  Not everyone fits into their qualifications but some of us do.  One of the requirements is that you do not have medical insurance (and no Medicare either).

I believe you misunderstood the 'having medical bills written off', the Dr (or hospital) does not actually do a "write off", it does not go against your credit.  You are making a deal, bargaining, getting the person to do the procedure at a lower price.  This absolutely does not go against your credit.  I have been doing it for 12 years now, I know.  I never ever ever walk through a Dr's office or do any other medical thing without asking for a cash discount.  Well, now I do because MM has Medicare.
Logged
cariad
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4208


What's past is prologue

« Reply #45 on: January 25, 2010, 11:56:22 AM »

cariad, There is lots of help for folks in the US, you CAN get it.  People tend to accept no as an answer instead of actually putting forth effort and getting help for themselves.  I agree that if you are sick it is not easy to fight for yourself...but the help is there if you want it.  I also have been successful in getting several prescrip drug co's to send us drugs free of charge, so that help is there as well.  Not everyone fits into their qualifications but some of us do.  One of the requirements is that you do not have medical insurance (and no Medicare either).

I believe you misunderstood the 'having medical bills written off', the Dr (or hospital) does not actually do a "write off", it does not go against your credit.  You are making a deal, bargaining, getting the person to do the procedure at a lower price.  This absolutely does not go against your credit.  I have been doing it for 12 years now, I know.  I never ever ever walk through a Dr's office or do any other medical thing without asking for a cash discount.  Well, now I do because MM has Medicare.

I appreciate your thoughts, Malibu, but have to say I still disagree just as strenuously as before. There is help available for some things, but not all, and it is a maze of qualifications and proving income and assets, and potentially lethal delays. Did you hear about the little boy who died of a tooth abscess a few years ago?
Warning, very sad: http://www.washingtonpost.com/wp-dyn/content/article/2007/02/27/AR2007022702116.html

Trust me, when I speak of people having difficulty advocating for themselves, I am not really putting myself in that category. I would not be where I am today, nearly 34 years post-transplant, about to enter a clinical trial that I don't even qualify for, if I were unable to advocate for myself. My husband is also excellent at this. I have two kids, there is no way I am going to have a go at American life without medical insurance, so if letting insurance lapse is a requirement, count me out. As you said, not everyone fits their qualifications, so I don't agree with statements that it is just laziness or ignorance that keeps everyone from getting care.

I think you may have overlooked a few details in my story, which was actually about a settlement, where the hospital 'writes off' a portion of my bill, in other words, puts it down as a loss. What Kelly described - owing $600 and asking them to take less, you can do with just about anything, but it most certainly can end up on your credit report if the creditor (the hospital) makes that choice. I am not talking about the same kind of bargaining that it appears you do. I already had gone to the appointments because my insurance told me it was covered - it was really too late to bargain with them, though I tried, my husband tried, and my father the tax attorney tried. And we did get the bill reduced significantly. It wasn't really the hospital's issue or fault in my opinion, anyway - the battle was with insurance. I needed to keep good relations with the hospital since I was undergoing a transplant eval, and they absolutely will turn you away from a transplant for lack of insurance or suspected inability to pay for maintenance over time. We even called the hospital after the fact (during mortgage refinancing) to ask that they please take it off our record, and they simply stated that did not do things like that.

I agree that there are options out there for some, and that a major hurdle is getting this information to the people who need it. I just cannot agree with the idea that the US will never turn someone away from medical care - that is simply not true.
Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840


« Reply #46 on: January 25, 2010, 01:00:51 PM »

Quote
Nice cariad. One quibble you need work credits when you reach 65 too. If you ever want to blog dialysis reimbursement you'd be welcome on DSEN.
Thanks, Bill, I'm enormously flattered. I am not back on dialysis, and have a 2nd transplant scheduled for March, but if you ever need a strongly worded opinion piece on transplant, I do believe I'm your gal. Work credits even at 65? Man, it's even worse than I thought.

Kimcanada, monrein, thank you for your insight. Yes, the emotional toll can be immense, having to work up the courage and the self-esteem to advocate for yourself while ill is beyond the abilities of many people. I also imagine that it is no picnic for the providers. I have seen my GP - a lovely man, and my favorite doctor - turn people away for lack of a co-pay or cash to pay upfront. My GP is certainly cheaper than an ER, and will be able to deliver much better service, but he also occupies the bottom income rung for physicians and has to look after his own practice.

USA will not turn you away, and there are ways to get amounts lowered or even written off in full.  Drug companies will help you with medications, as well.

I couldn't disagree with this statement more. I guess it depends on what you place under the "health care" umbrella, but I have heard of plenty of people turned away, especially with severe mental health issues. I have said this before, but in my decades of post-transplant life, I have had all but zero success getting help with prescription drugs.

Having medical bills written off on your record affects all aspects of your financial life - ability to get loans, sometimes even ability to get jobs. I went to UW-Madison in 2002 for an appointment with a transplant nephrologist, after two separate calls to my insurance to make sure I was covered there. The reps said yes, absolutely. This was before those messages warning "even if the rep says you're covered, we might just surprise you." Well, United Healthcare took so long to process the claim, that I ended up going a second time 6 months later before getting a letter in the mail from the hospital saying "you were never covered here, and you now owe us $5000 for your two visits". We appealed it to the ends of the earth, finally were forced to settle for $3000, and it went on my husband's credit report as a settlement, since the insurance was group through his work. It is only now falling off his record.

Murf, Bassman is right, it is impossible to discuss this without a political argument springing up. There are people here who work just as hard as anyone else, cannot get or afford insurance, pay taxes which include taxes for Medicare, pay toward the salaries of government employees (who almost always have excellent coverage) and then are allowed to fall into bankruptcy or worse when they need medical care. It is very political and very personal.

I was talking about the ER mainly.  I didn't even think as deedp as mental health.  You're right.  You may sit in the ER for hours, but you will eventually be seen.  Good or bad.  That's why most people with no insurance go to the ER for a cold and those with insurance pay for it.  :(
But you are right, Cariad.
Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
BASSMAN
Full Member
***
Offline Offline

Gender: Male
Posts: 222


WWW
« Reply #47 on: January 25, 2010, 03:31:10 PM »

bassman, your pic is really spooky.  And kind of scary.  :O)~
Just curious BASSMAN. Is your name Bassman like a fish? You know Large mouth bass or brown bass, or is like a baritone, electric bass or acoustic bass? Fish or musical? You look like an aliein. Maybe that is what a fish/man looks like on your planet. :waving;

I play electric bass as well as guitar and also bass fish so call me either, BASSMAN or BASSMAN.  I will answer to both.

I will have my wife take a picture and I will post it.   If she take 100 I might get one good shot.  I am not very photogenic.
Logged

Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
kimcanada
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2802


WWW
« Reply #48 on: January 25, 2010, 07:46:48 PM »

Know what... I read an entire novel that was just about 800 pages, is 1000 pages like ultra amazing ???  People should read more
Logged

**********************
**********************
http://www.kimhoben.com
**********************
**********************
Bill Peckham
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3057


WWW
« Reply #49 on: January 25, 2010, 08:40:46 PM »

The problem is people wanted reform and this bill was not reform.

Instead it was 1000's of pages that was loaded with legal mumbo jumbo that was wide open to interruption down the road instead of being specific.

The idea of taxing people health care benefits was probably one of the most harmful things to come up in the whole thing.

They should have did a single payer system (something Baucus refused to even be truly heard) and also eliminated earned income credit.  Use that money that is given out in earned income credit towards health care instead.

Why not tax health benefits? I know my union insurance would be good enough that it would result in some tax but why not? They tax everything else provided through work - why not insurance? It's all pay to me.
Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Pages: 1 [2] 3 4 Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!