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Author Topic: VA Kidney Support Group  (Read 2004 times)
Brightsky69
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« on: December 29, 2009, 11:39:48 AM »

How do you start a kidney support group?? I would love to start one here in the Tidewater Area but I have no idea how.
I have searched for a established support group but haven't found one. Any advice would be appreciated.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
oswald
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« Reply #1 on: December 31, 2009, 08:06:17 PM »

go to dialysis centers in your area and pass out fliers.  talk to nurses and techs in these centers to see if they could talk to people and see if there is any interest in a support group.  set a time on a sunday when people can come.  my group met once a month, on the first sunday each month.  good luck.
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
hurlock1
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« Reply #2 on: January 01, 2010, 05:53:51 PM »

go to dialysis centers in your area and pass out fliers.  talk to nurses and techs in these centers to see if they could talk to people and see if there is any interest in a support group.  set a time on a sunday when people can come.  my group met once a month, on the first sunday each month.  good luck.
dito
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: January 01, 2010, 09:21:12 PM »

AAKP article: Support Group Development

A patient support group can provide and exchange information ranging from kidney disease research and new treatment options to how a person can cope with kidney disease. Individuals in support groups talk about issues they deal with on a daily basis and are provided the opportunity to discuss more in-depth, personal decisions that other members have dealt with, or might face in the future.

More info: http://www.aakp.org/outreach/development/
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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