I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 22, 2024, 12:00:33 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Spreading the word/Matchingdonor.com		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Spreading the word/Matchingdonor.com  (Read 7846 times)
mike22
Jr. Member
**
Offline Offline

Posts: 93
« on: November 25, 2009, 08:29:16 PM »
Hey folks. I was wandering about this site matchingdonor.com. Is it a good site to post your profile. What are other goods ways to spread the word for a kidney donor
Logged
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #1 on: November 25, 2009, 10:40:01 PM »

Here's one article regarding matchingdonors.com http://ihatedialysis.com/forum/index.php?topic=16013.0 and if you use the search feature you'll find more.
You can read about how we found a donor on livingdonorsonline.org here http://ihatedialysis.com/forum/index.php?topic=2167.0
and here's info on looking for a donor http://ihatedialysis.com/forum/index.php?topic=8775.0
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4820


"Still crazy after all these years."
« Reply #2 on: November 26, 2009, 08:27:35 AM »
Quote from: mike22 on November 25, 2009, 08:29:16 PM

Hey folks. I was wandering about this site matchingdonor.com. Is it a good site to post your profile. What are other goods ways to spread the word for a kidney donor


$600.00 for registration?  And what do you get for that?
What is their success rate?

Sounds to me more of a scam than anything else.

I think livingdonorsonline.org is a much more reputable organization.

8)
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Goofy
Full Member
***
Offline Offline

Posts: 229
« Reply #3 on: November 26, 2009, 08:58:23 PM »
I had asked my doc a while back and he felt that something like that would attract people just looking for money and string you a long.  And the more hopeful you get they will start making more demands because they know how desperate you are.  I'm not saying it hasn't worked for for someone, but I think those people are few and far between.  Something like this is to emotional to have people that aren't sincere get your hopes up. 

Not to say if you have a friend or acquaintance that makes an offer will always follow through but at least your know they're doing it from the bottom of their heart and not their wallet.

If given the chance in conversation with anyone you meet, I'd let them know whats going on and you never know who may step up!!
Logged
pistoltart
Newbie
*
Offline Offline

Posts: 6
« Reply #4 on: April 19, 2010, 07:30:41 PM »
 :rant;...For those of you who think Matchingdonor.com is a scam...IT IS NOT....I joined today for only $49.00 for a trial period of 7 days and got results immediately....The second call I made we have a potential donor...I talked to the person he is very excited as we are....nothing is 100% positive....but sure hope this one is....so for those of you who need a kidney...believe me...it's worth a shot....they give you a list of donors as soon as you join and you start contacting them....The first lady I called ...she apolized and said she was aready commited to give one and the second call I made...said he was ready....and we are 3000 miles away....Good luck to all...
Logged
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #5 on: April 19, 2010, 08:29:37 PM »
Pistoltart, I am really interested to hear more about your experiences with matchingdonor.com.  What do you say to the potential donor when you call them?  What did you say in the profit you posted online?  Please tell us more!  Are you sure your transplant center will accept a donor acquired in this manner?
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!
« Reply #6 on: April 19, 2010, 08:36:50 PM »
Pistoltart please go to the introduction section and tell us a little about yourself. 

Thanks,

Rerun, Moderator              :thx;
Logged
Zach
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4820


"Still crazy after all these years."
« Reply #7 on: April 23, 2010, 02:27:51 PM »
Caveat emptor.

8)
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
BASSMAN
Full Member
***
Offline Offline

Gender: Male
Posts: 222


WWW
« Reply #8 on: April 23, 2010, 03:09:40 PM »
Quote from: pistoltart on April 19, 2010, 07:30:41 PM
:rant;...For those of you who think Matchingdonor.com is a scam...IT IS NOT....I joined today for only $49.00 for a trial period of 7 days and got results immediately....The second call I made we have a potential donor...I talked to the person he is very excited as we are....nothing is 100% positive....but sure hope this one is....so for those of you who need a kidney...believe me...it's worth a shot....they give you a list of donors as soon as you join and you start contacting them....The first lady I called ...she apolized and said she was aready commited to give one and the second call I made...said he was ready....and we are 3000 miles away....Good luck to all...

3000 miles away,  hmmmmm.  North, South, East or West and from where???  It is 3000 miles west coast to east coast across the US.

My guess is south, down in some Central American country.  El Salvador, Nicaragua. Anyone look up his IP?
Logged
Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #9 on: April 23, 2010, 06:22:17 PM »

It is east coast of US.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
DialysisGoneFOREVER
Full Member
***
Offline Offline

Posts: 197
« Reply #10 on: February 21, 2016, 12:50:14 AM »
Matching donors is mostly a SCAM! They give you NO help and it's just like putting an ad in the paper. The donors can simply DELETE their price at ANY time if they get scared or cold feet! I sent out around a 1000 messages over 3 years and got ONE person to get tested but she was ruled out for medical reasons. I had HUNDREDS just LIE and DECEIVE you! They guy who runs it is an evil demon who yells and curses!
Logged
kristina
Member for Life
******
Offline Offline

Posts: 5530
« Reply #11 on: March 01, 2016, 01:28:33 AM »
Quote from: Zach on April 23, 2010, 02:27:51 PM
Caveat emptor.

8)


Thank you Zach, you have said it all and I could not agree more !!!  :grouphug;
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!