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Author Topic: Why is it. . .  (Read 33528 times)
Rerun
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Going through life tied to a chair!

« Reply #50 on: November 29, 2009, 06:25:01 PM »

Hurlock1 you almost had me convinced that you knew what you were talking about until you blew the "Epogen has been around for 30 years".  Do your homework, or shut the hell up!

                   :sir ken;
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Rerun
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Going through life tied to a chair!

« Reply #51 on: November 29, 2009, 06:36:59 PM »

Can't this be Logged er I mean Merged with the other topic.  It is about the same thing.

  Why is it that..... I don't understand....    :'(   :'(   :'(
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okarol
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« Reply #52 on: November 29, 2009, 07:38:24 PM »


Topics Merged in  Site Requests, Comments, Technical Help - okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #53 on: November 29, 2009, 08:29:04 PM »

Hurlock1 you almost had me convinced that you knew what you were talking about until you blew the "Epogen has been around for 30 years".  Do your homework, or shut the hell up!

               

Rerun, I don't think it is necessary to take this tone with Hurlock.  He has put his view forward without being rude.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Rerun
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Going through life tied to a chair!

« Reply #54 on: November 29, 2009, 09:32:50 PM »

Wrong is Rude!  This site isn't about giving your opinion about FACTS!  People who don't know better read that and then repeat it. 

HERE:

--Epogen: Approved in 1989, the drug stimulates red blood cells production to help treat anemia.

Free Library Website

I'll add that although it was approved in 1989, some units didn't start using it until well into the 1990's.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #55 on: November 29, 2009, 10:50:00 PM »

I have no problem with you disagreeing with Hurlock Rerun, but do you really need to say 'Do your homework, or shut the hell up!'?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
paris
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« Reply #56 on: November 30, 2009, 09:19:47 AM »

Rude is saying to me "who are YOU to log a conversations"    I don't know what he was talking about, but he doesn't need to take that attitude with someone who wasn't saying anything about him.    Maybe we need a tutorial on forum lingo and words   :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Rerun
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Going through life tied to a chair!

« Reply #57 on: November 30, 2009, 07:45:36 PM »

To me he set the tone.  Maybe I should be "above" that, but I'm not.
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pelagia
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« Reply #58 on: November 30, 2009, 08:10:52 PM »

It used to be so calm and serene around here  8), but now it seems that every time I log there's a brouhaha a brewing.  :rofl;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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« Reply #59 on: November 30, 2009, 09:02:56 PM »


pelagia,
In the days of Epoman there always seemed to be a battle going on. He took members to task and did not mince words. You'd witness some pretty spirited debates! It was something to see! :popcorn;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MIbarra
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Stopping to smell the bluebonnets

« Reply #60 on: November 30, 2009, 09:04:18 PM »

Ok.. I mean no disrespect and I'm sure I'll be smacked and told to stay on topic  :Kit n Stik;;D but... shouldn't mods set the level of respect and the tone for the boards? It's kind of like if I went into my classroom and treated my kids with disrepect, I'd have to expect the same in return. I know that we are all adults here and not kids; however, I just wish there was a bit more decorum here and more tolerance for mistakes.   :stressed;

When I see such rudeness, I just want to  :banghead;.
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Cadaver transplant April 29, 2007
okarol
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« Reply #61 on: November 30, 2009, 09:25:03 PM »

The whole idea of this forum is for people to speak what they feel. We did not chastise Hurlock for saying that our admins are taking bribes from Amgen, or that "BIG BROTHER IS WATCHING YOU" or that the moderators were moving his posts to where they weren't as visible as more frivolous posts, in his opinion, which is not true. Rerun was one of the very first mods on IHD and Epoman chose her because he liked that she spoke her mind and was not afraid to have an opinion. That being said, I do think we should try to set a standard, but we are all human.
« Last Edit: November 30, 2009, 09:27:05 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!

« Reply #62 on: November 30, 2009, 09:35:33 PM »

If I were being paid, like a job, then I would have to be nice to my customers.  But, let us recap what happened.

Person "1" had it ALL wrong and instead of PMing one of the administrators or Mods, Person 1 took it online and "accused" the management team of favoritism and of logging posts which makes no sense.  When the management team tired to explain the way things work eg....  when topics get posts they stay on top Person "1" kept on complaining and accusing.  Person "1" also degraded other topics such as "Ignorant things people have said to you".  This topic was started by Life On Hold (August 19, 2005) she is now gone.  I love that thread.  It makes me laugh and it is also so so true about people who do not understand dialysis.

I'm sorry if I'm protective of this site and the people who started it and keep it going.  Knowing that about me.... don't push me.   :urcrazy;

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MIbarra
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Stopping to smell the bluebonnets

« Reply #63 on: December 01, 2009, 04:15:38 PM »

  Knowing that about me.... don't push me.   :urcrazy;



I'm not quite sure what you mean by saying "don't push me".  I think that tone is quite unecessary when I have not been disrespectful to you.. ?
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Cadaver transplant April 29, 2007
kitkatz
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« Reply #64 on: December 01, 2009, 04:32:11 PM »

I am setting out the lawn chairs and making lemonade. This ought to be a good one!  :popcorn; :popcorn;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
dwcrawford
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Getting the heck out of town.

« Reply #65 on: December 01, 2009, 04:38:45 PM »

Can you put a little rum in the lemonade?
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
MIbarra
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Stopping to smell the bluebonnets

« Reply #66 on: December 01, 2009, 04:45:40 PM »

I would prefer vodka.
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Cadaver transplant April 29, 2007
hurlock1
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« Reply #67 on: January 12, 2010, 07:07:09 PM »

Hurlock1 you almost had me convinced that you knew what you were talking about until you blew the "Epogen has been around for 30 years".  Do your homework, or shut the hell up!

                   :sir ken;
I read that epogen had been around for 3 decades. I think that that's close to 30 Years
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okarol
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« Reply #68 on: January 12, 2010, 09:10:56 PM »

From Wikipedia:

In 1985, Lin et al. isolated the human erythropoietin gene from a genomic phage library and were able to characterize it for research and production. Their research demonstrated that the gene for erythropoietin encoded the production of EPO in mammalian cells that is biologically active in vitro and in vivo. This opened up the door for the industrial production of recombinant erythropoietin (RhEpo) for treating anemia patients.

A clinical trial was held at the Northwest Kidney Centers for a synthetic form of the hormone, Epogen produced by Amgen. The trial was successful, and the results were published in the New England Journal of Medicine in January 1987.

In 1989, the U.S. Food and Drug Administration approved the hormone, called Epogen, which remains in use.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #69 on: January 12, 2010, 09:24:39 PM »

Hmm same time frame new insulin was developed other than using pork and beef. It seems like it wasn't that long ago that these meds where developed
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
dwcrawford
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Getting the heck out of town.

« Reply #70 on: January 13, 2010, 05:33:58 AM »

21 years?  25 years? 30 years?  "Shut the Hell UP"?  That's classy.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
hurlock1
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« Reply #71 on: January 14, 2010, 04:02:37 PM »

Alos Hurlock, don't forget a loy of us aren't Americans so this is not an issue for us.  My government pays for EPO here, so I am unlikely to read a long post about EPO or health care issues in general.  That's not to say it's not incredibly important - it's just not important to me.
One way or the other, somebody's paying, If the drug costs so much and they are the only people making the drug, they can and do charge however much that they can.
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