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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: General Discussion
Just what is it with me ?
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Topic: Just what is it with me ? (Read 2710 times)
KICKSTART
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Just what is it with me ?
«
on:
November 09, 2009, 08:46:18 AM »
Ok so i ve just had phone call, an appt has been made for next Tuesday to have my Tenchof out, no big deal you say but .. from what i have gathered from everyone on here and my own Neph its a DAY procedure , in in the morning , out by teatime. So WHY are they insisting i GO IN on Monday !!!! and wait around all day , to have it done the next day ? I just f'ing dont believe it! They really are pushing me to the limit that im seriously thinking is all this worth it ? Nothing is ever straight forward for me . I have explained that i have to get my mum to my house if thats the case and not only that, its the cost !!!! It costs me £40 in taxi's to do this and i dont have an income now. Last week their almighty cock up cost me £70 in total , £40 for my mums taxi's and £30 for me to get home that night , its money i just dont have. I asked WHY do i have to come in the day before and was told , well the doctor likes you to be here the day before (no medical reason at all , just his whim !) I also mentioned sedation and was told , oh its done under a local. I said i know but seeing how bad a time i had with my tunnel line i wanted some sedation but was told again , oh its just done under local. I dont know how much more my nerves can take , and again it falls on a dialysis day , which i think is too much for anyone to take , dialysis , then surgery. I tell you i am so p***ed off right now , i feel like saying stuff it , ive had enough of you all.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Darthvadar
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Re: Just what is it with me ?
«
Reply #1 on:
November 09, 2009, 09:43:33 AM »
Oh for God's sake!... Poor KS... As if you haven't got enough to be worrying about...
Is there a Patient Liason Officer in the hospital???... Give them a call, and ask for their intervention... They may well have a chat with your doc, and see if, in the circumstances, he'll do it as a day case... Also it may be time to be a B with and itch, and
insist
on the sedation... You've been stressed enough with this whole TenchKoff thing, and a little bit of relaxion while it's coming out is the very least you deserve...
By the way, ask the Patient Liason Officer if there's any help available towards the additional costs you've had as a result of the last cock-up... The least they can do is cover the taxi costs...
Hope it all goes well for you...
God bless...
Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
KICKSTART
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Re: Just what is it with me ?
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Reply #2 on:
November 09, 2009, 10:27:22 AM »
Thanks Darth , i didnt even know about a P.L.O . Im at dialysis tommorow so i will find out , i tell you its getting beyond a joke now ! Anymore of this crap and somethings gonna give . Its not the procedure, its the whole ..why do I have to go in a day early just to sit around thing, thats getting to me. (and the expense!)
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Darthvadar
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Re: Just what is it with me ?
«
Reply #3 on:
November 09, 2009, 10:34:22 AM »
I'm not one bit surprised that you're at the end of your tether, KS... I'd be like a ballistic missile at this stage!...
The VERY least the hospital should do is cover the additional costs that you've had because of their ineptitude!... If the PLO's not available tomorrow, speak to the Social Worker... Let's get this sorted!...
The very best of luck with it all... Let me know how it goes with the PLO...
God bless...
Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Goofy
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Re: Just what is it with me ?
«
Reply #4 on:
November 09, 2009, 02:36:31 PM »
Kickstart, I just don't know how you get through each day. You are a lot stronger then you think you are. I wish I could help you in some way. If there is anything I can do from "over here", please let me know.
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KICKSTART
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Re: Just what is it with me ?
«
Reply #5 on:
November 10, 2009, 02:30:14 AM »
Thanks Goofy , thanks Darth , maybe we could all get our
on and get all these awkward nurses and doctors in a room !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
billybags
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Re: Just what is it with me ?
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Reply #6 on:
November 10, 2009, 09:00:31 AM »
So here you go again ! What a pain in the ar**. Do they not do DAY SURGERY at that hospital? Why should you have to go in a day early and why do they always choose a dialysis day, why do they always cock it up? Questions, questions. OK you can deal with this, you know you can after all the other crap. I now think of our lives as being on a big dipper, there are more dips than highs. Just another dip for you.
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MissyKew
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Re: Just what is it with me ?
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Reply #7 on:
November 12, 2009, 07:57:20 PM »
(((((((((((((((((((((((((Kick)))))))))))))))))))))))))
Ask your social worker or patient liason if they know of any volunteer driver services for people who are sick, who are without transportation, who need to get to the hospital and appointments. My state here in the US has one and it is awesome. Without it, I would be in dire straits getting to dialysis. Also ask if there are any taxi companies that might donate travel to people like you. If the social worker doesn't know of any, ask her to call companies and ask them if they would donate the ride to and from the hospital. The worst they can do is say no.
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whiskeyfrank
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Re: Just what is it with me ?
«
Reply #8 on:
November 13, 2009, 05:43:32 AM »
Kickstart
I had a small procedure last month, and yet again had to go in the day before. I asked why i keep having to waste days for small procedures this is what i was told by 4 different staff (UK Hospital)
1. Its so we can swab for MRSA
2. Its so we know your here and that youve turned up
3. No idea seems stupid to me
4. So we can plan beds
So there you go from the horses mouth. I turned up at 8.30pm after evening meal, still the day before!
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PKD - diagnosed 1986
Fistula added July 2009
Bilateral Nephrectomy Oct 2009
Fistula Failed Oct 2009
HD started Oct 2009
Live donor from mum Jan 4th 2010
mum and me both great
Started a blog on my condition from stable now to Living Donor transplant (hopefully)
My Blog -
http://pkddiary.blogspot.com/
KICKSTART
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Re: Just what is it with me ?
«
Reply #9 on:
November 13, 2009, 07:41:27 AM »
Its
isnt it !
1) swab for MRSA 10 seconds
2) hello its morning im here !
3) every idea seems stupid to me !
4) You have booked me in for the op , so surely you have got me a bed? or would you just like me to lie in the waiting room while i recover !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Poppylicious
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Re: Just what is it with me ?
«
Reply #10 on:
November 13, 2009, 11:22:03 AM »
Quote from: KICKSTART on November 09, 2009, 08:46:18 AM
I tell you i am so p***ed off right now , i feel like saying stuff it , ive had enough of you all.
Ha! I think my Blokey may well have just done that to the dialysis staff tonight ...
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- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
KICKSTART
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Re: Just what is it with me ?
«
Reply #11 on:
November 13, 2009, 11:48:27 AM »
Why ? what has happened ? pm me if you want to .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
kitkatz
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Re: Just what is it with me ?
«
Reply #12 on:
November 17, 2009, 08:15:07 PM »
Some serious
needs to be applied to these people you are dealing with!
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Take it one day, one hour, one minute, one second at a time.
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