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Author Topic: Phosphorus Turn-Around Time  (Read 11681 times)
Mizar
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« Reply #25 on: November 15, 2009, 04:01:19 PM »

Well, this is Weird. I just looked at my Husbands, Monthly, ( Report Card ) and His Phosphrous Level is so High, it's off the Chart and into the Margin of the Paper. I asked Him, If He, ever has Itching, and He said, " No "  and looked at Me, like I was Crazy. I try so hard to understand, these Symptoms, but they seem to differ, so much, from Person to Person.
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JScott1753
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« Reply #26 on: November 15, 2009, 09:35:04 PM »

  When my fistula started to give up last December, my phosphorus started creeping up. They started me on calcium acetate(think that was it) for my binders. And raised treatment time from 3 hrs. to 4 hrs.
  Second month in, I was changed to Renegel, since that was what the pharmacy had changed to.
   Got a real lesson this month when, after a phos. of 7 last month, I really made sure to take the binders, including an extra one with meals if there were any high phos. foods(taking 4 instead of 3).
  Results? In my labs last week, I had gone from phos. reading of 7 to 4.6(4.5 being midpoint of "good range").
  Hopefully, keeping this up a month or two more will get treatment time back to 3 hours!
  So, a change can be made in a month.
  Jon
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*kana*
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« Reply #27 on: November 16, 2009, 04:27:23 PM »

Well, this is Weird. I just looked at my Husbands, Monthly, ( Report Card ) and His Phosphrous Level is so High, it's off the Chart and into the Margin of the Paper. I asked Him, If He, ever has Itching, and He said, " No "  and looked at Me, like I was Crazy. I try so hard to understand, these Symptoms, but they seem to differ, so much, from Person to Person.

Mine was 8.5 and I didnt itch at all.  I did notice my eyes were dry but thats it. 
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #28 on: November 16, 2009, 04:29:22 PM »

Mizar what was the phos level?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Mizar
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« Reply #29 on: November 16, 2009, 04:52:08 PM »

Hanify, His Chart, only goes to 7.0 and His Score, was Way Beyond that, Right at the Margin of the Paper, like They, had to put down Something. I Asked Him, about the Itching, the Dry Eyes and He says " No, Nothing of the sort "  He's Symptomless! I don't know if that's a Good thing or a Bad thing.  :urcrazy;
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galvo
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« Reply #30 on: November 22, 2009, 11:17:26 PM »

After 3 weeks on Dialysis, and a month on a binder, my phosphorus went from 2.26 to 1.22. This is based on a range of mmol/L 0.75 to 1.40. So, bad to perfect very quickly. I nave also been following my renal diet pretty closely.
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Galvo
RichardMEL
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« Reply #31 on: November 23, 2009, 02:17:39 AM »

great work! It does show that being good with binders and the diet can affect your labs quite dramatically. That's sensational!!!

 :bow; :bow; :bow; :bow; :bow; :bow; :bow; :bow; :bow;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
amanda100wilson
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« Reply #32 on: November 23, 2009, 06:58:00 AM »

If your phosphate level is out of wack for a prolonged length of time, it will result in your parathyroid gland kicking out more parathyroid hormone which will also effect your phosphate level.  the long term effect of having the parathyroid gland work overtime is that it enlarges in size, which causes it to kick out more PTH which causes more abnormality in the calcium/phosphorous levels in the blood, essentially a vicious circle, alleviated either by a parathyroidectomy or taking sensipar to chemically control it.  Your situation may just be too much phosphorous in, not enough being taken out by dialysis.  My phosphorous and calcium have been high recently and it took adjustments on my dose of sensipar and on my alphicacidrol to get my PTH and also by calcium and phosphorous down.
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ESRD 22 years
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  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

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