Dialysis patients with Ileostomies

[MomInDialysis]

Are there any dialysis patients out there with ileostomies? 
How do you handle the 3 - 4 hours in the chair and not having to evacuate your appliance?
Have you experienced internal shaking and pain (like electrical shocks) after the 1st hour of dialysis?
What are some of the unique affects you feel are directly related to your illiostomy?

Also, if you are diabetic, how do you handle not eating for 5 - 6 hours.  mom eats around 7:30, travels to the dialysis center is hooked up around 10:30, then doesn't leave until after 2:00, usually around 2:30.  She cant eat between 7:30 and 10:30 because it causes her bag to fill while in the chair.

I think this may have to do with my Mom's problems she is having.  Please share your experiences with us.

Thanks
Debe

[brmoore]

Hi Debe:
    I really can not answer any of your questions but am concerned with the same problem. I have had an Illeostomy for over 36 years but am still in the pre-dialysis stage (GFR 15). Aside from the evacuation problem I see no physical reason for any other complications from having an Illeostomy. As far as evacuation of the appliance, I have learned in 36 years how to control output by watching what I eat and when I eat so that I can go many hours without having to empty.
    Years ago there was a company that made very large appliances. They allowed you to go pretty much the whole day without having to empty. Have to find out if they are still in business.
                                                                      Bruce

[MomInDialysis]

Thanks Bruce.  Mom has pretty good control of her output as well, one problem though is that due to not eating prior to dialysis she tends to have bloodsugar drops.  She eats around 7:30, has a small meal, very small meal.  When they hook her up around 10:30 - 11:00, and don't get her disconnected until after 2:00, she tends to suffer from sugar drops.  Just wondering how others handle this.

[Gramapat]

I have a colostomy but my output is more like an ileostomy.  I have no control most of the time as to when my bag will fill up.  I have to ask to be taken off so I can use the restroom.  It only takes me about 5 minutes.  So from the time they start taking me off to the time they hook me back up is about 10 minutes which they add to my time.  It's no big deal at my unit.  The techs are very good about letting us use the restroom if we need to.

I am not diabetic but people who are are allowed to eat what they need to so they can keep their sugar levels okay.  She needs to talk to the nurse about her bag filling and being taken off to empty it if need be.  She needs to keep her sugar levels okay!