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Author Topic: paying for antirejection meds  (Read 2039 times)
pdpatty
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« on: August 18, 2009, 06:38:15 PM »

would those of you that have .have had a kidney transplnt tell how you paid for the meds.
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Chris
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« Reply #1 on: August 18, 2009, 11:17:52 PM »

Mostly Medicare now days, but I am also on disability and way past the 3 year mark Medicare normally pays for anti rejection meds.

You also need to think about how to pay for other medications that can come up post transplant and the maintenance meds such as bp and other things. Medicare Part D helps with that, but you also have to choose the right tier group to be in. (gets complicated) If you have financial trouble, look into state, county, and local government programs if your in the US. If you have insurance and a prescription program, it will be cheaper to use their mail order program, but that is the same with Medicare's Prescription program when it comes to anti rejection.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
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Rerun
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« Reply #2 on: August 19, 2009, 12:38:41 AM »

That is the first question they will ask you in the Transplant Evaluation.  How do you plan to pay for it.

Reason #5 for me not being on the list.
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Slywalker
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« Reply #3 on: August 19, 2009, 05:39:45 AM »

I'm working and have employer health insurance.  My insurance has a prescription plan and I use the mail order.  The first six month of meds was pretty pricey even with the insurance.  Now that I'm down to my "regular" meds and just one anti-rejection med (I had a great live match) the co-pay is doable for me.

Good luck.

 :bunny:
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Phraxis
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« Reply #4 on: August 19, 2009, 10:13:31 PM »

time to move to Canada (sorry been following the current healthcare debate in US, and the more I hear the more I appreciate our public healthcare)

PS All drugs are covered by government
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Slywalker
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« Reply #5 on: August 20, 2009, 07:49:05 AM »

One thing I thought of last night was to contact the drug manufacturers.  Most of them have a program to provide meds for people who can't afford it.  When I was hanging out a lot on the breast cancer forums there were several ladies who were provided meds directly from the companies.

Just a thought.

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bette1
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« Reply #6 on: August 20, 2009, 08:27:51 AM »

Many people are able to work after the transplant and use employer health plans.  I did that. 
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
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« Reply #7 on: August 20, 2009, 10:32:12 AM »

Here are some related threads
How to pay for life-long immunosuppressants http://ihatedialysis.com/forum/index.php?topic=4555.0
TRANSPLANT DRUGS: Patient assistance program http://ihatedialysis.com/forum/index.php?topic=8730.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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