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Author Topic: HA !  (Read 5534 times)
KICKSTART
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In da House.
« on: August 14, 2009, 02:10:01 PM »
To think the other week i wrote how i couldnt understand how a woman could choose death over dialysis , well today i fully understand. i cant write now , i cant even speak, im so traumatized over the way i have been treated today. If i can find the strength i will post tomorrow but right now i wish the ground would swallow me up. I need to be with my dogs , i need to hug them  i need the strength to get through till tomorrow. KS
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Darthvadar
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« Reply #1 on: August 14, 2009, 02:46:06 PM »
KS...

I'm SO sorry to hear that you've been traumatised in this way... I'm thinking of how my mum was treated in a similar manner...

Enjoy your time of peace with your pawed people (no better people to chill out with!)...

May God bless and protect you...

Love...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
okarol
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« Reply #2 on: August 14, 2009, 02:48:19 PM »
Ok I am officially worried.
KS - I don't have your emergency contact info so I can't even call you.
Please send me a PM when you can.
I hope you are okay, dear friend.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #3 on: August 14, 2009, 02:55:14 PM »
Kickstart, I hate that this is happening.  We are all worried and concerned.  You have had a very hard time lately.  Sending you love and soft hugs   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #4 on: August 14, 2009, 03:57:52 PM »
Sorry for swearing but it's just shit!  Thinking of you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
KICKSTART
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In da House.
« Reply #5 on: August 15, 2009, 12:19:23 AM »
Another terrible night will get back when i can and update you.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
YLGuy
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« Reply #6 on: August 15, 2009, 01:18:54 AM »
I am sorry. It has to get better soon.  I am still fairly new to this site compared to many.  Does anyone have Kickstart's cell number to call?  If you do, please do so.  A friendly voice can be so much more comforting than all the kind words that are posted here.  Until then please know that our thoughts and prayers are with you.   :grouphug;
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Darthvadar
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« Reply #7 on: August 15, 2009, 01:33:39 AM »
KS...

I'm thinking of, and praying for you... I've never forgotten the help and reassurance you gave me when I was climbing the walls with worry about Mum...

I hope you're soon feeling much better.... Gawd, I hate this disease and the trauma it causes... Even more, I hate the Healthcare system, and some of the individuals who deliver it... The attitude of the professionals can make or break a life!...

May God bless and protect you...

Love...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
twirl
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« Reply #8 on: August 15, 2009, 04:38:30 AM »
find the strength
and you will be back hugging your dogs and feeling their love
hold on
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: August 15, 2009, 08:29:00 AM »
Please know that you are a very valued member of our family :grouphug; and our caring thoughts are with you all the way.  Find strength from our love for you.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
KICKSTART
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In da House.
« Reply #10 on: August 15, 2009, 09:30:02 AM »
Still not well enough to post , back to the hospital tomorrow for more torture (for thats how i see it) Will do a post when i can, to tell you what they have put me through .......
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
peleroja
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I have 16 hats, all the same style!
« Reply #11 on: August 15, 2009, 10:43:11 AM »
We're all thinking about you and wishing you good things.  I'm sending warm fuzzies to tide you over until everything gets better.   :cuddle;
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rose1999
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« Reply #12 on: August 15, 2009, 10:46:32 AM »
Reach out and hold our hands  :grouphug;
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monrein
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Might as well smile
« Reply #13 on: August 15, 2009, 12:44:47 PM »
Thinking about you Kickstart and wishing you weren't going through these bad times.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #14 on: August 15, 2009, 12:56:07 PM »
 :grouphug;
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kitkatz
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« Reply #15 on: August 15, 2009, 10:28:37 PM »
Tie a knot in that rope, and hang on with your teeth if you have to. Also take to knocking heads around to get the right treatment you need!  :Kit n Stik;

Know we care!  :grouphug; :grouphug; :grouphug; :grouphug;
« Last Edit: August 16, 2009, 02:35:08 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #16 on: August 15, 2009, 11:06:42 PM »
hang in there....  :grouphug;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
willowtreewren
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My two beautifull granddaughters

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« Reply #17 on: August 16, 2009, 07:44:29 AM »
Be strong KS!

Thinking of you.

 :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
greco02
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« Reply #18 on: August 16, 2009, 08:32:21 AM »
Don't know anything about the UK but isn't there an advocacy system of some sort that could be called to help KS out in any way?  Something?  Anything?  Cause all we can do from here is extend our virtual hugs and positive thoughts...
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kitkatz
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« Reply #19 on: August 16, 2009, 02:37:52 PM »
Nothing, I mean nothing is fun about dialysis access and the surgery to go with it. I remember the first access I had. It was in the groin area.  In addition the hospital gave me no information on dialysis. I called membership services and they asked me "didn't you get the welcome packet from the dialysis nurse?"  Well I answered:"Hell no!"  They remembered to send one to me two days later.  Sigh. Sometimes they forget you are in a new position and scared out of your wits.   :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Darthvadar
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« Reply #20 on: August 16, 2009, 02:45:26 PM »
Hi KS...

How did today go???...

 :grouphug; :grouphug; :grouphug;,

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Goofy
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« Reply #21 on: August 16, 2009, 04:17:31 PM »
KS, hang in there.  You've gotten this far and I can only pray that each day will get better.
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KICKSTART
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In da House.
« Reply #22 on: August 16, 2009, 07:16:22 PM »
Its 3 AM  and i cant sleep but i got through today . I will post tomorrow (well later today!) and update you.  MY pc seems to be tired tonight and is on a go slow .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23 on: August 16, 2009, 10:11:05 PM »
Hi Kickstart,
I hope you've gotten some rest.
xoxoxox
 :grouphug;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rose1999
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« Reply #24 on: August 16, 2009, 10:17:06 PM »
Still thinking of you  :cuddle;
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