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Author Topic: may was my last post  (Read 9080 times)
boxman55
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« on: July 16, 2009, 04:13:10 PM »

Hi all, The past 3 months have been just brutal. My Father pasted away and I had a number of medical problems. They started with my right ring finger. I got a little cut that would not heal and then got infected. The Doc decided to cut out half the nail with hopes that the infection which was underneath it would drain. Instead it just created a bigger wound that would not heal and so on 4/30/09 they cut the finger off above the middle knuckle. At the same time this was going on I started to get, after many different diagnoses, a case of Epididymitis (inflammation of the scrotum) It was the most painful thing I ever went through. I could not lay down or back the only time the pain would slow was when I sat up. So I never got any sleep I would ride around the house all night just to try and keep the pain at bay. They put me on just about every pain pill there is all the way up to a time release morphine pill. I wound up overdosing on them. I took one and felt no relief so I took another. Well both kicked in and I was kicked in the a.. I was falling out of my electric chair every where, out on the driveway in the kitchen coming down my ramps and so on. I wound up puking my guts out and had to go to the hospital. Also for some reason I could not lay back in my dialysis chair. I would get hooked up and the pain would start ooh would it start. I could only sit up for it to be not so bad but then my BP would drop and the techs where trying to make me lay back but I wouldn't. I wound up cutting my treatments short every time. I just told them to take me off. So now I am losing time at dialysis with no end in sight. To make matters worse I started to develop a urinary tract problem which was not allowing me to pee regular. What urine I make was backing up and cause bacteria to continue to inflame the epididmytis so the pain continued and all I did was live on pain pills I was so out of it all the time. I finally had surgery on the urinary tract and slowly all that went away. back to the finger this whole time the finger was not healing and was always infected and painful. They put me on IV vancomycin (antibiotic very powerful) which was given M-W-F while on dialysis and I am still on it. So to end my diary of the last 3 months I went to the hand Doc today and guess what...the rest of the finger has to come off. Surgery will be next Thursday. The last thing I am dealing with (ooh come on pile some more on) is a problem with my hands shaking it makes it very hard to type but at least they don't hurt. So there you have it thanks for all your thoughts and prayers know that they mean a lot...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Bill Peckham
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« Reply #1 on: July 16, 2009, 04:18:30 PM »

That's a lot to deal with
Sending good thoughts your way Boxman

Voice recognition for the computer? Hate to see your IHD support line down in a time of need.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
okarol
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« Reply #2 on: July 16, 2009, 04:19:17 PM »

 :cuddle; I am sorry about all the difficulties Boxman.
But I am HAPPY to hear from you.
Thank you for the update, I pray things improve for you.
Sending you hugs and love!!  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #3 on: July 16, 2009, 04:25:42 PM »

I am sorry about the loss of your father. I don't know what to say about all the things going on with you. I hope things start getting better. We missed you.  :grouphug;
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David13
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« Reply #4 on: July 16, 2009, 04:26:55 PM »

So sorry to hear about all that you have been through.   :grouphug;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
circleNthedrain
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« Reply #5 on: July 16, 2009, 04:29:00 PM »

This is soooo painful just reading about it.  I hope they can help you with some of this real soon!  We've missed you Boxman.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
dwcrawford
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Getting the heck out of town.

« Reply #6 on: July 16, 2009, 04:32:26 PM »

OMG,  I am amazed at your strength to get through all of this.   And your courage.  A lesser man could never have done it.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
MandaMe1986
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« Reply #7 on: July 16, 2009, 04:42:59 PM »

Well I am happy your back, sad that you have had such a hard time tho.  I just want to give you a really big hug  :grouphug; :grouphug; :grouphug; :grouphug;.  Take care of yourself.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
breezysummerday
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« Reply #8 on: July 16, 2009, 04:50:50 PM »

Lotsa gentle hugs and kisses

Shit, don't ask to 'keep piling it on'
you've been through enough. I know what
you mean:  what else could go wrong?
Keep updating and get a seat belt for
the e-chair, and no more DUI's!

 :grouphug;


 
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
kitkatz
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« Reply #9 on: July 16, 2009, 04:51:28 PM »

It sounds pretty damn awful. I hope things go your way soon!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #10 on: July 16, 2009, 04:56:11 PM »

How wonderful to see your post; although I will say, it made me cringe just reading about your pain.  You have been in all our thoughts and prayers.  And will continue to be until you get through this incredible time in your life.  You have been very missed here. That was a long post! Next time you could just use a smiley icon   :2thumbsup;   Good to see you, Mark.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile

« Reply #11 on: July 16, 2009, 04:57:26 PM »

Boxman, what a truly hellish time you've been going through, every level too, physical, emotional, everything.  I'm so sorry about what's been going on yet so glad to see you here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MIbarra
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Stopping to smell the bluebonnets

« Reply #12 on: July 16, 2009, 05:03:00 PM »

I'm so sorry you have to go through all of this. My husband had epidytmitis before and I know he was so uncomfortable and in pain. I hope you get better soon and surgery on your finger goes smoothly.
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Cadaver transplant April 29, 2007
Sluff
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« Reply #13 on: July 16, 2009, 05:04:32 PM »

Boxman the epidytmitis is terrible. I had it twice many years ago and it was bad. I can't imagine going through that in addition to everything else. Sorry about the finger but it is better than allowing it to get worse.  I will be thinking healing thoughts for you.   :grouphug;
« Last Edit: July 16, 2009, 05:07:30 PM by Sluff » Logged
del
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del and willowtreewren meet

« Reply #14 on: July 16, 2009, 05:10:19 PM »

  :cuddle;  Good to here from you boxman. Sorry to hear about your troubles.  Hope things start to get better soon!!!  Take care.  :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
boxman55
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« Reply #15 on: July 16, 2009, 05:19:31 PM »

 :thx;...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #16 on: July 16, 2009, 05:22:48 PM »

Thinking of you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
paris
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« Reply #17 on: July 16, 2009, 05:25:53 PM »

Boxman, I think you can have a complete discussion using just the smileys!   Here is a hug for you   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jill D.
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« Reply #18 on: July 16, 2009, 05:35:35 PM »

Wow, you have been through the wringer in more ways than one! Hope the surgery goes well (remind EVERYONE who comes within 3 feet of you that their hands must be clean and NO SNEEZING!) Glad you're back.
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
angellady07
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« Reply #19 on: July 16, 2009, 05:51:28 PM »

I'm sorry you've had to endure so much pain. My prayers are with you.  :grouphug;
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Marsh
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« Reply #20 on: July 16, 2009, 05:54:52 PM »

Boxman, take care of yourself and thinking good thoughts for your surgery next week.
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willowtreewren
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« Reply #21 on: July 16, 2009, 06:13:04 PM »

Oh, Boxman.

I shudder to think of all the trouble you have experienced. I hope that you are firmly on the road to recovery!

Healing thoughts and hugs.  :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
charee
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« Reply #22 on: July 16, 2009, 06:17:08 PM »

Bugger hope things start to improve Boxman :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
willieandwinnie
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« Reply #23 on: July 16, 2009, 06:23:18 PM »

 :cuddle; Oh boxman, I am so sorry for all that you have been through. I wish I lived close by to come help you out of just sit and talk. I had tears in my eyes reading your post. You have had a lot on your plate and I pray things will continue to get better. Your in my thoughts and prayers.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Calvin

« Reply #24 on: July 16, 2009, 06:28:25 PM »

Boxman,

Its ironic that you are posting today because just a few days ago (I have not been online much either) I was thinking about how YOU were doing?  WHEW!!!!  You sure have been through hell and back, haven't ya bud?   I feel bad for ya and I do hope you can somehow get through it all.   You seem to have a fairly good attitude about it all tho but maybe that is still part of the pain pills kicking in!   ;)   Please do let us all know how the surgery goes next Thursday.   My thoughts and good wishes are being sent to ya!    :bestwishes;   :cuddle;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
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