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KICKSTART
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« on: July 02, 2009, 05:49:47 AM »

going round in circles! For weeks i havent felt right  but cant pin it down to any one thing , it also ties in with my change to APD, but anyway today was clinic appt day ! woohoo! What a waste of time, firstly i had my usual run in with the nurse that does the clinic , for some reason she just doesnt like me! (who cares!) Then after waiting for an hour i get sent in to see a doctor i have never seen before, doesnt know anything about me ..clueless! Tell him the problems ive been having with binders , waiting for iron, totally no energy etc etc .Guess what , he turns round and tells me ..now wait for it ...wait for it ... i need a binder my phos is too high , he will call the venofer clinic to arrange iron and see me in 6 weeks time .....Hello , did i not just tell you all this myself?  Then i had to go to the Cardio unit to get a 24 hr monitor put on my heart ( it likes to do the samba occasionally!) which the doctor asked for in MAY !!! ( no hanging about there then!) So ive come home not knowing why i feel so lethargic and no answers to any of my questions..i wonder why i bother sometimes!!!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
twirl
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« Reply #1 on: July 02, 2009, 05:56:17 AM »

Don't you get sick of...... YES    :stressed;  sick of everything  :stressed;
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monrein
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Might as well smile

« Reply #2 on: July 02, 2009, 07:07:43 AM »

...the amazing pettiness that seems to pre-occupy so many people.  The pervasive cult of elevating silly superficiality to the status of the deep and the meaningful.  I'm all for wasting time, having fun, being useless, getting lost in the trivial but meaningful it isn't.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chalice
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« Reply #3 on: July 02, 2009, 09:06:36 AM »

It seems that when one thing aggrivates you, it all snoballs from there. One thing after another. Sometimes it is hard to remain positive when everything seems so negative. I bet it's nice to come here and find that people know what you are talking about. Sometimes medical professionals don't know and don't care, it is a sad fact.
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We do what we have to do until we know what we are doing.
marti824
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« Reply #4 on: July 02, 2009, 02:04:47 PM »

I had to talk to the hospITal toDay, preliminary questions for my test on Monday.  I am sick of having to list all of my medications and all of my surgeries and having to hear the nurse, or what ever, tell me how sorry she is, and tell me how much I've been through, don't I know how much I've been though? I do appreciate the sympathy, but sometimes, just shut up.
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kitkatz
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« Reply #5 on: July 03, 2009, 06:44:21 PM »

I know if one more doc asks me the same questions then nurse just asked me I am going to scream "Read the damn chart!"
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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YLGuy
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« Reply #6 on: July 03, 2009, 07:16:10 PM »

On Monday I was very excited to have the stitches removed from my chest where the catheter was.  During dialysis the nurse comes over to remove them.  He is working away at them and finally says that they are removed. Yay!  Tuesday I feel the wound and there is something poking me.  I look in the mirror and I see a little bit of suture sticking out of my skin.  I get out my tweezers and pull.  A long section of suture comes out.  The nurse had made to cuts on the stitch and just took off the top.  (I have removed MANY stitches from animals so I know how to remove them)  Wednesday after dialysis I take the nurse off to the side and ask did you cut once and pull them out or did you cut twice and leave the suture under my skin.  He says once.  I said well on at least one of the stitches you did not do that because I removed it myself.  He denies that I did that and I pull out a baggie with the suture in it.  He turns white and runs over and gets a wipe to wipe down my wound.   :oops;  I ask him if he did the same thing to my other stitch.  I only had 2.  He says that he did the other one correct.  I tell him that I am very concerned because of the risk of infection in the other suture was left in there.  He swears that the other one was done correctly.  Sure enough...I just pulled the other suture out.  There are a couple of things about this that bother me.  1-If you don't know how to do something, speak up.  Don't just wing it when my health is on the line.  2-When I asked him about how he did the procedure he lied.  That is what bothers me the most.  I Hate being lied to.  I was trying to be nice when I took him off to the side.  Everyone makes mistakes.  The fact that he lied to me is a real concern so now I have to speak with the head nurse on Monday morning.  It just so happens that a chair opened up at a center much closer to my home and Monday is my last day at that center.    :banghead;
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angellady07
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« Reply #7 on: July 03, 2009, 07:54:56 PM »

Yes ..... Doctors get paid to tell you they don't know what to tell you.
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Jean
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« Reply #8 on: July 03, 2009, 11:36:26 PM »

Wow, what a story. That is truly scary and I am so glad you had the option to change clinics.
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One day at a time, thats all I can do.
kristina
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« Reply #9 on: July 04, 2009, 01:31:45 AM »

Hallo,YLGuy, what a story!
It sounds frightening. Just imagine
what would have happened had you not known
how to take it out yourself and save yourself
from the risk of infection!
I am so glad you have the option and you can
use the services of another clinic now.
All the best from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
KICKSTART
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In da House.

« Reply #10 on: July 04, 2009, 03:05:29 AM »

And we have to put our lives in these peoples hands !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Rivy
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« Reply #11 on: July 06, 2009, 04:30:04 PM »

This is the same stuff reading made me feel a little dajaview.  I feel for you and me and every one that goes through this.  I feel that our clinic nurse don't care one way if you show up here or not. I missed a treatment and she does'nt care or notice.  Right the nurses are gabbing and gossping where Mostof the patiebts haven't got therem meds.  It's now been 2 hours and they are stiil talking with 6 vistorshere theyare'nt showing a good example.  Don't feel bad ,but AKC is the same way.  I need my Epo and the nurses here don't care only to talk aboutwhat T. V. show they saw.  I do get pessted.  So I'm in "who cares" as well.  :puke;
going round in circles! For weeks i havent felt right  but cant pin it down to any one thing , it also ties in with my change to APD, but anyway today was clinic appt day ! woohoo! What a waste of time, firstly i had my usual run in with the nurse that does the clinic , for some reason she just doesnt like me! (who cares!) Then after waiting for an hour i get sent in to see a doctor i have never seen before, doesnt know anything about me ..clueless! Tell him the problems ive been having with binders , waiting for iron, totally no energy etc etc .Guess what , he turns round and tells me ..now wait for it ...wait for it ... i need a binder my phos is too high , he will call the venofer clinic to arrange iron and see me in 6 weeks time .....Hello , did i not just tell you all this myself?  Then i had to go to the Cardio unit to get a 24 hr monitor put on my heart ( it likes to do the samba occasionally!) which the doctor asked for in MAY !!! ( no hanging about there then!) So ive come home not knowing why i feel so lethargic and no answers to any of my questions..i wonder why i bother sometimes!!!
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