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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: General Discussion
Medicare only
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Topic: Medicare only (Read 1954 times)
BRANDY
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Posts: 243
Medicare only
«
on:
June 17, 2009, 03:23:50 PM »
If you have medicare only will you still be able to get a transplant? I was given papers for a double transplant --- kidney and pancrease. I was told it would be about $100000.00 that would be $20000.00 wouldnt it Theres no way I can pay that I am having trouble with bills now . So what do you sugest I should do Is there somewhere I can get help? I dont have any insurance
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Adapt and Overcome
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
Im diabetic with neuropathy, ckd ,bad back bad neck
Rerun
Member for Life
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Posts: 12242
Going through life tied to a chair!
Re: Medicare only
«
Reply #1 on:
June 17, 2009, 06:24:49 PM »
You need to ask you transplant financial coordinator about that.
Kidney patients are lucky to even have medicare. Heart and liver transplants are on their own.
That is the first part of the transplant workup "can you afford the transplant"
Who except Bill Gates could actually afford the transplant and related anti-rejection drugs?
You will probably have more help then you think. Call your transplant financial coordinator.
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Chris
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Posts: 9219
Re: Medicare only
«
Reply #2 on:
June 17, 2009, 11:31:14 PM »
Brandy, do you have any other diabetic complications? I can't remember if you do from previous post. If so and even if you are working, you should be able to get Medicaid from your state. If your not working and can't, apply if you haven't for SSDI (Social Security Disability Income) and NOT SSI (Social Security Income) which is less money towards you. Since you have Medicare, you will be able to get medications with Part D coverage, Part B for Immunosuppressants) at a low cost depending on plan, and tier group. Most of my meds are between $1.10 to $3.20, although some can be $20 and up (highest is $80 if going thru local pharmacy/ cheaper if using Medicare mail order service plan). Next thing to do is to look on the web of your county's health services and programs. There are also some organizations that will help pay for your hospital stay. Start off by looking into your areas NKF website, local transplant support groups. There is help out there as long as you know where to look and in some cases the social worker is oblivious to it. As for the cost of transplant, expect a higher price due to possible complications post surgery. It is hard to tell what the real cost will be because we are all different, but the price given seems to be low balling it.
I'll try to come up with some links before my eye surgery next week, there is one that comes to mind, but name escapes me for usefull information.
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
BRANDY
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Posts: 243
Re: Medicare only
«
Reply #3 on:
June 18, 2009, 02:59:41 AM »
thank you that is a start. If I find out anything I will be sure and post for others, maybe it will help others also. again thatnks for reply
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Adapt and Overcome
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
Im diabetic with neuropathy, ckd ,bad back bad neck
Chris
Member for Life
Offline
Gender:
Posts: 9219
Re: Medicare only
«
Reply #4 on:
June 21, 2009, 04:25:38 PM »
Brandy, here is some other advice after I recieved some information in the mail from the maker of Prograf (Anti-Rejection). If you sign up on line from some of these drug manufactures product support websites, they will send you information. Prograf has
www.transplantexperience.com
, CellCept has
www.cellceptforliving.com/
and then ther is
www.transplantliving.com
that is patient oriented pre and post transplant. The Prograf patient site sent me in the mail information on a disc that showed a link that can help people with paying for transplant.
National Foundation for Transplant
5350 Poplar Avenue
Suite 430
Memphis, TN 38119
www.transplants.org
The nonprofit organization offers a program of healthcare and financial support services and patient advocacy for transplant candidates, recipients, and their families.
I haven't fully looked at the CD yet though, but saw this while exploring the links provided on there.
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
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