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Author Topic: Dear So and so, thing, pharmacy, doctor, insurance rep, tech, neph, husband?  (Read 5083 times)
breezysummerday
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« on: June 09, 2009, 10:47:27 PM »



Dear Fred Meyer Pharmacy:

Sorry you don't have incremental prescription
bottles.  I needed the entire bottle of Kionex
to provide the entire crew of IHD banana
pancakes for at least a week anyway.

Will keep your mathematical skills in mind.

Sincerly,

won't go there unless it's an emergency



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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
BigSteve
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« Reply #1 on: June 10, 2009, 01:45:20 PM »

Being on PD my potassium is low. I'm ready for lots of banana pancakes, but without the Kionex.
Where is the Northwest do you live?
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
If it's too big to fail, it's too big to exist.
breezysummerday
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« Reply #2 on: June 11, 2009, 12:18:06 AM »

North of Northwest?
Anchorage AK



Dear Little White Dog:

Who taught you to roll in the dirt?
In dog years, you are 4.  In that time
you have never ever rolled in the dirt.
What's up?

Signed,
the Shampoo scrub

Anyways, I hope that I can start a new thread.
Please add a 'letter' if you have one.

MODS: maybe this thread should be moved to:
general discussion?

Please share.........
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
greco02
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« Reply #3 on: June 11, 2009, 06:58:45 AM »

Dear Doctor (Endocrinologist),

It would be nice if your staff were polite to me when I call for information or to get a letter, prescription refill or advice.  Please inform them that part of your salary comes from my healthplan (which is another letter) and would it kill them to say ' it would be my pleasure to help you' or 'thank you' or 'I will have someone call you back' AND THEY DO  :clap;.

I am so tired of your poor customer service and your 'oh well' attitude I could spew.  But, you are on my plan and I am not permitted to go outside of the plan for care at the world renown specialists in Los Angeles, so could we all just get along?

Sincerely,
Your dying patient.
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Rerun
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Going through life tied to a chair!

« Reply #4 on: June 11, 2009, 07:37:36 AM »

Dear DSI Customer Hotline,

At my clinic (just one of your 100) we have no 15 or 16 gage needles or paper tape. 

Please, if your are going bankrupt, just hurry up so we can get bought up by DaVita.  At least they have supplies!

Sincerely,

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Deanne
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« Reply #5 on: June 11, 2009, 12:19:30 PM »

Dear Mom,

I know I haven't told you yet that I'm nearing the point at which I'll be sent for a transplant evaluation. It's because I hate it when you treat me like I'm some flimsy little creature who's going to drop dead at any second. I'm still capable of wiping my own rear end and handling life's other necessary (and sometimes fun) activities. I don't exist to be a subject of conversation between you & your weird relatives.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Inara
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« Reply #6 on: June 11, 2009, 01:41:31 PM »

Dear Self,

Quit being so nervous and scared!  The whole world isn't going to end if anything happens to you.  How about you worry about your own damn self every now and then, huh? 

Grow a pair, would ya?

Me
Logged

*Primary Caregiver of Leslie, my best friend.  She's been on dialysis for 9 years.
*Dialysis Nurse for 9 years
*HUGE Sci-Fi fan!! (Yes, I'm a dork)
*Recovery from broken leg.....85% healed and that's the best it will ever be.....a slight limp is kinda sexy, huh?
greco02
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« Reply #7 on: June 11, 2009, 02:52:27 PM »

Dear Spouse (partner,caregiver)

I really appreciate everything you do for me.  Thank you!
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kitkatz
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« Reply #8 on: June 11, 2009, 03:50:43 PM »

Dear Davita Dialysis Center,

     I wanted to say thanks for the very painful tape that was pulled off of my arm last night.  The tape coming off, hurt worse than the needles did going into the arm.  Sheez!  Then more tape, same kind, was put onto my arm. I pulled it off at six this morning and OUCHIE!  At ten this morning I notice still more tape crap on my arm.  Could you PLEASE find the sensitive skin tape you used to have two weeks ago?  My skin and I would appreciate it!

Sincerely,
My Upper left graft arm


Logged



lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Rerun
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Going through life tied to a chair!

« Reply #9 on: June 11, 2009, 04:48:55 PM »

Dear IHD,

This is my 5,000 post!

                               :yahoo;   :flower;   :cheer: 
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Wenchie58
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Always carrying the big silly grin!

« Reply #10 on: June 11, 2009, 05:31:30 PM »

YAYYY! Rerun!!   :clap;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
BigSteve
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« Reply #11 on: June 11, 2009, 05:52:52 PM »

Amazing, Rerun. Way to go.
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
If it's too big to fail, it's too big to exist.
kellyt
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« Reply #12 on: June 11, 2009, 05:59:37 PM »

Dear Whataburger:

I love you.   :-*

Kellyt ~*
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
marti824
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« Reply #13 on: June 11, 2009, 09:02:15 PM »

Dear Mom,

I realize that you are getting older and that you don't drive anymore, and i realize that you can't get out of the house that much, but i need you to realize that i don't feel well.  when i walk in to door after four hours of dialysis, i really don't care if you are out of eggs, i can't turn around and run to the store for you, sometimes you just have to wait, and it's obvious that you don't like that word.  You have to realize that I have a family to take care of too, not just you.  I have a 10 year old son, and honestly sometimes, you're more difficult than he is.  ON the days when I do feel good, I like to get things done, i need to go grocery shopping, and do laundry and things like that, you seem offended if I want to do things for myself and not take you all over town.  I need you to stop treating me like I'm still a child.  Believe it or not, I am a reasonable intelligent, self-sufficient woman.  I held a job until i got sick, and i can still do everything i need to do for my family.  And i still do for you, a lot more than your son does, so i need you to give me a break sometimes.
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Kitsune
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Sometimes the dragon wins.

« Reply #14 on: June 12, 2009, 04:15:40 PM »

Dear Husband,

No, I will not make dinner right when I walk in the door from dialysis! I am exhausted, dizzy and nauseous after 4 hours. This is not a spa treatment (Do I look rested or relaxed to you?!?!?!), and I do not feel like having sex either! Don't grope me, maul me, rub my a$$ or anything else of the sort right when I get home or I will be short with you and you don't want that!

I just want to sleep uninterrupted, but you won't let me do that. Instead, you have to come into the bedroom, grab me and ask me about a bazillion questions then act all mortally wounded when I snap at you. This isn't 20 Questions: The Home Version.

Also, I do not have time to call people and ask them if they want to come over and visit you, nor do I want to. I will not arrange playdates for a 41 year old man!!!! Also, enough with the sports bullsh*t. I really don't care who wins the Finals or whatever, I have enough to worry about already with this dialysis thing.

And stop trying to foist your mother (who talks about me like I am lower than dogsh*it) on me.  I won't like her if I give her a chance, she's been nothing but a flaming See You Next Tuesday to me every chance she's gotten.

No, I can't make you pitchers upon pitchers of iced tea. I am not a short order cook  and I have other things to do than fetch you a blanket. Your legs aren't broken and you're not in a wheelchair, and laziness does not count as a physical disability.

And just because I have a few bucks in my pocket doesn't mean I care to blow it on candy, pop, and treats for you. Money doesn't burn a hole in my pocket the way it does yours.

And, I have other things to do than run up to the TV and see when something is on it for you. Again, you're not iin a wheelchair and your legs aren't broken, do it yourself. It's not that hard.

And I shouldn't be expected to go fetch your prescriptions for you. I don't expect you to fetch mine.

And if you say "pretty please" in that annoying whiny voice when I tell you "no", guess what? The answer isn't going to change, you will only wind up pissiing me off more.

And stop relying on your mother so much, it makes you into a helpless little child. Ever think that's why we haven't had sex in months? It's not me, it's you.

I would leave your happy a$$, but I can't afford the rent and bills alone, so I'm stuck with you.

I Hate You So Much It's Not Funny,
K
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"Run your mouth when I'm not around
It's easy to achieve
You cry to weak friends that sympathize
Can you hear the violins playing your song?
Those same friends tell me your every word"- Pantera "Walk" (1991)
marti824
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« Reply #15 on: June 12, 2009, 04:22:57 PM »

Kitsune,

they are worse than children sometimes.  as i said, my mother is harder to take care of than my 10 year old son is. I wish I had some brilliant words of advise for you, but i think most of us are in the same boat, our families just do not understand what we're really going through.  My brother recently had some laproscopic surgery to repair a hernia in his stomach, the incision was about 2 inches long. he was complaining about the size of the scar that he would have.  I rolled up my shirt sleeve and showed him the scar from my fistula surgery that runs from my arm pit to my elbow and told him to suck it up.
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kellyt
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« Reply #16 on: June 12, 2009, 07:35:40 PM »

marti, it sounds like you and I have the same scar.  Mine, too, is pit to elbow and it didn't heal nice and clean.  It's very ugly.  :(   Now, my transplant scar looks great!  The surgeon did a fabulous job!   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
marti824
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« Reply #17 on: June 12, 2009, 07:40:34 PM »

any scar that is a transplant scar would look great!  I have a bunch of them all over my body, from the permacath, from removing the permacath, from a partial mastectomy, from radiation, i could go on, but the transplant scar is one that I'm looking forward to,i will wear it proudly!
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hurlock1
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THIS MEMBER IS BANNED FROM IHD

« Reply #18 on: June 13, 2009, 08:40:52 AM »

Dear Whataburger:

I love you.   :-*

Kellyt ~*
I love you too Whataburger. . .
jmz
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kellyt
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« Reply #19 on: June 14, 2009, 04:46:27 PM »

Dear Prednisone, Prednisone Makers and anything or anyone having to do with Prednisone:

Kiss my ever growing BECAUSE OF YOU fat butt!  I HATE YOU!   >:(
However, thanks for whatever good you do following transplant.  Now GET LOST!   >:(

kellyt~*
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
tee
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« Reply #20 on: June 15, 2009, 05:29:38 AM »

Dear Dialysis Tech,

Could you please not shove the needles into my arm, as if you were putting a thermometer into a roast beef, it would be greatly appreciated.
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Rerun
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Going through life tied to a chair!

« Reply #21 on: June 15, 2009, 08:47:44 AM »

Kitsuen!!  Glad to see you posting again!    :rofl;   :rofl;

WOW!  Do NOT watch the TV show "Snapped"!!!

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Rerun
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Going through life tied to a chair!

« Reply #22 on: June 15, 2009, 06:20:58 PM »

Dear Stupid Ultrasound Girl,

Do not ask me why I'm there.  You should read my chart and know why I'm there.  Go look!  AND then when you tell me the wrong thing.... LISTEN to me!  He wants both arms done!  Not just the right one!  But, since you wouldn't listen to me I'll probably be back!

Yours truly,

      :waving;
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kellyt
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« Reply #23 on: June 16, 2009, 08:40:39 PM »

Dear Hospital Billing Lady:

YOU work for a TRANSPLANT hospital! You should know that the donor is not billed and is not responsible for squat!  And when I mail you the letter from MY insurance that says they are denying paying for my donor because "they are not on my insurance" you should know IMMEDIATELY what to do!  CALL THEM AND TELL THEM THEY ARE THE DONOR!  FIX IT!

I swear, you and the ladies who work along side of you appear to be the stupidest people on earth!  You drive me nuts!  STOP CALLING ME!


On a side note, the nursing and physician staff at this hospital think I'm the sweetest and most easiest person in the world to get along with.  They love when I come for a visit.  The billing department, however, must think I'm the devil!  They are dealing with me on Prednisone, though.  So they are experiencing the best part of my "roid rage".  Lucky bastards.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
TeenHatesDialysis
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WWW
« Reply #24 on: June 22, 2009, 03:58:44 PM »

Dear Medicare Personnel,

I have been to the Social Security office 6 times and they are all absolutely RETARDED!!!! I had to have several forms filled out for them to discuss my daughter's case with me even though she is a minor and I had supplied birth certificate and ssn, etc. When I finally received all of the documentation that they requested and returned with it, the next person said that information was not required. Ugh, I then received a letter in the mail requesting it. Her medicare was then canceled. I returned and after waiting an hour to speak with someone, she said that they had no record of my daughter's case. I nicely asked to speak to her supervisor and she told me that one wasn't available and she would have me escorted out by security! I am a single mom that works with 2 out of 3 kids that need kidney transplants and I have to deal with this crap. INSANITY!
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
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