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Dialysis: General Discussion
A bit like G-Ma's thread !
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Topic: A bit like G-Ma's thread ! (Read 5189 times)
KICKSTART
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A bit like G-Ma's thread !
«
on:
May 21, 2009, 07:53:39 AM »
I didnt really want to add to that thread as im not really depressed ..just VERY bored!
What can you do on your own? (bearing in mind safety ) I live on my own and dont see anyone or talk to anyone for weeks on end , only the hospital staff. My friends have dropped me cause i cant go out and party and as for my family ..well they havent been in touch with me for ages now, they never have taken my illness seriously and i was just left to get on with it.
I dont feel depressed just very bored , i havent been out of the house for 2 weeks now , ive no where to go and no one to go with. I dont have a fantastic amount of energy at the moment. I was up till a few weeks ago going to the stables everyday, horses are my love! but it proved to much for me , so ive had to stop. Now i just dont do anything , im not artistic , im not an arty/crafty sort of person and my budget is very limited.
Any suggestions would be most welcome because im very lonely.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
swramsay
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My son, Scotland, is my heartbeat.
Re: A bit like G-Ma's thread !
«
Reply #1 on:
May 21, 2009, 08:22:22 AM »
Well........I'll use my Dad as an example because he is for me.
He's 78. Had a triple heart bipass 15 years ago, back fusion from a highschool football injury, knee and shoulder surgery this past year, and takes drugs that make every muscle in his body ache.
He is divorced and lives alone some of the time (when he's not visiting any number of friends or relatives).
He forces himself to be physically active every single day. The other day for example, he got up and played golf in the morning and tennis in the afternoon. He searched for and found an indoor tennis center and signed up to play with anyone that wanted to. Now he plays 2 - 3 times a week. After he played tennis, he came back and spread the rest of the bark on our landscaping - about 5 yards. Today he's going for a bike ride. He likes to ride 10-20 miles along a bike trail that we have in the neighboring town. He is reading a "Seattle" magazine as we speak for ideas of things to do around here. He searches online for things to do. He maintains many friendships. At his suggestion we went to Victoria BC overnight a few weeks ago. He also suggested that we go to a festival in Seattle last weekend. He wants all of us to go hiking this weekend along a trail a few miles from here. He is talking about going fishing with my husband and son for a couple of days. He also goes to the gym several times a week. WHEW!
Oh I forgot to mention, he lives to ski. He is a national and international downhill champion every year in the slalom, giant slalom, super giant slalom and downhill in his age group. He races all over the country as well as in Canada and Europe. 10 months out of the year he is traveling for racing.
He's an inspiration to me. He forcefully, purposefully makes himself stay physically and mentally active. He's not 100% physically able like he used to be but it doesn't matter.
Logged
JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey
www.marykay.com/wramsay
rose1999
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Re: A bit like G-Ma's thread !
«
Reply #2 on:
May 21, 2009, 08:36:47 AM »
Have you thought of a hobby that you could perhaps make a littel money at? Maybe making something, jewelery is quite easy, well simple earrings and stuff like that to start with, you could sell them on ebay or give them as gifts.
Another idea is perhaps a pen friend, maybe someone in the forces or another lonely housebound person.
I study with the Open University, they do some 10 point courses that are not too expensive and are interesting. You don't have to be clever or academically minded, just find something that 'looks interesting', that's what I did about 8 years ago and I'm still at it!
Can you fix a bird table within sight? Get a bird book and keep a log of what you see,the RSPB often ask people to let them know what birds are in their garden.
There's the obvious, reading, knitting, jigsaws, puzzles and PC games but you will have thought of those no doubt. If I think of anything else I'll add it.
Rose xx
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dwcrawford
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Re: A bit like G-Ma's thread !
«
Reply #3 on:
May 21, 2009, 08:53:54 AM »
To Ramsay: Your father makes me tired and I'm only 68. However, he would have made me tired when I was 28. More power to him! I think I'll get up and do something.
To Kickstart: I had the same problem with being bored. When I told friends about dialysis coming I felt they kind of ignored me but I made the effort to get back into their lives. My only close relative is my brother who lives in town but they totally ignore me. At the insistence on a niece, I joined Facebook and have been making contact with relatives I have seen or heard from in 20 or more years. It is really nice. I also communicate with friends over e-mail a lot.
Having been a musician in my previous life, I start working on the piano again. Also I've started to listen to the music I never had time to do when I was working. I don't play tennis but I take a long walk when the weather permits (even go to a mall at times and walk and window shop -- dangerous because you tend to stop and buy stuff.
Actually I have made lots if friends on here but one really good special friend that I communicate with on e-mail regularly. We talk about everything but dialysis.
I do like puzzles (crossword and sudoku) and work two each day online. (Well, I can't always do the Sunday ones to be truthful. I know puzzles are not everyone's thing though. I know my mom loved zigsaw puzzles (I hated them). It was my job to find ones so difficult that she'd never be able to work. I never did.
When I was really bored and in a clinical depression a few years back, one guy in a group I was attending made this comment: Just do something! It doesn't matter what! Doing one thing will help you do the next. He should have been the group leader instead of a participant as it was the best thing I ever learned about boredom (which leads to depression I guess). Also, they say do something new (something you have never done). I took a class in chess (It was too hard). I took a class in gardening. (I love it and still am into it.)
Hey: Start by making a list of anything that would interest you. Don't be too realistic. If in doubt write it down. Then go back and edit.
«
Last Edit: May 21, 2009, 08:56:42 AM by dwcrawford
»
Logged
Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
willowtreewren
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Re: A bit like G-Ma's thread !
«
Reply #4 on:
May 21, 2009, 09:10:33 AM »
Hi, Kickstart.
There are some wonderful suggestions here, but I want to add another layer. One of the important things is getting together with other folks. Dan mentioned the classes he took. Most areas have classes through the agricultural extension or other civic groups. I think it might be important for you to get involved in something like that for the human contact. Another thought is to do some volunteer work. Schools and nursing homes always need volunteers.
Our human brains are not designed to go without contact with others. IHD is great, but we also need to be in the same room with others. It keeps us young.
Swarmey's dad is truly an inspiration, but probably more than you could begin to imagine. But is there a walking club near you? Many folks get together to stroll around the Malls so they don't have to worry about weather. And you can stop at any point without worrying about getting back to your starting point.
You have taken a really important first step. That's great. Keep us infomred of where you go from here.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
dwcrawford
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Re: A bit like G-Ma's thread !
«
Reply #5 on:
May 21, 2009, 10:09:11 AM »
I totally agree with Aleta. Get people in your life. Do what you need to. Join things, go to the museums and hang around (there's always some wanting to talk plus you'll learn about art, etc.). Go to church if you're so inclined. Stand on the street corners... I mean anything that's legalish? Do you have community colleges in the UK? Always a good source of classes.
Logged
Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
Tinah1968
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Re: A bit like G-Ma's thread !
«
Reply #6 on:
May 21, 2009, 10:42:29 AM »
kickstart,
Everyone here had great ideas and they are right!! You need to take control of your life don't let it control you.
I myself have started Crocheting,I walk around the block, I Love my vegetable Garden, I do crosswords, I read alot and I like to go to the Book Store and i don't always have to buy something, I grab a cup of coffee and walk around and write down the Books and the authors that I want to read and buy when I have the money. Sure my list of wants is way bigger than what i can afford but around Christmas when People ask me what I want I am able to tell them the Book I was not able to geton my own.
I have met lots of people just sitting at the coffee shop, and when I see them again I just say hello and you just start talking. You don't have energy all the time, But when you do if you get up and do something I bet that you will find the more you do the more energy you will have and the more you will want to do. MAKE YOURSELF do it. that is the most important thing to me. I have a Loving Family that hates this diesase and Wonderful Friends but sometimes I need to just be me and by myself so that I can figure out my wants and needs.
I had a friend that slept all the time she was always tired always in her house. And one day i told her when you wake up open the Blinds/Curtains, and the windows get some freshair let the natural light in. If you keep youself in the dark you will always be bored not wanting to do anything, and i really believe that.
You will always have IHD to talk to we will always have something to say... :-)
«
Last Edit: May 21, 2009, 10:54:50 AM by Tinah1968
»
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
KICKSTART
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Re: A bit like G-Ma's thread !
«
Reply #7 on:
May 21, 2009, 11:31:30 AM »
Oh thankyou everyone there are some really inspiring ideas there , its so easy to get into a rut! I think alot of what Tina said about her friend is so true , and thats the way im going . I know lots of things are free , its just having the courage to do them on my own . Im quite an outgoing person but also shy if that makes sense. We have some lovely villages round near me with lovely little village pubs and i would so like to go get some lunch or something , partly so i dont have to cook and partly to get out! but i dont have the confidence to dine alone ..im sure people would think it strange ! Im not really near the city and shops wise well .. i do go window shopping from time to time but its meeting people i need!
Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
dwcrawford
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Re: A bit like G-Ma's thread !
«
Reply #8 on:
May 21, 2009, 11:41:29 AM »
The pubs sound wonderful. We have a british pub here call Black Labrador. I love it. I've never been to a smaller village in the UK, but I've been to small neighbor hood pubs in London.
Free stuff sounds good too. I'm sure you can find a list of local free things on the web. Yes, I understand "outgoing and shy" in the same sentence. It's just the first move isn't it? Some weekends I follow the invitations to the art gallery open houses. You don't have to understand art. Just grab a couple of standard phrases and soak up their free hor d'ourves and wine.
Logged
Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
G-Ma
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Re: A bit like G-Ma's thread !
«
Reply #9 on:
May 21, 2009, 11:57:14 AM »
wow..ok...swramsay..I read your post at noon and had to go take a nap...I really don't know any 20 year olds that can do that much.
Anyway..this is a good thread for me today...oops...yes ...maybe bored...bordering on that depr...word...I refuse. I think the disability stress of the last 2 months wore me out and I crashed...so today I'm resting and will move on...great ideas...I think there is an art gallery with classes in a town about 5 miles from here..I'm going to check it out and I have signed up for an embroidery type class in June, so it's a start.
It also took me a long while to go out to lunch alone but I can do it now. Take a book, get a small glass of something and order lunch.
Let us know what you are trying and what's working.
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
dwcrawford
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Re: A bit like G-Ma's thread !
«
Reply #10 on:
May 21, 2009, 12:02:04 PM »
Go G-Ma! Something I used to try, but it got to be too difficult for such a lazy person, was to do one thing each week that was beyond my comfort zone. Maybe I'll start that again.
Embroidry (you'll be creating beautiful things too)
Logged
Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
monrein
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Might as well smile
Re: A bit like G-Ma's thread !
«
Reply #11 on:
May 21, 2009, 12:09:44 PM »
Coffeeshops are a great way to meet people and are easy to go to alone. The trick is to go at the same time of day (I used to have breakfast in one every day) so you meet the regular crowd and next thing you know, you're a regular too. I stopped doing that a while back but I'm still in contact with some of the people I met during the years I went.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
rose1999
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Re: A bit like G-Ma's thread !
«
Reply #12 on:
May 21, 2009, 12:19:38 PM »
Monrein's idea of coffee shops is a good one. Also is there any sort of lunch club near you? Either one you could join - we have a ladies lunch group in our nearest Town, and it's not full of stuffy old women either! Or one you could help out with through the WRVS or something similar. Try your local weekly paper for ideas. You could also think about joining the WI - again it's not like it used to be. Hope you get something sorted - do let us know.
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twirl
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Re: A bit like G-Ma's thread !
«
Reply #13 on:
May 21, 2009, 12:19:54 PM »
could you get a pet -
I get so bored and I have plenty to do -
I miss teaching -
I have not been bored in a few days b/c Bubba is home -
he talks non-stop -
we had to tow his truck from Cleveland yesterday and we both prayed the whole trip -
it was a lot harder than we thought -
but it was cool -
and I have been cooking up a storm -
I get depresed - empty nests suck - I miss bossing students and children around -
and my husband can only take so much --
tonight he has to help with physicals and then there is the Spring Game at Conroe High School -
Allen will go to that too -
nothing much on television -
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G-Ma
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Re: A bit like G-Ma's thread !
«
Reply #14 on:
May 21, 2009, 12:21:22 PM »
Great idea Monrein...yes George (my 2nd hubby) did that and he had great friends..turned into a coffee bunch..I was ""even"" invited on my day off..did that once...no more..strange group...ROFLOL..they were much like this group..just in person..10 to 12 guys..2 amputees and none of them noticed and woe betide an outsider who noticed. But he had fun and it helped his days go faster..he also had mmm 9 birdfeeders in our yard, cleaned and filled each one every day, sat on the deck with his binoculars and watched the mountains, saw bears once in awhile, fed all the stray cats and dogs, up to his last day at home.
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
dwcrawford
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Getting the heck out of town.
Re: A bit like G-Ma's thread !
«
Reply #15 on:
May 21, 2009, 12:26:51 PM »
Is there a "friendly visitors" program in your area. They volunteer to daily call the same old of disabled person each day to make sure they survied the night (or just to say hi to them). My dad used the program and because really good friends with his caller. Toward the end they because visitors. Sometimes I helps just to do something outside of your own needs. Do you have "meals on wheels" over there? They always need volunteers if you drive.
Do you have too many suggestions now?
?
Logged
Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
G-Ma
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Re: A bit like G-Ma's thread !
«
Reply #16 on:
May 21, 2009, 12:28:14 PM »
Nope..I think all of us could use more suggestions.
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
KICKSTART
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Re: A bit like G-Ma's thread !
«
Reply #17 on:
May 21, 2009, 03:07:18 PM »
I think some of the suggestions are possible , some not . Probably a difference in cultures re the 'coffee shops' us Brits are more reserved ! The only coffee shop near me is attached to a supermarket , so i wouldnt expect 'regulars' , also another thing although i would like to do the 'pub lunch' thing eating out over here is not cheap (neither is just a coffee!) I dont know if i have done the right thing but i have accepted an 'old flames' invite out on saturday night . We have always remained friends so i guess it will be nice to catch up. I dont think i would have done it though without the IHD family giving me that push to get off my backside and get out into the world , i was getting to used to staying home , safe n cosy but VERY VERY bored ! Anyway i must go now because it will take me till saturday to decide what to wear , its soooooooo long since i dressed up !!!
Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
G-Ma
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Re: A bit like G-Ma's thread !
«
Reply #18 on:
May 21, 2009, 04:03:27 PM »
Ohhhhh....let us know what you wear and how it goes.............yes I have a boring existance and live through all of you
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
rose1999
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Re: A bit like G-Ma's thread !
«
Reply #19 on:
May 21, 2009, 11:29:38 PM »
that's great, hope it goes well.
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monrein
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Re: A bit like G-Ma's thread !
«
Reply #20 on:
May 22, 2009, 05:00:02 AM »
Have fun KS.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
KICKSTART
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Re: A bit like G-Ma's thread !
«
Reply #21 on:
May 22, 2009, 10:05:29 AM »
Does anyone believe in destiny/fate? .Since i wrote this thread i have had an invite out , the first in years. Then i got a flyer through the door tonight for an advert for a little tea room thats opened in the village ! Even more weird i got an email from someone i went to school with (and im talking many many years ago!) who has tracked me down , they are not in my part of the country but it was so nice to hear from them again ...........maybe someone up there is watching over me ?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
rose1999
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Re: A bit like G-Ma's thread !
«
Reply #22 on:
May 22, 2009, 10:06:54 AM »
Spooky
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David13
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Re: A bit like G-Ma's thread !
«
Reply #23 on:
May 22, 2009, 10:15:07 AM »
That is so great, Kickstart!
Mysterious, but great!
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
willowtreewren
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Re: A bit like G-Ma's thread !
«
Reply #24 on:
May 22, 2009, 12:09:23 PM »
It's all the vibes from your IHD family!
Wonderful news.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
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