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Author Topic: Good news from doc apt.  (Read 6374 times)
MandaMe1986
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« on: May 04, 2009, 05:24:10 PM »
Well I went in today.  I got some good news.  Well first my kidneys are still there.  I am dumping about 7 grams of protein.  That was to be expected. I am still in state 4 kidney failure. But I was really scared to go to this apt because of what I was told last time I saw a Neph.  I was told that we were stopping treatment because it wasn't working and at the rate I was going I was gonna need to start D within a year.  But today I was told that my Lupus is in remission. So yey for that.  And because my kidney problems are brought on by the Lupus.  There is a good chance that as long as I keep my lupus under control I will be able to avoid D for a bit longer.  I can't even explain how this makes me feel. I have gone through so much already with my health. And finally I fill like I am going to be able to take a brake for a bit. I know I am still sick and I still need to watch stuff. But for the first time in years my Lupus is in remission.  And I am just so happy.  One of the first things I wanted to do was come on here and share it with all of you guys. You guys have come to mean so much to me in such a short time. Thank you to all of you. 

~Amanda Marie
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
paris
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« Reply #1 on: May 04, 2009, 05:48:21 PM »
I am so glad for you MandaMe.   :cuddle;   Take a deep breath and enjoy the news.  You do deserve a break :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
del
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« Reply #2 on: May 04, 2009, 05:53:27 PM »
 :yahoo; :2thumbsup; :clap; I'm happy for you MandaMe!!
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willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: May 04, 2009, 05:55:49 PM »
Amanda,
That IS wonderful news.  :clap; :cheer: :clap; :cheer: :clap; :cheer:

Here is a celebration cheer!  :cheer: :cheer: :cheer:

And flowers! :flower; :flower; :flower;

Let's break out the tequila! :2thumbsup;

Hooray! Hooray! :bestwishes;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MandaMe1986
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« Reply #4 on: May 04, 2009, 05:57:50 PM »
Thanks you guys. Yes yes tiquila for everyone!
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
twirl
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« Reply #5 on: May 04, 2009, 05:59:14 PM »
Amanda Marie

break out the Blue Bell  :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup;

and who has a birthday is about a couple of weeks or 13 days

what a great birthday you will have

 :cheer: :cheer: :cheer: :cheer: :cheer:

what would crawford say to freaking ice cream with a shot of tiquila
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twirl
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« Reply #6 on: May 04, 2009, 06:00:11 PM »
Amanda Marie

break out the Blue Bell  :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup;

and who has a birthday is about a couple of weeks or 13 days

what a great birthday you will have

 :cheer: :cheer: :cheer: :cheer: :cheer:
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twirl
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« Reply #7 on: May 04, 2009, 06:00:58 PM »
ps

I am so happy I seem to be repeating myself    :cheer: :bandance; :cheer:
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MandaMe1986
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« Reply #8 on: May 04, 2009, 06:01:25 PM »
Speaking of birthdays its the first one in 4 years I haven't not spent in the Hospital! Another YEY there!

Ice Cream and Tiquila now that is a party. Haha
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
twirl
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« Reply #9 on: May 04, 2009, 06:02:50 PM »
oh cool idea

any left over breakfast with that tequila cream soda

you will have the best birthday --------- do not kiss any swine     stay well  :beer1;
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G-Ma
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« Reply #10 on: May 04, 2009, 06:38:46 PM »
 :grouphug;       :bandance;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
cherpep
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« Reply #11 on: May 04, 2009, 06:46:25 PM »
Great news, Manda!!!  I am so happy for you.
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Ang
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« Reply #12 on: May 04, 2009, 06:53:16 PM »
 :thumbup; :yahoo;
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Stoday
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« Reply #13 on: May 04, 2009, 07:26:02 PM »
Hey ho the sun's shining for you Amanda.

 :flower;
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
rose1999
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« Reply #14 on: May 04, 2009, 11:10:41 PM »
Great news, thanks for sharing with us  :flower;
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Sunny
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Sunny
« Reply #15 on: May 04, 2009, 11:16:48 PM »
MandaMe, this is good to hear. I hope you can stay in remission a very long time and keep you kidneys even longer.
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Sunny, 49 year old female
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kristina
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« Reply #16 on: May 05, 2009, 12:47:48 AM »
 :welcomesign; Great news! Please tell us,
how did your Lupus (SLE) go into remission?
Do they know?
Did you take any special
anti-inflammatories,
a special diet or anything else?
Or did your Lupus run its own course,
got "burned out" and you were lucky?
My own end-stage renal failure is also
due to a flare-up of MCTD/SLE and
your story certainly gives me hope again!
 It is great news! Good luck!
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  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Joe Paul
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« Reply #17 on: May 05, 2009, 02:11:04 AM »
 :thumbup;  Good to hear MandaMe, thanks for sharing
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paul.karen
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« Reply #18 on: May 05, 2009, 04:39:30 AM »
Great news manda :2thumbsup;

I am glad you are getting a break and have gottten such good news.
Whatever you are doing keep doing it.
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Curiosity killed the cat
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Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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David13
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« Reply #19 on: May 05, 2009, 06:13:00 AM »
So glad to hear the good news, Manda!  I think you deserve a lot of credit for educating yourself and taking such good care of yourself.

You rock!   :2thumbsup;
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willieandwinnie
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« Reply #20 on: May 05, 2009, 06:46:32 AM »
 :yahoo; Manda, whatever you are doing, keep doing it.  :yahoo;
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MandaMe1986
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« Reply #21 on: May 05, 2009, 07:46:53 AM »
Quote from: kristina on May 05, 2009, 12:47:48 AM
:welcomesign; Great news! Please tell us,
how did your Lupus (SLE) go into remission?
Do they know?
Did you take any special
anti-inflammatories,
a special diet or anything else?
Or did your Lupus run its own course,
got "burned out" and you were lucky?
My own end-stage renal failure is also
due to a flare-up of MCTD/SLE and
your story certainly gives me hope again!
 It is great news! Good luck!

First let me say thank you to everyone.  I am still very excited this morning.

Second, that is a very good question Kristina.  They are not sure.  When I stooped treatment, the treatments I had stopped were Cytoxan Chemotherapy and Rutoxin. And at that point I had been taking Cytoxan for almost a year. And before that I had taken Cyclorsporin and Cellcept. So I am not sure. It could very well be that all the treatments kicked in once they pulled out, or it could be that it ran its own course.  I really don't know. We didn't expect it for sure.  My Lupus has only been in remission once and that was when I was 18 and it soon came back full force when I had my kids.  I have been working to get it just under control for a really long time now. So this really just came out of the blue, it went from kicking my butt to being in remission.  I am just knocked on my butt with shock.

But yes don't ever give up hope.  I would be one big blob of depression if I did. Maybe they can keep you where you are at for a long time. What course of treatment are you going through right now? And how long have you been doing it?
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
jbeany
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Cattitude
« Reply #22 on: May 05, 2009, 04:12:00 PM »
 :yahoo;

Good news from a doctor - are there pigs flying outside your window, too?

Stay well, amanda!
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RichardMEL
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« Reply #23 on: May 05, 2009, 07:41:02 PM »
Sensational news Amanda!!!! So happy for you!!  :clap; :clap; :clap;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Jean
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« Reply #24 on: May 05, 2009, 11:56:51 PM »
 :yahoo;

YIPPEEE!!!!!!!!!!!!!!!!!!!!
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One day at a time, thats all I can do.
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