Rerun
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« on: April 26, 2009, 06:49:42 PM » |
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There is one area where the staff (both nurses and techs) have stabbed over and over again. It formed a big scab about 2 weeks ago which forced them to move somewhere else. The scab finally came off yesterday and there is a small area about the size of a pencil head eraser that is really thin. It feels like there is no vein under it and the pulse of the blood makes it bulge out. I folded a piece of gauze in firths and put 2 bandaids over it as somewhat of a pressure bandage. It looks scary. I have dialysis tonight and I will show it to them. I've said in the past that as long at the tech or nurse can get a stick on their shift that is all they care about. Not about the life of the fistula. Ed is the exception but he was gone for 8 weeks and then it was a free for all.
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Rerun
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« Reply #1 on: April 27, 2009, 05:09:31 AM » |
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They were able to dialyze me last night. Whheeew They said I should get it looked at but who do I get to look at it? I doubt my surgeon will have any concern.......
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willowtreewren
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« Reply #2 on: April 27, 2009, 05:47:21 AM » |
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Hi, Rerun, See your vascular surgeon about it. My husband has a very slight bulge in his fistula and the nurses said that it was an aneurysm and we should avoid that area until it heals up (I'm the one who sticks him and I REALLY protect that fistula).
Good luck. Don't let them stick you there.
Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.
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jbeany
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« Reply #3 on: April 27, 2009, 10:22:58 AM » |
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Now that I'm back in-center after all that time on home hemo, I had to start worrying about where I was getting stuck again. My ex used to do all the sticking for me, and he kept track and laddered my sites evenly every time. In center is a whole other story. After the first couple of weeks, I started pointing out exactly where I want to be stuck each time. "It's time for the 3rd notch up ladder. Aim between here and here." I may be a fussy pain in the arm to them, but they put the needles where I tell them! (Thanks for the loan of the big stick, kit.)
Maybe you could try that, too, rerun? Hope the spot isn't anything serious.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
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Rerun
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« Reply #4 on: April 27, 2009, 04:10:32 PM » |
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CRAP!! They let me come home to get a few things and then they are going to admit me. My fistula looks like the spot is ready to blow and may be a little infected.
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willowtreewren
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« Reply #5 on: April 27, 2009, 04:30:52 PM » |
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I will be thinking of you Rerun. Here's hoping they can shore it up! Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.
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jbeany
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« Reply #6 on: April 27, 2009, 04:32:56 PM » |
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That stinks!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
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rocker
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« Reply #7 on: April 27, 2009, 04:52:03 PM » |
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Good luck!!
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Sluff
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« Reply #8 on: April 27, 2009, 07:58:36 PM » |
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Thinking of you my little Harley Girl.
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Rerun
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« Reply #9 on: April 27, 2009, 11:02:24 PM » |
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The nurse forgot to sign-off so I thought I'd try to check with my friends at IHD! They stuck an IV in me and then stuck two different spots for blood. They need to see if I have an infection. AND they are giving me antibiotics just in case. I get to sit around here until Wednesday when the surgeon gets his way with me. He is going to put a tube across my chest and start getting my arm ready for another fistula. I'm such a CHICKEN! Why don't I just quit?? Because I feel fine. At least right now I do. Wednesday after he chops me up I will feel like crap. I better sign off in case I get caught. Maybe this is permitted???
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Ang
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« Reply #10 on: April 28, 2009, 12:47:46 AM » |
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stay away from the thinning area.it can rupture at any time, it needs to be surgically patched.
i'm waiting to get mine done.
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live life to the full and you won't die wondering
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Joe Paul
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« Reply #11 on: April 28, 2009, 01:02:52 AM » |
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Sorry to hear of your fistula troubles Rerun, I hope they can get you fixed up and soon. Good luck
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"The history of discovery is completed by those who don't follow rules" Angels are with us, but don't take GOD for granted Transplant Jan. 8, 2010
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Wattle
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« Reply #12 on: April 28, 2009, 01:36:43 AM » |
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Why don't I just quit??
Because who would stir your neighbours with dog pee on the grass!! And we need you around here!! Hang in there Rerun. I hope it all goes smoothly and the fistula can be repaired. You are in the right place. I remember my Dads rupturing ..... not a great memory
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PKD June 2005 Commenced PD Dialysis July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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circleNthedrain
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« Reply #13 on: April 28, 2009, 12:28:16 PM » |
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Hi Rerun...So sorry to hear you are having access troubles. I keep picturing you sitting at the nurse's computer with the nurse laying on the floor with stars around her head! Stay strong Rerun!!
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1979 Diagnosed with kidney failure 1979 Right arm fistula 1979 Start hemodialysis 1980 CAPD catheter 1980 Start CAPD 1989 Cadaveric kidney transplant 1995 2nd cadaveric kidney transplant 2007 Start hemodialysis 2010 Still drawin' wind
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paul.karen
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« Reply #14 on: April 28, 2009, 12:41:35 PM » |
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You go through alot. Were all on your side. Hope all goes well for you.
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Curiosity killed the cat Satisfaction brought it back
Operation for PD placement 7-14-09 Training for cycler 7-28-09
Started home dialysis using Baxter homechoice 8-7-09
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willieandwinnie
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« Reply #15 on: April 28, 2009, 01:34:10 PM » |
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Oh rerun, I'm so sorry that you are going through more crap. I hope this doctor gets this straightened out. Take care.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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kitkatz
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« Reply #16 on: April 28, 2009, 02:39:26 PM » |
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Sweetie, Rerun, I wish you lots of luck with the coming surgery and hospital stay!
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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monrein
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« Reply #17 on: April 28, 2009, 03:17:59 PM » |
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Rerun, I so so wish I had not had to return to this post of yours because I want things to go smoothly for you and it irritates me beyond all belief that the nurses will go for the easy stick with no foresight for the future of the precious fistula. I'll be thinking of you and hoping that the surgery goes well.
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Pyelonephritis (began at 8 mos old) Home haemo 1980-1985 (self-cannulated with 15 gauge sharps) Cadaveric transplant 1985 New upper-arm fistula April 2008 Uldall-Cook catheter inserted May 2008 Haemo-dialysis, self care unit June 2008 (2 1/2 hours X 5 weekly) Self-cannulated, 15 gauge blunts, buttonholes. Living donor transplant (sister-in law Kathy) Feb. 2009 First failed kidney transplant removed Apr. 2009 Second trx doing great so far...all lab values in normal ranges
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David13
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« Reply #18 on: April 28, 2009, 03:31:59 PM » |
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Wishing you the best, Rerun.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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Zach
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« Reply #19 on: April 28, 2009, 09:07:28 PM » |
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment. I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology."
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glitter
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« Reply #20 on: April 28, 2009, 11:53:11 PM » |
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hope its going okay! We miss you-and I hope you sneak on again!!!
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Jack A Adams July 2, 1957--Feb. 28, 2009 I will miss him- FOREVER
caregiver to Jack (he was on dialysis) RCC nephrectomy april13,2006 dialysis april 14,2006
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Wattle
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« Reply #21 on: April 29, 2009, 01:19:59 AM » |
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Just thinking of you Rerun. I hope everything is going ok.
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PKD June 2005 Commenced PD Dialysis July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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paris
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« Reply #22 on: April 29, 2009, 06:34:28 AM » |
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We're all praying for you. Hope you can sneak back on the computer!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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circleNthedrain
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« Reply #23 on: April 30, 2009, 10:49:34 PM » |
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Hope it is going OK Rerun, we are all thinking about you! Hope you feel like sneaking on the computer again real soon.
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1979 Diagnosed with kidney failure 1979 Right arm fistula 1979 Start hemodialysis 1980 CAPD catheter 1980 Start CAPD 1989 Cadaveric kidney transplant 1995 2nd cadaveric kidney transplant 2007 Start hemodialysis 2010 Still drawin' wind
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monrein
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« Reply #24 on: May 01, 2009, 08:42:01 AM » |
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Sending some healing your way Rerun.
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Pyelonephritis (began at 8 mos old) Home haemo 1980-1985 (self-cannulated with 15 gauge sharps) Cadaveric transplant 1985 New upper-arm fistula April 2008 Uldall-Cook catheter inserted May 2008 Haemo-dialysis, self care unit June 2008 (2 1/2 hours X 5 weekly) Self-cannulated, 15 gauge blunts, buttonholes. Living donor transplant (sister-in law Kathy) Feb. 2009 First failed kidney transplant removed Apr. 2009 Second trx doing great so far...all lab values in normal ranges
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