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Author Topic: What's positive about doing dialysis? Help me with my list.  (Read 12250 times)
dwcrawford
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Getting the heck out of town.

« on: April 18, 2009, 09:24:03 AM »

Help me with my List.

Here’s the Deal!  It is Saturday right before noon before the Monday that I’m going to face the fistala and catheter input, and start dialysis.  Yes, I’m scared “witless” and full of apprehension.  Because of the rains, thunders, hails and assorted storms here in Houston, I’m also a little depressed (little=very).  So I’m trying to start a list of positive things about starting dialysis treatments – I mean other than the obvious that if you don’t do it you die.    Help me with my list!  So far I’ve come up with a couple.

1.   I’ll get to watch lots and lots of movies.
2.   I can put things on my ipod for each day and listen to old music I’ve not heard in a long time.
3.   I drive right through the museum district  so periodically I can stop before or after to check out an exhibit.
4.   I expect some of my neighbors and friends will start cooking for me, moving my yard, cleaning my house, etc.  (By that, I mean I’ll have time to day dream while I wait for my lottery number to come up)


Can you think of any more?  I mean, forget about number 4 there, but any real ones…My nephrologists said he had one patient who said they liked the feeling of it (but I’m doubting that).

Dan
« Last Edit: April 18, 2009, 08:20:47 PM by dwcrawford » Logged

Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
bette1
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My dear daughter

« Reply #1 on: April 18, 2009, 09:40:47 AM »

You can watch the soap opera and all the daytime tv you like.
You usually qualify for social security and medicare for having ESRD. - which helps
You have lots of time to read novels.
No one thinks you are lazy if you take daytime naps.
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Diagnosed with FSGS April of 1987
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Rerun
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« Reply #2 on: April 18, 2009, 10:18:16 AM »

You can usually get out of family functions!

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glitter
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« Reply #3 on: April 18, 2009, 10:20:51 AM »

you get to live.  :grouphug;

tomorrows sunset  :grouphug;
tomorrows sunrise  :grouphug;
IHD  :grouphug;
now you will meet people you may have never had a chance to meet- some might love you  :grouphug;
lot to be said for breathing  :cuddle;
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paris
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« Reply #4 on: April 18, 2009, 10:37:08 AM »

You can hang out with us more!   The biggest one on the list is you do get to live---and we want you here for a long, long time    :grouphug;
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Cattitude

« Reply #5 on: April 18, 2009, 10:42:36 AM »

Dialysis keeps me alive so I can be there for all the other positive things that might come along.  It is sometimes hard to be positive about it (hence the name of this website!), but I'm still here, still fighting to stay alive for all the little things that add up to a life.

        10 Reasons I went to dialysis this week. . .
10.  The taste of bowl of fresh strawberries, topped with a little Greek yogurt.
9.  I finished the latest Mrs. Murphy mystery novel, and I'm looking forward to the next one.
8.  There's a trashy B movie with one of my favorite actors on Sci-Fi this weekend.
7.  My cat wakes up every morning, and rolls belly up, purring at me.
6.  I've got an idea for making a purse out of an old sweater, and I want to see how it works out.
5.  My daylilies are sprouting, and I want to see how tall they are going to get.
4.  My sister sent me a new box of clothes, and I haven't had time to wear them all yet.
3.  I'm going out with friends to dinner and a free concert on Saturday night.
2.  I'm not the one paying for dinner.
1.  Chocolate.  I haven't eaten enough chocolate yet.

You have to find your own reasons, dan - but I know you can do it!
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« Reply #6 on: April 18, 2009, 10:56:45 AM »

Dan,
I asked my husband about this since I'm not the one on dialysis. His reply:

He is glad that he is on dialysis because he did not know how bad he was feeling beforehand until he started feeling normal again. He often says that he feels ten years younger!

He says that dialysis is just something ya gotta do, like eating and sleeping, so you can enjoy the rest of your life.

Life is great.  :2thumbsup;   Without dialysis you would miss so much.

Aleta
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dwcrawford
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Getting the heck out of town.

« Reply #7 on: April 18, 2009, 01:24:36 PM »

 :cookie;
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
dwcrawford
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Getting the heck out of town.

« Reply #8 on: April 18, 2009, 01:27:02 PM »

Just got back from pharmacy getting the pills I'm supposed to take before my procedures Monday.  It is maybe ½ mile away and it took me 20 minutes to get home because the rains were so heavy.  Depression turned to excitement.  I was just feeling sorry for myself but I am going to print these and put a list in my wallet for next week just in case it happens again.  It's the weather.  I apologize. 


Some things to consider when I get depressed over dialysis:

1.   I'll get to watch lots and lots of movies.
2.   I can put things on my ipod for each day and listen to old music I've not heard in a long time.
3.   I drive right through the museum district  so periodically I can stop before or after to check out an exhibit.

Some of your suggestions that I really, really like?
Bette1   You have lots of time to read novels.
No one thinks you are lazy if you take daytime naps.
Rerun   You can usually get out of family functions!
Glitter   now you will meet people you may have never had a chance to meet- some might love you
   (maybe one day I'll wake up early enough to see a sunrise but..
Paris   You can hang out with us more!  (and maybe get invited to Las Vegas?)
Jbeany   1, 2, 3, 5 and 10.  (All about chocolate, strawberries, free dinners, free concerts and flowers)
Willowtreewren   asked my husband about this since I'm not the one on dialysis. His reply:
He is glad that he is on dialysis because he did not know how bad he was feeling beforehand until he started feeling normal again. He often says that he feels ten years younger!  (good one)




More of my own:
I'm getting a new laptop

I felt really funny making this post, but I did get some good things to think about.  This should keep me straight throughout the storm and next week.

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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
MandaMe1986
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« Reply #9 on: April 18, 2009, 02:00:21 PM »

Well this might be a more selfish reason on mine/our part.  But if it weren't for dialysis you wouldn't have come to us!   And we all know how much fun your having with us  :yahoo;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

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Stacy Without An E
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« Reply #10 on: April 18, 2009, 03:53:32 PM »

1. Flirting with cute nurses.
2. My sarcasm and smart-ass abilities return to 100%.
3. I usually have an appetite again after its over.
4. My shoes stop killing me after its over.
5. I'm 20% more attractive after Dialysis.
6. I have enough strength the next day to go on three hour hikes.
7. If anyone tries to attack me, I'm so angry about my condition I can immobilize them in a heartbeat.
8. Sympathy points from compassionate women.
9. Rarely waste time urinating.
10. If I don't want to do something, it always makes an effective excuse.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

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Dialysis.  Two needles.  One machine.  No compassion.
Wattle
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« Reply #11 on: April 18, 2009, 04:16:19 PM »

I have three reasons:

1. I am married to him
2 and 3. I gave birth to them

I get to spend more time with all three.

Dialysis can throw what it wants at me ...... I will continue to turn up so I don't miss a minute of my kids bickering!   :-*
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PKD
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Bill Peckham
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« Reply #12 on: April 18, 2009, 04:19:54 PM »

Decreased risk of electrocution

(From a German book called Elektroschutz in Bildern, a collection of illustrations detailing a number of ways that people can get electrocuted and the path that the electricity takes through their bodies.)
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« Reply #13 on: April 18, 2009, 04:24:39 PM »

Decreased risk of electrocution

(From a German book called Elektroschutz in Bildern, a collection of illustrations detailing a number of ways that people can get electrocuted and the path that the electricity takes through their bodies.)

 :rofl; :rofl; :rofl;


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PKD
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« Reply #14 on: April 18, 2009, 05:27:54 PM »

Decreased risk of electrocution

(From a German book called Elektroschutz in Bildern, a collection of illustrations detailing a number of ways that people can get electrocuted and the path that the electricity takes through their bodies.)
he he! that is funny! This is a terrific thread!
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G-Ma
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« Reply #15 on: April 18, 2009, 06:02:34 PM »

dw,,thanks...great idea for a thread....I'm going to make my own list for when I am down...my plus this week, especially today was being able to open my front door, sit and listen to the birds...I have several trees and the birds love them, and I have several wind chimes hanging on the deck and I love to hear them too.  So these are some of the things I wake up for.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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« Reply #16 on: April 18, 2009, 07:34:24 PM »

Well, here's my list (I know my likes better than yours, so I figured it was easier):

I meet new people
I get out of the house
I run errands sooner because I would normally put of doing it
I get computer stuff done that I usually procrastinate doing at home
I have conversation material   ;D
I have learned a ton of medical stuff
People are more helpful
I can get out of doing stuff!   >:D
I have really cool license plates now that promote organ donation
I have relatives calling me that I never heard from (one who I had not spoken to since I was 8!)
I read a lot more
I watch more movies and interesting tv series (on my laptop at dialysis)
i have my appetite back
I now crave chocolate (didn't like it until I started dialysis. Weird, huh?)
I don't feel guilty when I nap anymore
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kitkatz
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« Reply #17 on: April 18, 2009, 08:02:37 PM »

http://ihatedialysis.com/forum/index.php?topic=755.0



Check this thread out.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
dwcrawford
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Getting the heck out of town.

« Reply #18 on: April 18, 2009, 08:17:01 PM »

Kitkatz, okarol, or just anyone who can help,

I'm am trying to figure out how to delete this thread.  I see it is a repeat.  There are many I've not read.  Can you delete the entire thing for me? 

Also, I'm trying to locate someone name okarol who wants me to correct a spelling error.  If someone can just delete this for me, in the future I will just read and not post anything.  I need to find a website a little more flexible.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
kitkatz
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« Reply #19 on: April 18, 2009, 08:28:41 PM »

Relax DW, this happens to everyone around here.  Spelling modifications are done by everyone.  Me especially.  When I first came onto IHD.com I was and am a lousy typist.  I check and recheck my posts and still some mistakes get by me.  IT IS OKAY!  We are not going to ban you for spelling mistakes. Just gently remind you to fix them. 

I put the thread up so you could go see what was already here.  I know there is a LOT of information here on the boards and it is hard to find old threads and see them!


Please keep posting! I love to read your posts and I love your sense of humor.

kitkatz-Moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
dwcrawford
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Getting the heck out of town.

« Reply #20 on: April 18, 2009, 08:33:37 PM »

It seemed to me a topic that needed to be worked on  emotionally, not simply read and edited by "powers" greater.  Funny, was the first time Ms. Okarol, moderator/owner, had acknowledged I was here.  If anyone chooses to do so, please ban me.  I'll try and find a less perfect place to vent.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
kitkatz
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« Reply #21 on: April 18, 2009, 08:34:25 PM »

Plus this new thread gave us more information about the answer to the questions than the old one had on it.

I know Sluff is working on a FAQ section to put threads that are alike into a FAQ to help people to find information easier on the site.



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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #22 on: April 18, 2009, 08:38:39 PM »

Part of the job of an admin and a mod is to keep the site running smoothly.  If you read the rules posted by the owner and creator of the site he requested we all use spellcheck on posts.  It is important to the owner and admins of the the site to keep it readable and neat.  Please refer to the rules of the site for more information.


http://ihatedialysis.com/forum/index.php?topic=540.0

http://ihatedialysis.com/forum/index.php?topic=4.0

http://ihatedialysis.com/forum/index.php?topic=9212.0


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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
RichardMEL
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« Reply #23 on: April 18, 2009, 08:41:50 PM »

Dan mate please try not to be too scared. I bet you anything in a few days you'll wonder what all the fuss was about (and if you don't believe me, ask Lucinda!). Yes, it's a big big change but it's a mountain you CAN climb and come down the other side (the dialysis will help you have the energy for that !!).

As others have said the number ONE positive thing about dialysis is it keeps you living!! The women of IHD would miss you if you weren't around!! That's another positive reason :)

I also find dialysis can be very social - chat with the nurses, other patients etc... after awhile it becomes a real community and you *care* about the others there. Heck half of my nurses I think see me more than their own families at times and you know for them as professional as they have to be they *do* care about each and every one of us - we're not just numbers.. after X years in the one unit they do care about YOU and want you to be OK. At least that is my experience. I count half the staff in my unit as more friends than just nurses. We already have a standing deal for me to take them all to lunch after I get a transplant(I have picked a very nice place, too :) ) and at least one has said to me she wants me to visit them again but at the pub!! That's really lovely.

Another positive thing for me is that dialysis allows me to get on with my life - doing my work and seeing my family, getting stressed out by my hopeless footy team and of course flirting with all the ladies :)  :rofl;

The alternative kind of sucks!

I am 100% confident you will be totally fine!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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« Reply #24 on: April 18, 2009, 08:49:54 PM »

Dan, you made people think about the good in their lives.  That is always a good thing. :2thumbsup;  You'll be in my thoughts next week.  Hope you get the laptop soon, so you can keep us updated.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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