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Author Topic: Do-it-yourself dialysis center in Beijing: sick cannot afford the hospital  (Read 2614 times)
okarol
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« on: April 06, 2009, 07:05:06 PM »

04/06/2009 15:31
CHINA
Do-it-yourself dialysis center in Beijing: sick cannot afford the hospital
For four years, the sick have been doing dialysis on their own, with used machines bought together with other makeshift instruments. Now the health authorities have confiscated the equipment and closed the center, because it is "unsafe." But the sick say that, without this center and without state aid, they will die in a few months.

Beijing (AsiaNews/Agencies) - Chinese migrants have created a "do-it-yourself" dialysis "clinic" in Beijing, because they cannot afford expensive hospital treatment. Now the health authorities have closed the clinic, and the patients say they will die soon if the state does not help them.

In China, medical treatment must be paid for, including essential treatment like dialysis for those with kidney disease. But many do not have insurance to cover the cost, nor can they pay for it themselves. So in 2004, four sick people bought two used dialysis machines, paid an inexperienced nurse, and set up a rudimentary but functioning dialysis center in the yard of a house in the village of Baimiao, in the district of Tongzhou in the suburbs of Beijing.

There are no doctors or nurses at the center, the patients themselves - migrants, farmers, retired people, street vendors, and students - manage and use the machines. They have all signed a statement that they accept full responsibility for the consequences that this could have, and sterilize the equipment themselves. As many as 17 patients have used the machines and shared the costs, now there are about ten (in the photo: a patient performs dialysis).

But on April 2, health officials confiscated the machines and closed the center. They promised the 10 sick people they will have free dialysis, if they return to their cities of origin. But the patients do not trust them, they are afraid that if they return to their villages, no one will keep their promises. Many of them come from distant villages, in Shanxi, Anhui, Liaoning, Hebei, Inner Mongolia.

Wei Qiang, from Inner Mongolia, one of the four who started the initiative, tells the newspaper South China Morning Post that in his village, the health officials in general reimburse only 30% of such expenses, and that he would still have to "pay 5,000 yuan per month, while now I pay about 1,000 yuan, including food and housing." "I know this is illegal, but we are not running the clinic for profit but to save our own lives," he adds. "Without the machine I will be gone within a year, and some of us are so poor that they will be dead within a month."

http://www.asianews.it/index.php?l=en&art=14923
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bill Peckham
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« Reply #1 on: April 06, 2009, 07:25:17 PM »

I wonder if there is anything that legal prevents someone from setting this up here - you wouldn't be able to get Medicare or insurance reimbursement but could two people buy a machine and supplies and dialyze themselves at their own expense? What about six people? Or 20? I think you could do every other day dialysis for around $500 a month including utilities.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
okarol
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« Reply #2 on: April 06, 2009, 09:12:14 PM »


I thought about buying a machine and the leasing out use of it for when Jenna wasn't on. Don't know if it's possible. Probably could charge a lot less than a clinic. Co-op dialysis.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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« Reply #3 on: April 06, 2009, 10:25:33 PM »

I've thought the same thing.  I bet DaVita started in someone's garage! 
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Adam_W
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« Reply #4 on: April 06, 2009, 10:35:01 PM »

I've joked about this several times with a friend of mine. I've seen used dialysis machines for sale for as little as $300. Of course I could always provide a little "bootleg dialysis" with my NxStage when I'm not on it  ;D Davita would neeeeeeever know. In all seriousness, I hope these people in China can get their dialysis some way.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
twirl
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« Reply #5 on: April 07, 2009, 04:31:54 AM »

I've thought the same thing.  I bet DaVita started in someone's garage!



 :rofl; :rofl; :rofl; :rofl; :rofl; Rerun you are a riot
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Rerun
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Going through life tied to a chair!

« Reply #6 on: April 07, 2009, 07:36:21 AM »

I've thought the same thing.  I bet DaVita started in someone's garage!



 :rofl; :rofl; :rofl; :rofl; :rofl; Rerun you are a riot

Twirl you are my biggest FAN!  Love You~          :flower;
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