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Author Topic: Not doing well  (Read 8189 times)
Restorer
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« on: February 24, 2009, 07:19:52 PM »
Well. What a week. Last Wednesday, I started having some abdominal discomfort during the day. It felt just like a had eaten something that didn't agree with me downstream. Over the day, it persisted, so I decided to do my last PD exchange before going to bed a little early. I confirmed what I was suspecting - I had a cloudy bag. So I called my PD nurse (and left a message) and headed to the ER, where they kept me overnight and gave me two doses of IV antibiotics and some IV Betalol because my blood pressure and heartrate were high. They also took my cloudy bag and an additional sample from me to culture (turned out to be staph). Over the next couple days the pain went away, and my bags are no longer cloudy, but I'm still using antibiotics in new bags overnight, last night and Friday night.

I don't know how much it's related, but the weekend before I got peritonitis, I developed a bit of a cough and fever. It persisted until this weekend, and then got worse. On Sunday night, I woke up in the middle of the night completely short of breath, feeling like my lungs were constricted. It felt like I had way too much dialysate in me, so I drained it out and that helped, at least while I was sitting up. I tried to go back to sleep, but found myself awake and short of breath again an hour later, with bad lung crackles when I exhaled. I couldn't sleep the rest of the night because the crackles made me cough badly, and they were terrible when I wasn't sitting straight up. The same thing recurred last night.

I will be seeing my doctor on Friday. I hope I can last until then.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
G-Ma
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« Reply #1 on: February 24, 2009, 07:37:10 PM »
Sounds like a call to the Dr and ER visit is needed.  I hope you feel better soon.     :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
peleroja
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« Reply #2 on: February 24, 2009, 07:39:03 PM »
Sorry this happened to you.  Hope you're soon in the pink!
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Bajanne
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« Reply #3 on: February 24, 2009, 09:21:12 PM »
Please take care of yourself.  This really sounds like you need ER to me.  Let us know how things go.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Joe Paul
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« Reply #4 on: February 24, 2009, 11:34:56 PM »
I hope you get sorted out soon, good luck  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
twirl
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« Reply #5 on: February 25, 2009, 03:24:06 AM »
hope you are better
sorry you are feeling crappy
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drinkboy
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« Reply #6 on: February 25, 2009, 06:43:03 AM »
Hope you are doing better today.  Don't forget to let us know how things are going
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paul.karen
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« Reply #7 on: February 25, 2009, 06:52:52 AM »
Hope you feel better soon.

It is kinda sad in my opinion that your DOCTOR wont see you sooner.
But what do i know.

Needless i hope they get you situated soon.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
kellyt
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« Reply #8 on: February 25, 2009, 07:28:08 AM »
 :cuddle;   Take care of yourself.  Is sounds like you're on top of things, though.  Sorry you're having to go through this.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Tinah1968
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« Reply #9 on: February 25, 2009, 09:53:26 AM »
Sorry your having such a hard time I hope you get to feeling better soon.  :grouphug;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
Rerun
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« Reply #10 on: February 25, 2009, 10:54:10 AM »
Hang in there! 

                                    :cuddle;
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Lucinda
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« Reply #11 on: February 25, 2009, 11:30:45 AM »
I don't think I would wait until Friday.  I think another trip to the ER would be advisable.  I hope you are feeling better soon. x
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Restorer
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« Reply #12 on: February 25, 2009, 04:25:26 PM »
I called my PD nurse again this morning after another night of no sleep, and she managed to get me seen at noon today at the dialysis clinic. I have absent lower lung sounds, and my blood pressure is still very high. My doctor upped my blood pressure med dose again, and directed me to be vigilant and use 4.25% fluid to try to pull some fluid off my lungs. He wants me to call if I'm not starting to get any better tomorrow.

My problem is so bad, though, that I just can't cope by myself. I can hardly get to the bathroom without having to rest before coming back (and getting there, just around the corner, makes me sweat). My shortness of breath is so bad right now. So I've called in help - I'm going to see if my family can help me out, bring me back home for a few days, take care of me.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
kitkatz
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« Reply #13 on: February 25, 2009, 05:33:23 PM »
A good idea to have family come and take care of you. Hope you feel better soon.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bajanne
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« Reply #14 on: February 26, 2009, 12:48:42 AM »
You do need family right now.  Please let us know how you are doing. :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Joe Paul
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« Reply #15 on: February 26, 2009, 01:06:30 AM »
I hope the 4.25% helps you. When I was doing PD, I did get overloaded and asked if I could do a session of hemo to help pull some fluid. Is that an option for you?
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
deafman
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« Reply #16 on: February 26, 2009, 03:39:27 AM »
Hopefully you will feel better soon.

 :2thumbsup; :2thumbsup;
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paddbear0000
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« Reply #17 on: February 26, 2009, 06:58:38 PM »
I hope you are feeling better soon!  :grouphug;
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
pelagia
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« Reply #18 on: February 26, 2009, 07:28:52 PM »
Your condition sounds serious to me.  I hope you are now with someone who is keeping a watchful eye over you.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
st789
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« Reply #19 on: February 26, 2009, 07:46:24 PM »
Wish you a recovery soon!
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TeenHatesDialysis
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« Reply #20 on: February 26, 2009, 08:04:54 PM »
I am sending all of my positive vibes to you.  :cuddle; I am glad that you have some family to look after you. Feel better soon.
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
G-Ma
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« Reply #21 on: February 27, 2009, 10:54:13 PM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Restorer
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« Reply #22 on: March 02, 2009, 05:42:26 PM »
I saw my doctor again today, and got him to order a chest x-ray. It looks like I have pneumonia. I will be seeing another doctor, a pulmonary specialist, tomorrow afternoon.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
pelagia
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« Reply #23 on: March 02, 2009, 06:02:53 PM »
Hope they get this cleared up for you.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paul.karen
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« Reply #24 on: March 03, 2009, 06:33:42 AM »
Thx for checking back in.
Hoping they get you sorted fast.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
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