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Author Topic: What to avoid ???  (Read 108796 times)
tweetykiss
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« Reply #75 on: June 03, 2007, 03:06:49 PM »

Is this website reliable and helpful for stage 4 patients?  I mentioned stage 4 since there is a different diet for dials patients and non-dials patients......

http://uuhsc.utah.edu/pated/handouts/handout.cfm?id=858
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skyedogrocks
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Rob showing off his pot of gold!

« Reply #76 on: June 28, 2007, 09:34:16 AM »

Rob's original neph was at the Joslin Diabetes Center in Boston, which is world renowned for it's care in diabetes.  We had excellent dietician's who worked with us on what to avoid, have minimal amounts and what he can eat.  They gave us this great packet of information.  I remember them saying no to any kind of nut, beans, milk, mushrooms and romaine lettuce for phosperus, that always stuck in my head.  We were already keen on the no no potassium foods. 

His dietician now is also pretty good.  She knows that at times he will cheat and have some of this stuff, but will always keep it in check.  He always goes over his lab results with her each month.  So far he has received gold start each month!  Rob is very good in keeping his levels in check, it was definitely hard to get used to. 

I am very happy to now see more and more drinks in the smaller size cans/bottles.  Rob is a huge diet soda and water drinker there are many more options in the 8 oz size other than diet coke/pepsi.  He avoids the full size cans and bottles of water, it's just too tempting for him. 
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
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« Reply #77 on: September 25, 2007, 12:02:34 PM »

On the list of foods high in phosphorus, I would suggest taking off sugar, lollipops, hard candy, mayonnaise and ketchup.  These foods have little or no phosphorus in them. :twocents;  that's my 2 cents worth of advise.
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« Reply #78 on: November 03, 2007, 01:02:29 AM »

This is from Renal Dietary guidelines at http://www.tarcweb.org/tarcweb/diet.asp

Some food items listed below may not seem so high in phosphorus. For example, 12 ounces
of cola beverage contributes 50 mg of phosphorus. However this really can add to your total
daily phosphorus intake and not leave room for essential food items such as animal protein foods.
Compare cola to a similar food item such as 12 ounces of cream soda, which won't contribute any
phosphorus.

You know all this I am sure, but since Jenna never had high phosphorus, and I had never heard of binders until i came to IHD, I am posting it.
It's from http://www.healthopedia.com/diet-for-kidney-disease/

Phosphorus

The kidneys play an important role in balancing the phosphorus and calcium in the body. When a person has kidney disease, the phosphorus from food may build up in the blood. Too much phosphorus in the blood pulls calcium from the bones. Losing calcium makes the bones weak and more likely to break. Also, too much phosphorus may make the skin itch. The following foods are high in phosphorus and need to be restricted:
~ cola drinks
~ milk and cheese
~ nuts and peanut butter
~ peas

Most people on dialysis also need to take a phosphate binder to control the phosphorus in their blood between dialysis sessions. These medications act like sponges to soak up, or bind, phosphorus while it is in the stomach. Once it is bound, the phosphorus does not get into the blood. Instead, it is passed out of the body in the stool.


My dietitian at Northwest Kidney Centers explained to me that Phosphoric Acid (which is artificially or chemically made...I forget right off now) in soda's is absorbed more easily than natural Phosphorus in food.  She said that this is why it builds up so fast and suggested I take binders when drinking it and also limiting the amount of soda with phosphoric acid in it to once or twice a month.  I don't drink any of soda with phosphoric acid in it two weeks before labs are drawn and my phosphoric level is almost always normal.  I alway take binders with my soda now!
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
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Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
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« Reply #79 on: December 07, 2007, 11:50:23 AM »

My mom said she can't have any beans.  Is this true??  I can not find anywhere that is says she can nnot have beans.
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skyedogrocks
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Rob showing off his pot of gold!

« Reply #80 on: December 07, 2007, 11:58:33 AM »

She is correct.  Beans are loaded with Phosphorus.
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11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
thegrammalady
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« Reply #81 on: December 08, 2007, 07:57:25 AM »

My mom said she can't have any beans.  Is this true??  I can not find anywhere that is says she can not have beans.

She is correct. Beans are loaded with Phosphorus.

green beans are ok - the key here, as always is moderation. no you shouldn't eat beans every day, however if you love beans ( i have a killer chili recipe) eating them occasionally in small amounts and remembering to take your binders is perfectly alright.
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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Zach
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« Reply #82 on: December 08, 2007, 09:58:23 PM »

the key here, as always is moderation. no you shouldn't eat beans every day, however if you love beans ( i have a killer chili recipe) eating them occasionally in small amounts and remembering to take your binders is perfectly alright.

Absolutely, moderation is key.
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
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« Reply #83 on: December 11, 2007, 02:43:42 AM »

That is what my dietitian always said.  She used to tell me that if they were things that I really craved and which we not in the renal diet, maybe I could take a little on the morning before I went to dialysis.  Like that would be a good time to have an orange, and things like that which we are normally not allowed to take.
And as was already said, moderation is the key.
I think they don't want us to feel too boxed in where our diet is concerned, since the human tendency is to rebel after a while and just go bonkers (berserk).  So just a tiny amount of these forbidden things from time to time will preserve our sanity and not endanger us too much.  That is the way I see it.

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thegrammalady
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« Reply #84 on: December 11, 2007, 10:47:27 AM »

if my dietition said something was forbidden i'd send her packing. i basically eat whatever i want in moderation with a very few exceptions and my numbers are great. as an example 1 strip of bacon has 750 mg of potassium. i don't eat bacon, not because it's forbidden but because if i'm going to have something with a lot of potassium i want more than one piece of Bacon. the dietition who told a patients wife "if he ever eats any cheese his phosphors will never come down" didn't do that patient any favors. I don't drink orange juice because an orange is more filling. i don't eat them very often either, tangerines are just as good and much smaller.  everyones body reacts differently and you have to find what works for you. i also eat 1 bowl of raisin bran a week, my dietition would be horrified. i just don't tell her. doctor is happy, i'm happy. i just might go back to school and become a renal dietition.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
glitter
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« Reply #85 on: December 11, 2007, 10:53:34 AM »

what kind of bacon is that high?

have you ever used this site?

http://www.nal.usda.gov/fnic/foodcomp/search/

Zach posted it awhile back- I use it constantly

it is the most comprehensive food list I have found for potassium and phosphorus
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thegrammalady
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« Reply #86 on: December 11, 2007, 11:13:55 AM »

yes i do use that one. regular pork baccon, i think i got it off fresenisus's site. at any rate i eat turkey bacon.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
glitter
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« Reply #87 on: December 11, 2007, 02:14:27 PM »


Pork, cured, bacon, cooked, broiled, pan-fried or roasted


Phosphorus, P  mg 43
Potassium, K  mg 45
Sodium, Na  mg 185

Turkey bacon, cooked

Phosphorus, P  mg 129
Potassium, K  mg 111
Sodium, Na  mg 640


I hate it that so much of these diet facts are different on this site to that site....makes me feel like I am just guessing sometimes
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Jack A Adams July 2, 1957--Feb. 28, 2009
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Russ
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« Reply #88 on: December 11, 2007, 06:31:55 PM »

That is what my dietitian always said.  She used to tell me that if they were things that I really craved and which we not in the renal diet, maybe I could take a little on the morning before I went to dialysis.  Like that would be a good time to have an orange, and things like that which we are normally not allowed to take.
And as was already said, moderation is the key.
I think they don't want us to feel too boxed in where our diet is concerned, since the human tendency is to rebel after a while and just go bonkers (berserk).  So just a tiny amount of these forbidden things from time to time will preserve our sanity and not endanger us too much.  That is the way I see it.



I keep my sanity by eating an ounce of dry roasted peanuts and some binders every now and then.
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pdpatty
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« Reply #89 on: December 25, 2007, 07:27:02 PM »

Two helpful sites concerning foods and potassium and phorphorus contents. Hope they help you as much as they have helped me
USDA Nutrient Database for Standard Reference, Release 15
(mg) Content of Selected Potassium, K Foods per Common Measure, sorted alphabetically

http://www.nal.usda.gov/fnic/foodcomp/Data/SR15/wtrank/sr15a306.pdf


USDA National Nutrient Database for Standard Reference, Release 17
) Content of Selected Phosphorus, P ( mg Foods per Common Measure, sorted alphabetically

http://www.nal.usda.gov/fnic/foodcomp/Data/SR17/wtrank/sr17a305.pdf
« Last Edit: February 12, 2008, 09:22:40 AM by pdpatty » Logged
Zach
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« Reply #90 on: December 26, 2007, 06:31:10 PM »

if my  said something was forbidden i'd send her packing. i basically eat whatever i want in moderation with a very few exceptions and my numbers are great. as an example 1 strip of bacon has 750 mg of potassium.

750 mg of Potassium for 1 slice?? Boy, was that dietitian off.

People on dialysis need to fend for themselves.
The USDA site glitter posted can truly set us free from the tyranny of dietitians everywhere.
 8)
« Last Edit: December 26, 2007, 06:44:43 PM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
pdpatty
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« Reply #91 on: February 12, 2008, 09:56:33 AM »

if my  said something was forbidden i'd send her packing. i basically eat whatever i want in moderation with a very few exceptions and my numbers are great. as an example 1 strip of bacon has 750 mg of potassium.

750 mg of Potassium for 1 slice?? Boy, was that dietitian off.

People on dialysis need to fend for themselves.
The USDA site glitter posted can truly set us free from the tyranny of dietitians everywhere.
 8)


Was she ever!!

 Pork, cured, bacon, cooked, broiled, pan-fried or roasted
3 medium slices  92mg potassium

3 slices contains 101mg phosphorus though
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kitkatz
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« Reply #92 on: February 12, 2008, 03:48:36 PM »

If you tell me it is forbidden, I will find a way to eat it.  The brain just seems tow ork that way, Forbid me chocolate and what is the first  thing I get out and eat?
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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« Reply #93 on: February 13, 2008, 08:53:04 PM »

Starfruit:

My dietitian never explained why but I remember my ex-boyfriend Steve wanted me to try new things, Starfruit being one of them. I said no I better not without checking with my dietitian. He said, "Come on!! Not like it will kill you or anything!!!!"

I found out at my next clinic day (I was on PD at the time so I only went once a month for checkups) that if I had taken it it could have killed me!

There was a poster on the wall that said:

STAY AWAY FROM
STARFRUIT!

IT CAN KILL YOU
IF YOU ARE ON
DIALYSIS!


I didn't know more than that so I did a search:



Grapefruit:


ANOTHER one to worry about is this:
Quote
Grapefruit Warning * this is a LINK!!

There is a growing body of evidence that shows grapefruit juice interacts with many of the medications that dialysis patients are prescribed.

DO NOT drink grapefruit juice if you take any of these medications. If you aren't sure if you take any of these medications, ask your doctor or pharmacist.

  • Blood pressure lowering agents (calcium channel blockers)
  • Persenadine
  • Sedatives (benzodiazepines)
  • Estrogens
  • Quinidine
  • Saquinavir
  • Cholesterol lowering agents (statins)
  • Cyclosporin (immunosuppressants)


Phosphate: - use in moderation

  • Soft drinks, soda drinks, especially cola or coke and fizzy lemonade
  • Cordials/fruit syrup beverages
  • Chocolate, lollies, sweets, candy, sugar
  • Ice-cream
  • Skim milk powder (often added to processed foods)
  • Biscuits, cookies, cakes from the supermarket
  • Tomato ketchup
  • Mayonnaise
  • Fish fingers
  • Processed cheese, especially soft cheese spread
  • Frozen pizzas
  • Hot dogs
  • Processed meats
  • Baking powder and self-raising flour often contains phosphate aerator
  • Avoid all foods that list as an ingredient mineral salts, emulsifiers and lecithin.
  • Egg yolks
  • Milk
  • Nuts
  • Wheat germ
  • Soybeans and their by-products
  • Peas
  • Beans
  • Lentils
  • Corn
  • Mushrooms
  • Oats
  • Cocoa beans (chocolate)
  • Sweet breads - liver, brains, kidneys


Potassium: - use in moderation

Foods High in Potassium
  • Apricots
  • Artichokes 
  • Avocados 
  • Bananas 
  • Cantaloupe 
  • Cod 
  • Dates 
  • Dry beans (i.e. kidney beans and navy beans)
  • Figs 
  • Flounder 
  • Greens 
  • Honeydew melons 
  • Kiwi 
  • Lentils 
  • Nuts 
  • Oranges 
  • Peaches 
  • Potatoes 
  • Prunes 
  • Pumpkins 
  • Raisins 
  • Salmon 
  • Sardines 
  • Potassium-based salt replacements 
  • Tomatoes 
  • Watermelons

Foods Moderate in Potassium
  • Apples 
  • Broccoli 
  • Brussels sprouts 
  • Beets 
  • Carrots 
  • Celery 
  • Cherries 
  • Eggplant 
  • Mango 
  • Mushrooms 
  • Okra 
  • Peaches 
  • Pears 
  • Peanut butter 
  • Plums 
  • Peppers 

Foods low in potassium
  • Asparagus 
  • Berries 
  • Cabbage 
  • Cauliflower
  • Corn 
  • Cucumber 
  • Grapes 
  • Grapefruit 
  • Green beans 
  • Onions 
  • Peas 
  • Pineapple 
  • Radishes 
  • Rhubarb 
  • Tangerines 
  • Turnips




Geez!!,
Wouldn't have been easier telling what he could eat??
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« Reply #94 on: March 07, 2008, 07:22:11 PM »

Ugh.. oh no.. its there.. the nasty asparagus!!!.. Just my luck huh?  I hate that stuff..
And I'm glad I read the one about grapefruit.. I personally am on Heart meds and was told my cholesterol was high..
The little pamphlet they gave me has grapefruit listed all over the place..

This is great.. and helpful to even those not on dialysis.. healthy eating 
Thank goodness you can have ice cream now and then...
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« Reply #95 on: March 13, 2008, 11:09:47 PM »

Asparagus will make your urine stink.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #96 on: March 14, 2008, 06:02:13 AM »

Asparagus will make your urine stink.

Ohhh thank you ..gave me yet another reason!
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« Reply #97 on: April 23, 2008, 03:03:45 PM »

what to avoid?    blind techs with sharp needles
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« Reply #98 on: June 21, 2008, 06:10:30 PM »

what to avoid?    blind techs with sharp needles

 :bow;   :rofl;   :bow;
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Hello everyone

« Reply #99 on: November 21, 2008, 04:05:23 PM »

Thanks so much for the information on potassium. I have been having a lot of trouble with my potassium being high and I really did not know what I could or couldn't eat.  :flower;
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