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Author Topic: What to avoid ???  (Read 108473 times)
swramsay
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« Reply #100 on: January 08, 2009, 10:02:36 AM »

Thank you for posting the USDA links for potassium and phosphorus food content! I have been looking for that info for a while now. My potassium is too high as well as my phosphorus. This info will really help.
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

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twirl
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« Reply #101 on: January 27, 2009, 04:26:11 PM »

aviod reading recipes in the Diet and Recipes Section

( a little IHD humor)
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MIbarra
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Stopping to smell the bluebonnets

« Reply #102 on: January 27, 2009, 04:27:39 PM »

yes you must avoid those sausage balls!   =)   Why does this make me think of something other than breakfast sausage?
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phey12
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« Reply #103 on: March 02, 2009, 07:49:14 PM »

Really? sausage balls are not qualified? I don't really want to have that because I love that food. Here are the foods that are qualified POTASSIUM count becomes crucial -- no more than 2 to 3 grams per day, according to the advice of the patient's physician. Since this is currently not a requirement for listing in the nutritional information on food packages, a list of high and low potassium foods from a dietitian or a comprehensive book on nutrition is a valuable resource.

SODIUM, probably already restricted in the months leading up to dialysis, also is crucial. While still limited, sodium is one of the minerals removed by the dializing process, so guidelines might be modified upward. Depending on the particular medical condition, a limit of 2 to 3 grams daily will be given.

DAIRY PRODUCTS, while an important source of high quality protein, need to be limited because of the phosphorous content, perhaps to 8 oz per day including milk, cheese, and butter. Allowable cheeses include parmesan and other white, low-sodium varieties. Non-dairy substitutes work well on cereal, in coffee, and in desserts.

PHOSPHOROUS is an important element for good bone production, and most people can handle any excess; their bodies simply eliminate it. But that's not true for the dialysis patient, so high phosphorous foods have to be avoided. Itchy skin is an early sign of phosphorous building up in the blood stream. Forbidden foods include bran cereals, brown rice, dried beans and lentils, organ meats, salmon and sardines, chocolate and cola drinks.
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okarol
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« Reply #104 on: March 02, 2009, 09:57:53 PM »

hi phey12 - please go post in the introduction section and let us get to know you better. Are you a patient?

okarol/admin
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« Reply #105 on: March 03, 2009, 04:34:10 AM »

Mibarra--- suasage balls make you think of doing the laundry ???

I have made them for so many years that I hardly like them anymore but my family loves them.
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MIbarra
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Stopping to smell the bluebonnets

« Reply #106 on: March 04, 2009, 03:41:51 PM »

Laundry is over rated!  =)
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Tallons5
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« Reply #107 on: August 11, 2009, 10:58:56 AM »

HI to all....Ummm I'm thinking maby a diet of plain popcorn and a little bit of chicken breast both are things I love very much!
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tyefly
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« Reply #108 on: August 15, 2009, 11:26:42 PM »

       Salmon is high in phosphorous......??     what about trout......  steelhead.......   I love fish.... and have a freezer full of it......  Its salmon season right now  and  I am planning on going out this next week.....     Gee Whiz
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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breezysummerday
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« Reply #109 on: August 16, 2009, 12:42:36 AM »

the way I understand it, anything is okay in moderation
definitely salmon season here too
and go out next week...I've landed 20 so far this year...
is salmon one of those foods,  that the benefits out weigh the
detractors? 
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Zach
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« Reply #110 on: August 16, 2009, 04:18:52 AM »

Really? sausage balls are not qualified? I don't really want to have that because I love that food. Here are the foods that are qualified POTASSIUM count becomes crucial -- no more than 2 to 3 grams per day, according to the advice of the patient's physician. Since this is currently not a requirement for listing in the nutritional information on food packages, a list of high and low potassium foods from a dietitian or a comprehensive book on nutrition is a valuable resource.

SODIUM, probably already restricted in the months leading up to dialysis, also is crucial. While still limited, sodium is one of the minerals removed by the dializing process, so guidelines might be modified upward. Depending on the particular medical condition, a limit of 2 to 3 grams daily will be given.

DAIRY PRODUCTS, while an important source of high quality protein, need to be limited because of the phosphorous content, perhaps to 8 oz per day including milk, cheese, and butter. Allowable cheeses include parmesan and other white, low-sodium varieties. Non-dairy substitutes work well on cereal, in coffee, and in desserts.

PHOSPHOROUS is an important element for good bone production, and most people can handle any excess; their bodies simply eliminate it. But that's not true for the dialysis patient, so high phosphorous foods have to be avoided. Itchy skin is an early sign of phosphorous building up in the blood stream. Forbidden foods include bran cereals, brown rice, dried beans and lentils, organ meats, salmon and sardines, chocolate and cola drinks.

This list is not quite accurate.

Salmon is fine. 

Some varieties are higher in phosphorus than others, but enjoy! Just make sure you take your binders.

Fish, salmon, chinook, raw 3 0z.
Phosphorus, P   246 mg
Potassium, K      332 mg
Protein                17 grams

Fish, salmon, sockeye, raw 3 oz.
Phosphorus, P   183 mg
Potassium, K      332 mg
Protein              18 grams 

Fish, salmon, Atlantic, wild, raw 3 oz.   
Phosphorus, P   170 mg
Potassium, K      416 mg
Protein              17 grams

Search the values and set yourself free from the tyranny of the "lists."
http://www.nal.usda.gov/fnic/foodcomp/search/

Information = Empowerment = Enjoyment

8)

« Last Edit: August 16, 2009, 04:28:34 AM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
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tyefly
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This will be me...... Next spring.... I earned it.

« Reply #111 on: August 16, 2009, 10:41:41 AM »

   Good  I am glad to hear that ..... I love fish....  and I love fishing more......   I will eat more tums..... They told me to take a tum after each meal....  Those are the same as binders .......  I guess they are binders..... their just not prescrib binders...... right..???

 Zack    thanks for the information from the USDA web site.......   I need to spend time their....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
monrein
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« Reply #112 on: August 16, 2009, 11:10:40 AM »

Be sure to keep a close eye on your blood calcium levels.  If it goes up, you'll may well have to switch to a binder like Renagel.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
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This will be me...... Next spring.... I earned it.

« Reply #113 on: August 16, 2009, 11:35:36 AM »

Thx Monrein......    I will..... last blood test my calcium was on the low side...  they told me to start taking two 1000mg of vit D.....      but my phosphurous was good, right in the middle... and my potassium was high,,,but I can get that down buy taking a extra bumex and getting a little more water off....   
    I guess  the one thing that I am a little concern about eating is how fast can your phosphurous and potassium change.....    is it over night or  maybe a week...   I am thinking that as long as I eat good foods that at not high with either of these I should be safe...  and of course take my tums too...
        So many blood chemistries to watch.......  There are some good food choices on this site that is very helpfull though....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
monrein
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« Reply #114 on: August 16, 2009, 12:43:53 PM »

What is bumex?  Potassium can build up quite quickly and  I've only heard of Kayexalate to bring it down.  As your function decreases the potassium will not be excreted and so we need to carefully watch the potassium we eat.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #115 on: August 16, 2009, 03:23:51 PM »

    Bumex  is a   diuretic  like lasix  that help me keep the water off.......   It has been doing a good job... I know that my levels of potassium have been in the past pretty low as long as I didnt have water build up.....   but I noticed that my potassium this last time was 5.0  but I didnt take any bumex on that day... so I had a little water build up....    I suppose your right...there is a possiblity that as my function decreases  then my kidneys may not be taking out the potassium...   and only water.... I read about that .... maybe I should have blood work done in a couple of weeks again and not wait for 6 week more weeks.... I will contact my new doctor..... I have not seen this person  and am not suppose to for untill the end of sept as that was his first availible appt.......  my last doct was seeing me once a month and I was doing lab work once amonth..........   Thanks for that information.....  I do realize that high potassium  can  be a big time problem...... we dont want that.........
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
joelietz
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« Reply #116 on: February 11, 2010, 02:07:51 PM »

Yes, ditto on the great list! It's good to know what's healthy to eat! I didn't know anything about starfruit either so thanks for that!

Right now I'm checking out medicare supplement plans for my mother. I found a site that compares various ones and I wonder if anyone else has used an online site for that too?


Thanks for the list Angie, that is exactly what I have been looking for.. ;D
Also a huge thanks for the starfruit warning, I didn't know anything about that..
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lorna
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« Reply #117 on: October 06, 2010, 03:20:27 AM »

you can never keep everything straight i am constantly looking things up!
« Last Edit: October 18, 2010, 11:01:11 PM by lorna » Logged
sgcline
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« Reply #118 on: October 17, 2010, 09:35:58 AM »

It's aways good to get a refresher on what foods limited.  The USDA website is going to be very helpful.  Thanks to those who posted it.   :thx;

I have trouble limiting my potatoes and dairy.  My husband LOVES potatoes, so we tend to have them a lot with supper.  Plus, when you go out to eat, seems like potatoes is always one of the sides you get.  I really try to just eat smaller portions.  As for the dairy...I love milk and cheese.   ;D
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2/9/11 – Pre-emptive kidney transplant.  My sister was my living donor.
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« Reply #119 on: October 18, 2010, 09:26:38 AM »

not sure if anyone posted this anywhere else but i was in Safeway the other day and they have a book in the produce section that breaks down every single fruit and vegj you can imagine even different types of apples or lettus for example. you can buy a copy of a smaller one with less in it but they have a stand with a laminated book that was very very helpfull! i never shop at safeway but seem to be there all the time now!
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karrye
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« Reply #120 on: February 23, 2011, 06:39:59 AM »

Starfruit equals yummie!!! I love them!  Lee hates fruit but blueberries, so I have no worry about him eating one!! LOL
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Had surgery April 25, 2011 to bring fistula nearer to top of the skin.
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Who started dialysis 1st week of December 2010.
Complete kidney failure November 30, 2010.
Surgery for 95% blockages in his right carotid and jugular February 22, 2011
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« Reply #121 on: May 28, 2011, 09:33:27 PM »

I agree... this needs to be stickied.  I almost ate a starfruit a few days ago; so glad I  have oral thrush at the moment and decided to wait until I could actually taste it!!!!  Whew!
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babycake
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« Reply #122 on: June 22, 2011, 11:23:37 PM »

i have a list of foods
where it says limit or avoid
but geeze
just take a extra binder when you eat extra
it says to avoid yogert but yet you can limit it
which i dont eat it that often

how often does anyone eat icecream
thats a limit not totally avoid

how often does anyone eat liver
thats a limit
and so forth
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kremizin
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« Reply #123 on: August 03, 2011, 06:45:14 AM »

when i enumerated to my mom all the food she should avoid...she said..."what's the use of prolonging your life?" :rofl;
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jagermiester
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« Reply #124 on: August 03, 2011, 06:55:40 AM »

Ok, been going over this thread.  I'm starting to think that it would be better, and shorter, to just make a list of what CAN be eaten.   :cookie;
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