no more pee

[jonn r]

 .............so i goto dialysis 4 times a week and now i really hate it......i put on 11kg from sat to monday.....and i dont know what todo.....i just want to cry.....my life is not getting any better with the dialysis......someone plz help.....





TOPIC MOVED to appropriate section - Bajanne, Moderator

[twirl]

dialysis was a lot better when I had to get off after two hours and go pee
and then pee again after the last two hours of treatment
I could tolerate a lot more fluid
now--- I really have to be careful but I never follow the restrictions
I am no a member to give anyone advice on fluids
I am just saying it is hard and I hate being thirsty
like now --- I have a sinus infection and man is my throat dry
so more fluids and more fluid gain
good thing the next treatment is not a doctor rounds day
I have tried all the little tricks - like frozen grapes and ice and I found nothing really helped
- it is harder as the year gets hotter outside
how much did you drink to gain that much fluid
one patient that I knows always again  12

[thegrammalady]

watch the sodium content of the foods you eat. salt makes you thirsty and high sodium content foods don't always taste salty. i'm able to drink about twice what the doctor thinks i should, but then i still urinate some. the hotter it is the more i can drink. although nowhere near what i used to 3-4 32oz mugs of water each day at work. i talked all day long. everyone is different i usually gain between 1 an 3 kilos each time, closer to 3 over the weekend. it's not easy but you will get it figured out. i find brushing my teeth helps.

[monrein]

Jonn, are you perhaps eating too much salt in your food which will make you super thirsty and also hold onto fluid?  The restrictions of dialysis are really hard to adapt to and it doesn't get easier.  If you're peeing less, which definitely happens as time on dialysis goes on, just as Twirl said, then you'll need to take in less fluid.  I'm really sad too that you're feeling so hopeless at the moment and hope that things get more manageable for you.  

[jonn r]

thanks for all the words.......i do watch my salt intake.......i will try

[Romona]

  I wish I had some words of wisdom.

[2_DallasCowboys]

Please, as the other folks have said, be very careful
with the sodium   It is in everything, even foods you
would not think contain it

I hope you will be better really soon

Anne

[RichardMEL]

11kg has to be close to some sort of record.. what are you drinking?!! How much were they able to get off. You need to be very careful because excess fluid is very dangerous for the lungs and heart - the restrictions aren't there to make our lives miserable but to keep us alive. It takes a lot of willpower but you CAN limit the drinking.. Good luck with reigning it in.

I know I do my best to keep myself to 2kg between sessions because in the long run I believe it will do me good and kep my body in the best shape should that transplant come along.

Try keeping track of your body weight in betwen treatments so you can see how it increases... and keep track in your mind (or on paper if you like ) of what you drink.. eg: 1 cup of x = ~250ml, a can of soda=350ml, etc and watch how the figures rack up.. See if you can eliminate some drinks, or switch to crunching ice or something like that.

Good luck!

[Rerun]

Maiah is a doll!  Do it for her.   I've heard you can gain 3% of your dry weight and maybe a little more over a weekend.  So, if you are 120kg dry weight then you can gain 3.6kg.  I am 48.5kg so I can only gain 1.5.  Well, I average 1kg a day.  So I come in at 2kg during regular dialysis and 3kg on the weekend. 

Again avoid salt and take a bottle of water and watch how much you drink.  Take tiny sips and keep it really really cold.  Suck on ice chips.  Start working out and know that if you sweat you can drink a little more. 

Dialysis Sucks there is no way around it. 

        Cheers  (actual size)

[paddbear0000]

As I'm not on dialysis yet, I don't really ahve any advise for you. A good digital scale would be good to have. I'll keep you in my thoughts. 

[G-Ma]

What Rerun and RM said is absolutely correct....I can drink 32 oz a day so in the beginning...everytime I drank something I put that amount in a measuring jar and when it hit 32 I had to stop...then I went to filling a container with 32 oz and that's all I drank out of...it works too and now I can pretty much keep track mentally but I plan on starting a walking routine so I know I perhaps can drink a bit more just to stay hydrated.  I am just so very afraid of getting fluid on my lungs or damaging my heart as neither is a pretty picture.  You can do it too.  We are here for you.

 

[Zach]

From Bill's Blog:

Here is how salt can sneak up on you (from Hidden Sodium in food)

Twizzlers Black Licorice Twists - four strands have 200 milligrams; four strands of Twizzlers Strawberry Licorice have 115 mg.

Raisin-bran cereals - Kellogg’s has 350 mg per cup; Post, 300 mg; Total, 230 mg.

Jell-O Instant Pudding & Pie Filling Mix - the chocolate flavor contains 420 mg per serving; lemon, 310 mg; chocolate fudge, 380 mg.

Prego Heart Smart Traditional Italian Sauce - this has an American Heart Association logo on the label which means saturated fat and cholesterol are restricted, but not that it’s low in sodium. This sauce has 430 mg per half-cup.

Aunt Jemima Original Pancake and Waffle Mix - prepared as directed, the pancakes have about 200 mg of sodium each.


Read more from the blog:
Beware hidden salt
http://www.billpeckham.com/from_the_sharp_end_of_the/2009/01/beware-hidden-salt.html#comments

[G-Ma]

Thank you Zach for the info.

[swramsay]

I don't know if it was beer. I hope not but I wonder about people who go on dialysis with drinking problems. Some hopefully, by the Grace of God, will kick the habit or addiction. The others must suffer a lot.  I suppose one of the bennies for most dialysis patients is that with these fluid restrictions, it would be pretty hard to become an alcoholic on dialysis.

[RightSide]

I have lowered my sodium intake to under 1,000 mg per day.  And at that level, any fluid I consume just goes right out of me.  I don't retain fluid at all.

I really believe that if you can lower your sodium intake to VERY low levels, the fluid retention will be MUCH easier to deal with.

[monrein]

Exactly right, Rightside. 

[swramsay]

That is unless you have no kidneys and produce no urine as in my case.........

[glitter]

My husband has no kidneys either..hence no urine.
 He keeps his salt restricted and it extremely helps his thirst, and when he does dialysis the fluid comes off easier. He also works to sweat in the summer, (and as long as your careful not to do extreme swings with your electrolytes-which is salt) he does get to drink more- he sweats profusely for it though. You can do it John-it just sucks. I am sorry you have to deal with it.

[twirl]

jello pudding has salt

[monrein]

Almost all processed food has salt and quite a bit too.

[paddbear0000]

jello pudding has salt

Everything has salt nowadays! It's also used as a preservative sometimes too. If you don't want any salt, stick to raw fruits and veggies!   

[boxman55]

Everything has salt. You throw it on your sidewalk to melt ice, you throw it over your shoulder for luck, you sprinkle it on your fries for a double whamy, and so on. read all labels. Try and keep it below 2000mg...Boxman

[twirl]

well, looks like I am going to have to stop dipping my fresh vegetables in chocolate pudding
 

[aharris2]

The machines at our clinic have a "sodium profile" on them. If it is turned on, it supposedly makes it easier to draw off fluid without crashing BP. They like to turn it on. We have found that there's a price to pay - a rebound effect. Yes, it makes that treatment easier (for the tech) but afterwards Rolando is thirsty and consumes way more fluid than normal. They say no way, that they shut off the sodium 1/2 hr before the end of treatment so that your excess sodium will dialyze out, but the result is consistent with us. If they "run sodium", Rolando pays the price.

Do they "run sodium" at your clinic?

[monrein]

I've ramped my sodium profile at the beginning to try to avoid a massive headache post-D.  It was simply awful.  I was so parched and thirsty that the next time I was very fluid overloaded for me and I usually never come in with more than a kilo to take off, even after my long stretch.  I dialyze 5 days a week, two and a half hours each time, and the nurses told me that the sodium ramping doesn't usually work well unless it's at least a four hour run.  We also ramped it up at first but then reduced it every half hour until it was down to the usual 140 by the last half hour.  All the nurses warned me about the thirst and said that's exactly why they don't like it.  What I prefer, if I have to, which I don't have to very often,  is to pull more fluid in the earlier stages of my run and then run at minimum UF for the last quarter or so to avoid the plunging BP.