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Author Topic: A Dialysis Christmas Miracle  (Read 2508 times)
Stacy Without An E
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« on: December 21, 2008, 03:15:28 PM »

We received our yearly copy of "Patient Right & Responsibilities" and one of the points caught my attention.

“Treating the staff and other patients with consideration, respect and recognition of individual differences, both in language and behavior.”

I wrote a letter to the Clinic Manger detailing the abuse I've had to endure due to rude patients and their total lack of respect when it comes to TV volume.

On one occasion, I couldn't get a tech's attention when I was bleeding all over the chair because of a loud TV.  In the other, I was cramping and couldn't get anybody's attention due to the volume.

In my letter, I offered a solution: disconnect all the speakers so patients can only use the TV with headphones.

More manageable clinic.  Safer patient care.  Everybody wins.

I just received a message from the Clinic Manager that this is an easy mechanical fix and will be implemented after the holidays.

It's a Dialysis Christmas Miracle!

The point to the story is, if something if occurring in your clinic that is impeding your safety and care in some way, speak up.

(It also helps if you have a blog in which to air your grievances.)
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
David13
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« Reply #1 on: December 21, 2008, 03:18:52 PM »

That is absolutely wonderful, Stacy! 

It is great to know that you were assertive in making your concerns known.  The fact that they were acted upon may truly be a Christmas miracle.  Congratulations!   :2thumbsup;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
monrein
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Might as well smile

« Reply #2 on: December 21, 2008, 03:36:15 PM »

Good on ya for getting that to happen Stacy.  Squawking is good.  I've never been in a unit with uncontrolled TV noise and I'd be even crazier than I already am if I had to listen to what others are watching.  At my clinic each patient is given a  first set of earplugs for the TV, free of charge, and we leave them in our individual bins.  If we lose them we have to buy the next set.  Seems fair enough to me.

Hooray for miracles.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #3 on: December 21, 2008, 03:42:29 PM »

New one for me...Friday they put me next to a lady who sprays an air scent every 15 min..it was strong, I got a headache, techs giggled about it..I finally put the blanket over my head as the smell was so strong...they were having problems with my arterial and venous pressure so that added time to my run, then alarms were not answered in a timely manner so that added time to my run..one alarm went 12 min with no one coming by...in the chair at 10:45 AM, off the machine holding needles at 3:40 Pm...they knew I was not happy..I didn't go today, couldn't force myself, have to be good for Tuesday's run but I am going to talk to the Nurse Manager who was not there on Friday.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile

« Reply #4 on: December 21, 2008, 03:52:56 PM »

I definitely could not handle an air spray.  How nasty.  Squawk I say and squawk loudly.  We're asked to not wear perfume because some people are allergic...makes sense to me.  Staff should have the good sense to deal with these issues all by their big grown up selves really.  Crazy crazy world.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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Gemma - the tucker monster

« Reply #5 on: December 21, 2008, 03:55:29 PM »

OMG G-Ma  >:(
How rude and inconsiderate of the scent squirting patient :boxing;
and how unprofessional of those techs to laugh little lone not attending to the machine beeping for so long :boxing;

Hope your next trip to clinic is better and make sure you give them "heaps" :Kit n Stik; on Tuesday
Take care mate. :cuddle;
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del
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del and willowtreewren meet

« Reply #6 on: December 21, 2008, 05:08:11 PM »

I would raise "hell" about the air freshener being sprayed. Most hospitals as well as public building have a no scent policy.  I would be very upset with the nurse's laughing at her spraying it!!!  Hubby complained at the center he was at abut the volume. TV's weren't too bad because most you had to use head phones with but one man used to bring a radio and have the volume really loud. He was told if he wanted to bring the radio he had to use the headphones or he was not allowed to have it on!!  He started using the headphones but would sing (will mostly moans) along!!!  That was torture too. 
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Don't take your organs to heaven.  Heaven knows we need them here.
Rerun
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Going through life tied to a chair!

« Reply #7 on: December 21, 2008, 05:38:43 PM »

Let us know when it happens!

                                                      :rofl;
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RichardMEL
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« Reply #8 on: December 21, 2008, 06:24:22 PM »

Stacy thank god for that. We've had the TV's with headphones thing ever since I started in the unit. Thank God. Sometimes they disconnect it and have the TV up loud and if it really bugs me I'll make a comment, but in general people stick with the headphones and it's blissfully quiet. When I fire up my laptop I *always* use headphones (unless in the VERY rare case I'm showing a nurse something) - I just think it's common courtesy. Nobody wants to hear the volume of whatever I'm watching and we don't want to hear the greek news, or the umpteenth repeat of some documentary about Hitler.....

 :clap; :clap; :clap;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Kitsune
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Sometimes the dragon wins.

« Reply #9 on: December 21, 2008, 09:40:55 PM »

There's a few patients at my center who are rude as all hell like that. One old Puerto Rican woman named Iris blares her telenovelas at full volume, claiming to be hard-of-hearing but oddly enough she can hear clear as crystal when she wants to (like when free stuff is given out), another one is Jarvis the village junkie who at one point had his TV so loud that I laid screaming over the sound of his TV for 15 minutes as I cramped so bad I couldn't move, and lastly Angie the laughing hyena who brings DVDs in and laughs uproariously as she blares her DVD player at top volume.

I have a private room and I rarely watch TV since they have me on Phenergan for nausea and it makes me sleep through my whole session, so I am never guilty of this and when I do watch something (usually heavy metal videos on VH1 Classic), I keep my volume reasonable. But you're right Stacy, they do need to shut off the speakers and give us all headphones so that treatment can be safe and disruption-free. I can watch Pantera videos just as easily through headphones as I can without for the safety of myself and others and these people can watch their stuff that way too. And for the hard-of-hearing people, there is closed-captioning on the TVs too, so there is no excuse for the noise and cacophany that goes on.
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"Run your mouth when I'm not around
It's easy to achieve
You cry to weak friends that sympathize
Can you hear the violins playing your song?
Those same friends tell me your every word"- Pantera "Walk" (1991)
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